Tag Archive for accessibility

Learning to forget to look…., Not ready for that yet!

Although I am registered as ‘blind’ I do have some sight, all be it distance vision that doesn’t even get me the top line on the eye chart and central vision with a peripheral of less than 10%, a figure that has recently reduced by 17%…. Feel free to do the math on that! To me it means just one thing

“my remaining sight is deteriating and quicker that I really would like”

Making the most of my remaining sight is key, and by actually using my eyes I am causing no harm, nor am I strengthening them. The deterioration of my retina is uncontrolled and unmapped.

So, by now you may feel confused by the title of this latest blog, well let me explain. As my sight has deteriorated, my eye’s and the period for which I can use them to concentrate on anything has reduced dramatically. In theory anyway, I say this, because I can still spend hours watching a really good film, of which without the aid of audio descript I miss a large percentage of it.

But for this I suffer.

As my eyes tire from the concentration, they in fact become dry, and difficult to close without seeing vivid flashing images on my eyelids.

As I said above, having missed a large percentage of a film, I now rely fully on Audio Descript and do not strain or even try to see what is actually happening on the screen. This has given me back my love of the cinema in recent months, so that is a bonus!

But there is one part of my life that I can’t stop over concentrating on and overworking my eyes, that is my phone, my laptop and my iPad. All of which have fabulous built in accessible software, after all Steve Jobs insisted that technology was assessable to all, not as an after thought, but as part of its design, hence why all my tech is Apple…. That and the fact that originally my training before my sight loss was in Design and if it was design, it HAD TO BE Apple.

Anywho, I digress. I have dragon and Siri that enable me to speak to my tech for it to then type my words. I have magnification, I even have voice over. And yes for you techno-phobes, it even works on touch screen. Even more so since the IOS 7 update!

But the thing is….

I have SOME vision and I can’t help but use it.

I can touch type and thankfully have been able to do this from a very young age (I think I was about 8) so I don’t have to look at the keyboard or technically the screen either, but I do like to proof read what I have written, especially when it comes to emails, letters and more recently college assignments.

It is a college assignment that has in fact lead me to write about this. You see, it is currently 4.15am on a Monday morning, having been working on my latest assignment that is due in at 9am THIS MORNING. I am now not able to sleep, even though it would be a really good idea if I could as I have a 4 hour lecture and a gym class later today too!

The question you are probably asking right now as you read that last paragraph, is what the….? Yes, I did leave this assignment a little later than others, but actually that isn’t the reason why I am up so late with it.

The REAL reason I was working on it so late, was because of my wish to see what I am doing and the light levels. You see even with the daylight lamp on, if it is too dark in the rest of the room, I struggle greatly to focus on all of my work, as the light level varies from that under the lamp to the rest of the room.

With the darker evenings (which in fact cause the darker days) I am able to sit down with a suitable light that illuminates the whole room at about 6pm.

This is slap bang in the middle of feeding time at my zoo, then comes baths, books and cuddles before bed for my 2 little monsters. So that 6pm soon becomes 8pm and I’m sure you can see where I am going from here?

I have tried and tested myself with this, so that I can understand what I can do without suffering and what I can’t achieve without the suffering.

The short answer is not much.

Once I hit 2.5 – 3 hours thats it, I can look at spending at least that again letting my eyes settle down. The good news is that if I extend that to 5 hours, that doesn’t increase the ‘down time’ that I need.

So, to save my sanity, especially in the winter months I need to start to stop looking.

But its hard, emotionally more than anything….. The reason is because, one day I wont ACTUALLY be able to see it, so while I can why shouldn’t I?

If your sight were or if your sight is deteriating would you want to stop seeing all the things you can see now knowing that in the future you will have no choice but not to see them?

This is a tricky argument that I have had with a few people, you see the one point I struggle with is that apart from the lack of sleep, I am not causing myself any harm, I am certainly not causing my eye’s damage.

This I have checked, double checked and yes, you got it TRIPLE CHECKED!!

It sounded so simple…. Then you put me in the mix!

As well as blogging I keep up to date with friends and family via my Facebook account, the other day after what had started out as a fun conversation I put myself on the line and admitted to having been forced to admit that I had a limitation.

Yes…. I hear you all say, everyone does.  But this limitation wasn’t even something I had ever considered before, or even wanted to do.  And in the grand scheme of life is very unimportant and changes nothing.  But I started to bother me.

I thought the easiest way for you to see what I am talking about is to copy the post in below, including the comments.  As to protect the identity of my friends I have re-written the post and named them F1, F2 etc, etc.

I would be interested to follow on this conversation further, so feel free to comment yourself underneath on here.

THE STATUS:    An honest conversation with a trusted friend has made me realise that with my sight, there are some things I just won’t ever do….. Some I can get around, fudge through in a different way with help & support.  But today the realisation that there is something I won’t ever do, silly thing is that its only a small thing too…. But feeling 🙁

 

ME:  And it wasn’t even anything I though would bother me, it’s the realisation of limitation not the thing I can’t do.  Even my stubborn streak won’t get me through this one.

F1:  You will get through it hun!  Been there – spend some time wallowing in self pity and then equally important pick yourself up and get on with what you CAN do!

ME:  I know-its the kids, home, college, work is all that matters, but it’t limitations of not being able to do something so very simple for others——-even a small child can do it!

F1:  Yep!  Let yourself spend some time feeling sad, don’t try and ignore it.  Have a bath, get in you pj’s and bring out the chocolate!

F2:  If you don’t mind me asking, what is it?

ME:  Its very silly and ridiculous…….. Juggling!!!    Having looked after Miss Key the other evening while Mst Key & Simon Key did a juggling with scouts.  Mst Key came back telling how great it was & how his dad could teach anyone to do it, it never interested me, bit it set the challenge & the thinking cogs working.  So had a good talk about it & the answer was NO… I need to be able to follow the movement, although I do have some vision.  I have no ability to judge distance or quick movement.

Its not the juggling that is the issue, its the fact that it points out a limitation.  For example, I am not allowed to drive a car (legally) & have a driving license.  But  I can physically drive a car, on private property with the right support.  I know how to do it & can do it.  Its a silly thing, but its these little bits for me that stand out as a limitation.  That having discussed the options of making it accessible isn’t there, if I wish I could play blind football, blind cricket, if I so desired, silly isn’t it?

F2:  I don’t see why you can’t try??  Think of how much fun it would be.  Just make sure you use soft balls so not to knock anyone out though! 🙂  Nothing is impossible, we place on ourselves our own limitations so if you say you can’t then you won’t, if you say to hell with it I am going to have a go…. then you have got nothing to lose and if you prove yourself right they you can say hell at least I tried!!

F3:  I think the thing is that you have to have a base to start with.  If you know that it is something that might be nearly impossible to do before you start, then if you still want to try then you don’t set your hopes up too high.  The bonus is that i you did achieve it then it would make it all the more special. let me have a think, I’m sure Mst Key is right.  He tells me enough that he is 🙂

F2:  Nearly impossible! See not impossible at all 🙂

F3:  just have to be realistic.  Thats all I’m saying, what the hell, I have been learning 5 for 6 years !!!!

F2:  There is being realistic though and shattering poor Theresa’s juggling dreams.  I anyone can you can Mr Key 🙂 xx

ME:  Oh dear, what have I started?  It’s not the juggling that is the point here.

F3:  Well it kind of is and isn’t.  I think the point is that you wont know what you can and can’t do till you try……

F2:  Excellent!  I look forward to hearing your juggling tales Theresa and Mr Key.

ME:  It’s got taken all out of context, I don’t really want to juggle.  I hate the word ‘Can’t’ I know what you meant when you explained it, no it’s not impossible, bit it just highlights the fact that I can’t just grab a set of balls & get going.  You said yourself that you need to think about how!  It’s something highly skilled when you get to your level, but at the same time it’s very basic and simple at the start point.  And I can’t just get on and have a go.  This sees me start thinking & analysing other things I can do or can’t do & the spiral starts & thats why it was never about the actually juggling… Hence why I never put it in the start of this post!  I appreciate the support & kind words from you all.  I’m not as has been suggested (by pm) fishing for sympathy or compliments on what I can do or try.  I wrote this because it was how I was feeling & at that very same moment on looking at Facebook it just felt right to put into words, stop it just being in my head & driving me even more crazy!

F3:  Nope no taking it back now lol.

F2:  Nope, you can’t back out now.  Learn to juggle woman then you can pass your juggling wisdom to me 🙂

_____________________________________________________________

It makes for this being a rather long blog, but I hope it gives you an idea of my thoughts.  Juggling isn’t the issue for me, its not even something like I said earlier that is of great interest.  It merely highlights that for me to do some things, I need to set myself up in a very different way than others.  Have to alter the way in which I do things.  My friends were being helpful with their comments, I am always open to constructive criticism.

I grew up not seeing myself differently to others, but now I do…… I feel so very different.

And this is the point.

Child’s Play

Today while at a friends house, their son was happily, quietly playing with Lego to make a old world village, I asked him if he would mind if I could build something with him.

He kindly asked if I needed him to help me as the parts where quite small and I may not see them, then he quickly told me that with Lego I didn’t need to see it, as I could just count the bumps on the top to feel how big and what shape the pieces are.

He then suggested that I built a church for his village. I asked him about the colours of the Lego as with them being so small I couldn’t see them and I was worried that it would be funny colours.

To which he simply answered ‘It doesn’t matter about the colours that’s the fun of Lego, the whole village can be all different colours and it doesn’t matter’

This bought back huge childhood memories for me, as a child me and my sister had built a huge pirate ship, it was built with whatever bricks we could find and was a giant rainbow.

Sometimes I think that as adults we aim for perfection too often, well I do anyway. Where as with kids it’s the fun of building and the game, not what you end up with in the end.

And also that as a grown woman I am never too old to sit down with a box of Lego and just build, sight or no sight as it is one of the first and still the most tactile toy available!!!

Another ending

My condition is such that it often alters very little over time, so on a daily basis I may not notice any difference from the day or week before.  But when I go to do something that I did some time ago, that it when I notice it.

This recognition that something has changed, often hits me like a smack in the mouth!

When I started working for my employer in 2011 I had been using my home computer and work computer on a much lower level.  By this I mean that in my previous role my work was split up between dealing with clients, the computer and general office work.

The new position was all computer based and telephone connection with clients.  No more face to face contact.  Isolating yes, but this meant that I could work from home in the evenings after the homework was done.

Working from full spreadsheets I started to notice problems, through a scheme ran by the government called ‘access to work’ I was able to apply for a grant for adaptions to my computer, this included zoom text software to magnify the screen and allow me to move around the page with ease, this worked well.

But like all companies, the software and processes that they used changed.  I moved from a spreadsheet to an up to the minute online calling system, all the information was there in front of me, the computer also did an automatic dial to the client.

The new system was a struggle.

 

I work very well with order and sequence, with the new system this wasn’t always the case depending on the needs of the client.  This was not a design fault of the system the company used.  It was an issue I had due to my sight loss.  The programme was very simplistic and easy to use, were you able to see it all on one screen, which with the magnification, I couldn’t.

Work were more than happy to offer support and to aid me with my work I was able to work at a reduced rate without financially missing out while I went through a transition phase working with the new system.

It was in this period that I began to struggle personally with my sight loss and its implications, as a person who has a very strong work ethic I felt that I was letting myself and the company down.

It took months to actually admit this, during which time I struggled on.  It was at my breaking point in June 2012 that I admitted my struggles to my doctor, who was very kind, understanding and started to work with me to get the help and support that I required.

I also contacted my employers accessibility team and explained my issues, they made an assessment and felt that moving away from magnification and moving to a screen reading technology would be better for me.  So back to ATW I went with my report and all of my needs, including a brailliant (a computerised braille reader) I was able to start on the road to doing my job in a different, new and exciting way.

In theory anyway……..

Because of the way in which screen readers read a page on the computer and the layout of the software used, the two were not compatible.  An issue that was not of great concern for me as I was to move back to working with the spreadsheets, a preference of mine.  They included more data so that I was not disadvantaged over my colleagues.

But I broke.

I have been using a Mac for a long time and using the built in accessibility and with the help of my voice Lily, I have got on very well with it when I have needed it.

Having some useable sight I struggled to let go of that completely and with that I developed an eye strain that had a great affect on my levels of concentration for which I need to take eye drops on almost an hourly basis if I am using the computer or even watching tv or a film.

In October I took the step to visit my doctor again and explain these issues, she felt that it was important for me to understand my depression and how to deal with this and in turn my altering eye condition.  So she made an alteration to medications and put me forward for counselling.  Oh, and she signed me ‘unfit to work’

Having undertaken many changes in my life, some positive, some not so  I attended a final stage sickness review with my employer, and on Monday my contract with them was terminated on medical grounds.

I had always hoped to return to work, but this position was one, that even with assistive technology and support I would not be capable of, not through lack of knowledge or an imcompetance, just through circumstance.

This I think is a decision and understanding I had come to by myself long before the meeting, after all to get to stage three, I had been through stages 1 and 2, an in-depth report from my own doctor and an independent medical assessment.

It is heartbreaking to say goodbye to this job, today was the final ending as my ,ine manager collected all 6 boxes of computers, technologies and the hub that they had installed on the start of my employment.

This equipment has been boxed up for a few months to save it from the kids and dust, but the space it has left caused a tear or two.

I see this a defeat, I HATE to fail, to let people down.  To let myself down.  It is always hard for anyone to walk away from something when it is not working.  But hopefully this is one stress crossed of the list and will enable me to move forward.

Wish me luck.

 

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