Tag Archive for Tunnel vision

My 10 ‘MUST HAVES’

Everyone has their own ‘must haves’ or ‘can’t live without’ items.  And maybe mine aren’t that dissimilar, I have very little specialised kit to cope day-to-day.

In no particular order, here are my 10 MUST HAVES:

  1. One Touch Kettle
  2. iPhone
  3. Apple Watch
  4. Compact Dome magnifier
  5. Wrap-Around Polarised Sun Glasses
  6. Power pack
  7. Amplicomms Amplified Bluetooth Neck-loop
  8. Notepad/Pen
  9. Book
  10. Dog Bowl

ONE:  One Touch Kettle:  I like most can’t start my day without a cuppa.  My cuppa of choice is Herbalife Thermogenic Peach Tea; and although there are fantastic gadgets like liquid level indicators and tipping support for enabling VIs to pour a normal kettle, my kettle isn’t a specialist bit of kit.  It is simply a water saving, energy efficient way of pouring just one cup of water at a time.  I don’t even need to lift it.  I simply set the cup size (all my mugs are large-so this is easy) press the button and when the water has heated, the water is dispensed automatically.  With no risk to me….. This also means it is safe for my children to make them or me a cuppa (although this novelty has really caught on yet!)

TWO:  iPhone:  Apart from the ‘usual’ needs for a smart phone to call, text and access maps; my iPhone is an AMAZING piece of accessible tech.  With the standard, ‘Notes’ ‘camera’ ‘Magnifier’ ‘Siri’ in addition to the ‘added at source accessibility features my phone is fully accessible’.  It is more than ‘just a phone’ it is a Canera, A CCTV Reader, a pocket sized PA, with the addition of recent apps such as ‘See Al’ ‘Big Spender’ ‘Station Master’ I have all the information I could possibly need at my finger tips means that nothing is ever far away.

THREE:  Apple Watch:  Just as my phone my Apple watch is an extension of the support I gain from Mac based products.  And actually my increased feeling of safety that my watch offers me, helps me to feel more confident in my surroundings.  With the use of haptics I can set a route on my phone that then gives instructions through vibrations on my wrist.  I have my watch set to enable me to zoom in on the screen, to read and send messages and even answer calls.  In addition to making contactless payments enabling me to keep my phone and purse both safely kept in my bag.

FOUR:  Compact Dome Magnifier:  This is my bewest piece of ‘kit’ that I actually received from the LVC (low vision clinic) at Moorfields Hospital recently.  It is a small Perspex domed magnifier that gives 2.5 magnification, which in the scheme of things isn’t much, but with a flat base and a domed top it enables the light to be increased and this has just as much importance to me as the magnification.

FIVE:  Wrap-Around Polarised Sun Glasses:  To protect my eyes from bright sunshine and glare. (Non-prescription)

SIX:  Power pack:  So that I always have a back up should I be using a lot of the apps on my phone and therefore depleting battery life.  As my phone running out is so much more than just ‘not being able to make a call’

SEVEN:  Amplicomms Amplified Bluetooth Neck-loop:  THIS IS a specialist piece of kit, this works with my hearing aids to support me.  I can stream calls direct to my ears (which works brilliantly for guiding from the ground when I climb)  I can listen to music or audiobooks (as I previously had done before hearing aids)  I can also use the amplification button on the front to enable me to hear a person stood in front of me in a loud, busy environment.  Or tune into a local ‘loop’ connection what is being said clearer and directly into my ears.

EIGHT: Notepad/Pen:  Because sometimes I like to jot down ideas for blogs or make notes and sometimes I like to not use tech.

NINE:  Book:  Just like the notepad, I like to just do the simple things, to enjoy escaping from the world for a few moments (after all with my magnifier and the right lighting, I can still read)

TEN:  Dog Bowl:  clearly this one isn’t for me, but with my faithful guiding girl I need to ensure that I can meet her needs and ensure that just like me, she is hydrated.

So, these are my lists.  And at times I will add other items to them and other times I may not include them all.  But I do start each day with a cuppa and I never leave home without my phone or watch (which probably isn’t any different to any other person in today’s society)  I am sure if you asked another VI they may have different items they consider important.

I just wanted to share with you mine.

i hope you have enjoyed.

Reflections

Photograph of Tee, Weston a grey t-shirt saying “climb on” stood in front of a black and white canvas of a misty hence in Greenwich Park

Photograph of Tee, Weston a grey t-shirt saying “climb on” stood in front of a black and white canvas of a misty hence in Greenwich ParkThis November it will be 10 years since I was registered SSI (Severly Sight aimpaired aka BLIND) it was the appointment with my consultant that EVERY seemed to change, yet at the very same time NOTHING changed.

What I mean by that is that my eye sight didn’t actually change at THAT appointment.  I  simply became aware of just how bad it was.

Having had my Nystagmus (involuntary eye movements) and having worn pretty strong glasses for as long as I can remember my sight had never been great.  But in terms of the distance I could see (I have always been short sighted) had changed very little.

Rightly or wrongly so; when I was in my early teens I had been discharged from the consultant at the hospital, where I was given into the care of my opticians.  With the strength of my prescription And it was through this team that in July 2008 they used their new camera equipment to try getting a photo of my retina.

My optician wasn’t happy with what she saw, but she couldn’t explain it to me as she explained it could simply be that with my eye movement the photograph wasn’t actually true.  So she referred me to the hospital for a thorough check up.

Having been rushed in as an emergency after the hospital were concerned I had detached my retina (a common issue that if caught early enough can be reversed) I discovered that this was not the case, the registrar discovered I had cataract in both eyes, I will always remember what she said;

With laser treatment we can remove them and that would actually improve your vision.

But as she was simply confirming I hadn’t detracted my retina, she didn’t actually comment on the fact that my retina wasn’t ‘complete’.

So, you can probably understand my total shock when I returned a few weeks later to see the consultant to be given the news of just how bad my sight was.

I did have cataracts (my left eye had been diagnosed when I was 12) But the laser surgery suggested wouldn’t be easy and would have very little affect at this time.  And actually with my retina dying away my sight would actually only get worse.

Many people ask me

How did you not realise you were going blind?

Its simple, the changes in my peripheral were suggested to be something that had been happening steadily for many many years, and as I only likely lost a small amount at a time I didn’t actually realise.

I did notice ‘little’ things after my daughter was born in 2006, like how I was bumping into things, like low level tables or benches.  But I put this down to ‘baby brain’

I had also noticed that it was taking me longer for my eyes to adjust to light changes; like walking indoors after being out in the bright sunshine, but because I had reaction lenses this went in-noticed as an actual change in my sight (as I assumed it was just the glasses)

So…… Reflections.

I have decided I want to celebrate this anniversary.  I want to acknowledge that as me I have changed from the person I was before.  It hasn’t always been happiness and celebrations, but I have tried to embrace my blindness (and now deafness)

It may sound like a cliche

But in these last ten years I have had so many amazing opportunities, so many doors open to me.  I want to move forward with me and celebrating the good seems the best way to do this.  I am human, I can’t be postmitive ALL THE TIME.  But in this instance I want to look for the good, rather than dwell on the bad.

But the question is (and this I hand over to you my readers) ….

How should I celebrate???

When riding a bike is not like riding a bike

Photograph shows a ‘selfie’ of Simon smiling at the camera, with me, Tee sat behind him on the left. The photo is of us both sat on the Tandem, but the bike is not in the shot.

About a month ago I bought myself something rather quite special.

I bought a tandem.

I bought it from a fellow blindie who had had a change of health and although the bike had been serviced and well looked after; it had remained sat un-ridden.

It is only through the ‘on this day’ feature of Facebook that I can tell you that it has been just under two years since I have ridden a bike.

It was when we were away on holiday with the children, it was when we were riding on site of a Haven Holiday Park.  After this I am sure that there was one further bike ride back at home before my bike was left to gather cobwebs and become home to spiders in the garage.

I did not stop riding because of an injury.

I stopped because with my hearing going in addition to my sight I did not feel I was safe either for myself or for other road users.

Many would be surprised that it is only in the last two years that I haven’t ridden my bike.  Thinking about it now, it was pure stubbornness that had stopped me from hanging up my riding helmet before then; in the same way I can only imagine that a car driver who is in denial about their sight feels about surrendering their driving license.

A tandem was a way of gaining back some of me.

Yes, by the very definition of it I would only be able to ride with someone else.  But riding a tandem with someone else feels less of a lack of independence than riding a bicycle with another adult beside me.  I think that this is because a tandem is for ANYONE.  A normally sighted person can ride a tandem, it isn’t a ‘mobility aid’ in the conventional sense of the word.  Even though when I think about it, in my case it kind of is just that; a mobility aid.

Anyway……

I had the bike serviced and checked over.  I spoke with a few friends about coming out for a ride with me and then, earlier this week.  One of them took me up on my offer.

Having spent time looking over the bike and following the workings of it I was instantly struck by the fact that as the rear peddler (the stoker in technical, bicycle jargon) I had no gears or brakes.  I was to simply just peddle. (Which when you think about it sensibly it makes perfect sense, but to me as a former solo cyclist-I had always had gears and brakes)

So, if all I was to do was to peddle. When and how would I know to peddle?

How would it feel sitting behind someone else (The Pilot-more jargon) who was in control of where we went?

How fast we got there?

And in what intensity of gears we were to achieve it?

I guessed I would just have to ‘go with them’ … LITERALLY.

My faithful Climbing Partner in Crime (CPiC) Simon was my first volunteer; we have ridden together before (on individual bikes) and he more than most understands my sight loss, and more to the point my anxieties of something new.

First he took the bike for a ride to the end of the car park without me.  This gave him a feel for the length of the bike and the kind of turning circle it would have.  Then it was my turn to get on with him.

My first ‘odd’ feeling was that I had both my feet off the floor, on the peddles and yet the bike was still upright and stationary.  This being because Simon is taller and still had his feet on the ground!

We set off; it was wobbly, but it soon became smoother as we got into a rhythmic pattern.  And surprisingly; not being able to see infront of me wasn’t concerning (because all I could see was the red of his jumper) felt O.K.

It felt ‘odd’ in the sense that I didn’t feel I was peddling enough, not as much as I thought I remembered from when I had ridden my bike before.  However, what I was forgetting was one simple rule;

”Double the bodies means half the power”

Easier said than done.  When the pilot slowed down I felt that as the stoker it was for me to peddle more.  This wasn’t the case.  In fact at one point I was told very bluntly to “JUST STOP”

I began to relax into the journey, I began to feel when it was time to coast and when it was time to peddle.

I also felt the exact point where my shoulder relaxed and my anxieties of ‘letting the other rider down’ were disappearing.

I only got off the bike and walked at a point where we crossed a road on the footpath (rather than add the complication of the road junction into the mix)

And before I knew it we were heading back towards home.

I could lie and say my arse wasn’t hurting from being sat on a not so padded saddle.  I could lie and say I didn’t get cramp in my thigh….. But then were would the fun be in that?

It was interesting to discover that I can suffer with ‘Elvis Leg’ when riding a bike, just as I do at points when I am climbing….. This usually comes at a point where I am concentrating so hard that (as silly as this will sound) I forget to breathe!

We managed to clock up just over 9km on our first ride.  After all I live in The Highlands area, which as the name suggests is an area with many a hill; which for the most part I want to be avoiding until my bike fitness has improved somewhat.

The route was recorded on my Apple Watch and all the specifics as to times, heart rate and distances are stored within my fitness app.  So next time we can follow the same route and see the improvements in it.

I wasn’t really able to talk to Simon much while we were cycling (but then there really was no need to) so when we arrived back I asked him how he felt, his answer wasn’t what I think I expected to hear;

”It felt creepy having someone riding RIGHT behind me, so close; I felt I wanted to ride to get away from them.”

…. But as he never managed it, he said it was just something he would have to get used to.  And he has agreed to go out and ride with me again.

So watch this space for more tandem cycling antics.

 

 

Fears

Fear is a strange thing.

It can come from no where and just APPEAR before you even realise it is there, then it can stop you from achieving so much, holding you back from something that you don’t even realise is a SOMETHING.

For me, I have a fear of falling. Literally falling, not metaphorically falling.

Which you would think as a climber would be ‘part of the territory’ for me; and actually partly it is. However there is a big difference between taking a fall on a rope to taking a fall on a bouldering wall.

The most obvious of which is the lack of rope! That rope that even when I am 17 ft up a wall doesn’t guarantee I won’t hurt myself on the wall; or swing out; or come down a fair distance because of the give in the rope, or my belayer leaving too much slack.

And there are also times when I make a move on a roped climb and I am not actually at a height where the rope would have an affect. But it is a security, it is a safety net and one that even if it is purely psychological at times makes me feel safe.

When I boulder (outside of competitions) there are no top ropes, no safety net. It is all on me…..

And that is scary and fearful and makes me emotional just writing this.

One thing that I see other climbers doing, and I have watched dozens of instruction videos about, is jumping down from the wall.

Not from the very top, but most definitely from a height at least as tall as they are.

Which for me; as someone who cant even see the floor when I am stood on it, the thought of jumping any height is where my fear of falling comes from. You see, or rather I can’t see, so can’t work out where the floor is and how quickly I will approach it.

And it is this fear of falling and not being able to get off of a climb that has stopped me from wanted to boulder. It is only on the odd route where I can actually ‘top out’ climbing over the top of the wall and coming back down via the cafe seating that I happily give it a go.

All routes on a bouldering wall are colour coded. So you can go to ANY wall within the centre and know exactly what level the climb before you is. I had no real intention of actually bouldering on this evening. But then my CPiC said

“You need to be aiming for yellow”

I looked at the colour chart, I looked at the yellow and then I replied,

“I’m just going to work on biscuits”

As in the colour, not the food!

And why biscuit?

Well, basically biscuit is v0, the easiest of all the climbs. But it wasn’t because of the ease of the climbs, tonight I had decided I was going to work on something in a different way.

I was going to work on my fear.

My fear of falling and my fear of how I would get back off of the wall. As I said before, jumping down when you can’t even see your feet makes the ground a scary place. And as I had previously had to be ‘lifted’ off of the wall by my CPiC because I totally froze and couldn’t go either up nor down. (Something that he didn’t want to be repeating every time I attempted a boulder)

The climbs were easy, they were also over far too quickly (v0 climbs don’t tend to be high)

However it wasn’t about the climbing up, it was more about the coming down. And this is a point that anyone who climbs will tell you is actually harder than going up in the first place.

So, how do you climb down?

I often climb up by allowing my feet to follow where my hands have been, I didn’t know how I could just reverse this process seeing as I couldn’t actually see where my feet were.

I stopped thinking……….

May sound silly, but thinking too much is often my downfall.

It didn’t matter what holds I used to get down, I didn’t stick to biscuit, I just took the holds that felt safe and in reach. A reach that I naturally found myself doing with ease when I crouched down, climbing my hands down the wall first to enable me to then move my feet.

As good as it felt not to be scared of going up as I knew how to get down, I was exhausting myself.

Climbing down is harder than going up (I think I said that already) ……

But how do you jump when you can’t see the floor?

Maybe that was my problem? I was fixing on something I couldn’t see, rather than working with something that I could see. When I am on a roped wall I can’t see the floor. I don’t even look down anymore. I just sit back in my harness and walk down the wall with my belayer counting me down to the floor. (Initially he would just sit me down on the floor in my harness)

So, to jump off the wall. This is where the trouble with thinking reared its head again! I just kept thinking about it. So much so that I had built it up to be a lot more than it actually was.

With my CPiC spotting me (standing behind me) he put his hand on me to ‘show me’ where he stood against me (height wise) and knowing that he is just short of 6 ft I could gauge where I was compared to the floor.

But I couldn’t jump.

I had to climb down further.

And even then I just couldn’t jump.

As I said, I was thinking too much……. I knew the floor (safety matting) is spongy and have some give in it. So I knew I wouldn’t be landing on solid ground (for good reason too) but knowing that the floor would move made me even more scared of it.

I needed to just do it.

But how do I jump?

I was holding onto the wall…..
I was crouched down slightly……
I was less than waist height from the floor……
I just had to let go and jump down…………………….. But I couldn’t do it……………

I forgot how to jump.
It was that ‘thinking’ thing again……

So, letting go with my hands first and then i jumped……..
Only I didn’t …… Not really ………………………………………..

I forgot to bend my knees.
I landed with a thud.
It was purely because of my CPIC that I didn’t fall backwards.

I failed………….
I tried again…………

I struggled again………..
I forgot to bend my knees………

I ended up head butting the wall in front of me………
I went back to climbing off the wall……………………….

I faced a fear, and although I didn’t over come it, I tried. I gained a better understanding of my position on the wall.

I moved to purple holds,

I worked on my technique.

I worked on my starting point on the wall. I worked on my start, pulling myself up from an almost sitting position on the wall and I focussed my energy on something else.

While my CPiC was busy with his own climbs I found myself relaxing about the jump down, I climbed down to the floor, then climbed back up several holds and jumped……

The benefit of me doing it is that I couldn’t see how stupid I looked (I felt stupid enough) I bounced on the matting, I sometimes stayed on my feet and sometimes not.

But each time I jumped I landed without hurting myself or anyone else.

It may well have looked ridiculous; your probably reading this thinking it sounds ridiculous. But do you know something. That doesn’t matter.

Because despite thinking, despite fear. I DID IT.

Didn’t you see it?

There is nothing like a GDRI (Guide Dog Related Injury) to wake you up on a chilly winters morning.  Although in fairness, this wasn’t Fizz’s fault at all.

After the school run we were heading over to catch a bus, but as the weather was bright (although chilly) I had decided we would walk the 20 odd minutes to a stop further away.

A stop that saw us having to walk through a lovely park area that Fizz often gets to run around in.

So I knew her distraction level would be heightened.  But this I could manage; I could even handle the other free running dogs coming over to say hello.

Afterall, I didn’t expect them to understand it when their owners were shouting

“Leave, that’s a working dog!”

So, with her harness in my left hand (as usual) and the lead in my right; we navigated through the park.

Several Dogs; ignoring their owners pleas came to say hello.  But with a strong

“Leave it, walk on”

Fizz ignored them for the most part….

That was until we met a tiny dog.  I say tiny as Fizz had to put her head down some way to sniff (which I could feel through the harness)

I could hear the owners pleas, but they were some way away, so continued with our walk and giving Fizz the command to go on.

But she wouldn’t.

I thought this was just down to the distraction of the dog, so persevered and finally got her to move forward.

And that was when it happened….

I fell forward, landing full pelt onto my hands and knees

When the owner appeared beside me and uttered those words

”Didn’t you see the lead?”

Suprisingly, NO!

It would appear that said small dog ‘Rouge’ was on an EXTREMELY long lead type rope, which the owner used as she (Rouge, not the owner) was so small she would get lost if not attached!

I asked the owner why she hadn’t used the leader to get her dog out of the way and her reply made me laugh

”She may be small, but she is very strong and I can pull and pull on her lead, but she just won’t be moved.”

To give you an idea, this dog was chihuahua sized, but with long hair.  Personally I thought she looked like the sort of dog that would blow away if the wind was more than a gentle breeze!

But I kept my comments to myself, picked myself up and making sure the dog wasn’t in front of me, continued on with our walk.

I know that walking through the park can be a distraction for Fizz and I also know that dogs will be running free and want to say hello.  What occurred today left me winded!  And if I am honest, a little upset.  I received no apology; or worse still, no help from the other dog owner.

But it has reminded me that Fizz May be surrounded by distraction, but she still knew what was best for me!  Something I don’t give her credit for enough……… Lesson Learned!

An Open Letter

DEAR CAR DRIVERS

Thank you for your kindness. I do not want this post to sound ungrateful. Really I don’t:

When you see me and my working girl (guide dog) Fizz waiting patiently at the curb edge to cross the road, I do not think you rude for driving on.

Stopping and (I can only assume) flash your lights, waving at me or even tooting your horn, (this I can hear) will not make me walk out into the road.

By stopping early for the junction you are being kind. But you are also putting me in danger. If I were to cross in front of you, your engine noise could mask that of a car coming the other way, or a car behind you could decide to overtake.

Unless I am on a designated crossing, Fizz is trained to not go before you. So I will stand and I will wave you on. I will put my hand up to wave a thank you, or give you a thumbs up; but please just keep going.

(Even more so when it is dark, both me and Fizz will be in high viz, but we are both dazzled by your headlights)

When I wave the first car on, why would I then walk before the 2nd? I am not doing it to be ‘carist’ I will wave each and everyone of you on.

I am not being rude, I am ensuring my own safely. Please understand, by stopping early you are often creating traffic build up, reducing the ‘natural gaps’ that would enable me and Fizz to cross safely.

I am not alone with this, all guide dog owners are taught this, as are all (or where when I was trained) long cane users.

If I am with a friend or a kind stranger has offered to help me cross.  AND if crossing in front of you would be the only option, I will drop Fizz’s harness handle (walking her just by her lead) and taking the arm of the person with me.  This removes the responsibility to guide me from my guide dog and is the only time I will ‘break the rules’

This is because we have assistance from a sighted guide.

Thank you for taking the time to read this letter xx

safe travelling to you all xx

Warm Wishes xx Tink

Familiarity is a Blind Gals Best friend

Just as a car driver does not need to actually look at the gear stick to change gears in a car, there are places where I can move around with great ease without the need to see.

To a degree I can walk around in my local gym without the need for my cane or guide dog. The machines all have their set place, it is just me needing to focus on where the other gym goers are, although given the location of the mirrors and the windows in the gym I can easily become disorientated.

One such place I do not need to look is my own home.

Although this does not include my childrens’ bedrooms ….. These are the only two places in my home that I walk with shuffled feet and taking extra care.  But then I have it on good authority that many of my sighted parents do the very same thing in their childrens bedrooms as they are a minefield of Lego, cars, clothes and all things child!

I can also extend this ease of movement to The Scout Hut where I volunteer, although with this environment I have to factor in moving children.  However the main hall, entrance hall and kitchen are set out in such a way that apart from the odd additional table, everything has its place.

Suprisingly another place that I can move with ease is Calshot Climbing Centre.  For obvious reasons the walls never move.  Even though the holds and routes on the walls may alter.  The blue fencing around the climbing walls and the black cubbyhole benches don’t move.  It is just the climbers, their gear and the ropes that do.

The wall also has marked out areas on the floor where you can and cant walk.  These are depicted by a dark red floor for the climbers and belayers to stand in and a black mat flooring where you can wait, stand and walk without being in the way of a climber or their belay partners.  Although saying this, there is not much contrast between the two colours and if I don’t concentrate I can occasionally get it wrong.  But generally I am ok.  Although if I am moving between different climbs; for ease I will link into the arm of my CPiC.

Should I need to go and top up my water bottle or pick up a set of hold keys, because a hold has slipped, I can do this unaided and unsupervised by my partner.  Although I will often ask him

Is there a clear path?

I know to walk with my head down, so that I can look out for objects on the floor.  I also find myself asking others if they are belaying if there is the odd person stood.  Because although I can see the person, I would really struggle to see the rope they were holding on to and as a considerate climber, I would never want to walk near a belayer that may need to suddenly move to support their climber.

This familiarity that is great for me is often an issue of concern for those who do not know me.  Especially as I tend to wear a top that says ‘Blindclimber’ on the back.

I have previously, in other circumstances had people question my blindness.  It is a common occurrence and one that does not faze me. It does however occasionally upset me when people are critical and rude in the way they question.

Why am I telling you this?

Well, Friday while climbing I had one such occurance.

The climbing wall was cold.  So while belaying I had my fleece on.  This covered my top.  So as is usual, I don’t look up to watch my partner climb.  Not because I am rude, but because once his feet are over my head height I can’t see very much of him.  And because I feel is climbing and movements through the rope; I learnt a long time I didn’t have to get neck ache and pretend.

This does however often lead to other climbers (not so) quiet whispers of

Oh my God, he isn’t safe up there.

How can he be safe with her? She isn’t even watching him!

Wow, he’s brave.  How can someone belay without looking out for the guy on the rope?

This is a conversation I have had many a time with my CPiC, he knows I have him.  He knows he is safe.  He would not be happy to climb if he didn’t feel either of them.

Friday was very much the same.  With my fleece on the group of three chatting by us were not so subtle in their conversation and accusations.  So me being the outspoken, no shit personality that I am.  Without them even asking, I politely said

Hey, just so you guys are aware, I can’t see too well, so if you are climbing near here you will need to be more aware of where my partner is as I can’t warn him of where you may be on the wall.

This was met with the usual mumbles and apologies as they were well aware that I had overheard them talking.  And as such were very detailed in the position they were going to climb, which was actually several climbs over and no where near (but this I also already knew from the direction of their voices and the movement of their rope bag)

But it enabled me to make my point and be heard loud and clear.

So, it was my time to climb and off came the fleece.  The back of my top visable and I never thought anything more of it.

That was until later in the evening when I went to full up my water bottle  (afterall when it is cold it is just as important to be hydrated!). and The Three Amigos were sat around the other side of the wall laughing and joking.  I was met with

She can’t really be blind, look she is walking with such confidence she can clearly see what she is doing.  Why would you lie?

I don’t even warrant such comments with an answer.  I just got my water and went back to my partner.  He instantly realised I was bothered by something and so I told him, he knows how this gets to me and told me (sincerely) to ignore them and enjoy the climb.

Which is exactly what I did.

And exactly what I will continue to do each and every time someone questions my abilities.

Afterall, those who are technically blind can often see something.  And they will use that minimal sight to appear as ‘normal’ as the next person.  I don’t believe I am any different to others in that way?

Or maybe I am?  Why don’t you put your comments below.  I am always interested in people views.

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Would you be my eyes?

Watching a film earlier today with an additional audio descript soundtrack; my son asked me

What does blue look like if you can’t see?

A question that made me think, I asked him what he thinks of when he thinks of the colour blue, to me it is the sky, the sea and swimming pools.

But mum, what if you had never seen before? What would blue look like?

And so I decided to write this post, I couldn’t answer my sons questions; but I have told him I will, I just need to do a little research first !!

For as long as the written word has existed there have been ways of evoking images from it.

Abjectives, Verbs, Nouns, connotation, yet these all rely on you knowing what such objects look like. In my research of this subject I have found something, something that was buried at the back of my brain with all of my other Secondary Educational learnings;  Pathetic fallacy – where the weather in the story or written word mirrors the emotion of the scene or the people in it. For example, when it is very hot the characters are agitated or when it is foggy, mystery is evoked. This is used to adds atmosphere to the writing and gives clues to the reader as to what is to come, especially if the weather is described before the event.  Just as many horror movies occur on dark stormy nights.

Do you need to know what weather looks like to understand it?

No, as someone who enjoys every type of weather and the changing seasons this is one element of life that I can use my other senses to understand.  Weather can be truly ‘FELT’ the hot sun on my skin, the drizzly rain, the north-easterly breeze.  Fog comes with the additional sounds of fog horns (living on this coast these can be heard miles in land) Mist gives a dampness to the air that isn’t present when it rains, morning dew has a smell to it, a storm too can have its very own smell and it’s not just thunder that makes a noise.

Weather can’t explain colour or shape though, although it works very well for emotion.

So, I am back at the beginning.

How would you describe the colour blue?  Without using the word, what does blue look like?

I have had sight and I have been fortunate to be able to see and remember colours, images, items.

Even though now my perception of colour is greatly altered, I can only really see the difference between orange and red when they are together and everything I see has a kind of haze or veil over it, so isn’t as vivid or true as it once were.

My hunt for answering my sons questions will continue, but for now; humour me?

Please reply to this blog post with your description of the colour blue.

No judgement will be passed, no humiliation with be sort.  Just an intriguing mind looking for help.

Thank You x

A very British problem ….


Is politeness.

Have just had a friend call me and apologise, it was lovely to speak with her, however I was a little confused.

She was all flustered and sounded upset, I initially thought she was phoning about her mum who was very sick and that it was bad news.

So it took a few moments…. Then again she apologised, so this time I asked her why.  Her answer;

Because I drove past you in my car going the opposite way and I waved to  you.

I couldn’t help but chuckle at this and said I hadn’t noticed her, so surely I should be the one apologising.  No, no; she continued.  She had spent the rest of her drive chastising herself for it, she wanted to call me the moment she got home to apologise for being so stupid.

By this point she was getting upset again and I struggled to calm her down.  I explained it wasn’t stupid and the gesture was lovely.  I explained that I wouldn’t have seen her, so apologised for not responding.

We both laughed about it and then she said the words, the words I have heard many many times before;

I just didn’t think, because you don’t look blind.

To this I laughed and again, she apologised.  Not that there was any need to, app of my friends know that I do not want to be treated differently, that if I need their help I will ask, so why wouldn’t she have waved to me while in her car?  She would do exactly the same to her other friends.

We talked about how I wasn’t offended by her comment, that I knew she hadn’t meant it as a bad thing.

We had a good giggle about how she would walk past me in the street and wave without me even noticing her.

it is not that I am ignoring or snubbing her, but if she is t speaking I wouldn’t be able to tell who it is.  And having spoken with total strangers before be chase they have waved at someone behind me!!  It is a situation I can relate to.

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