As you have probably worked out by now, receiving the news that you have an eye condition that will only get worse and could result in you loosing all of it in time wasn’t the best news!
when I was first diagnosed I researched my condition and looked for the positives…. Or ‘perks’ as I know refer to them. As silly as it sounds, I had to find some good out of this bad situation.
I received lots of help from my consultant, social worker and good friends. This was when I discovered just how many VIPs there actually are in Fareham and support groups to help… So I started volunteering, first at an active group called FAAB and was soon followed by volunteering for a local club that ran under the umbrella of the Hampshire based charity Open Sight.
Disability issues and sight loss became my world for a few years, I threw myself into volunteering and in an odd way helping others with their sight issues shelled me. but I began to feel that I needed to spend more time on myself and my family. I do still volunteer and enjoy helping out, just a little less than I did.
When I stopped helping others, I realised just how much my own sight condition did actually upset me, and this was when I fell apart.
This was when I started to really understand my sight loss and me……. To put this post into perspective…… Despite my registration being in 2008, this has only just happened for me!