Tag Archive for blurred vision

Waving Away!

I thought as it’s been a while; so I felt compelled to share my latest ‘blind fail’ with you all … It’s a good one!

Despite not having my guide dog I have pushed myself each day to enjoy at least one long walk. Some days this is in the countryside or along the beach, but more often than not it’s around my local area.

On this particular walk I was walking on a road I know very well. I was approaching the junction of a side road and preparing to cross.

As I approached the junction I heard a car engine to my left.

The sun was bright, but I could make out a bright blue car on the left directly opposite the junction, so assumed it was also the engine I could hear:

As a guide dog owner, old habits die hard and I waved the car on: this is partly because the sound of the engine could be masking the sound of other approaching traffic or even bicycles.

I waved the car on … Nothing.

I waved it on again … Still nothing.

At this point a man appeared to be speaking to me from the other side of the road.

“Wait there I am coming to you.”

He crossed over and stood beside me, he asked me what help I needed and I explained I was simply waiting for this car to move on and then I would cross:

It was at this point (with a smile on his voice) he explained that there was no car waiting to turn.

The blue car was actually parked and had nobody inside it.

The car engine I could hear was on a driveway, the car had its doors and bonnet open, so was not moving anytime soon.

So it was safe for me to cross.  And it had been for some time!

The kind man explained he was loading a van up the street and had seen me waving my arm; but he couldn’t get to me any sooner as his arms had been full.

I laughed when he explained it all, because it’s moments like this that if I didn’t laugh I could easily cry.

I made my apologies and rushed off as quickly as I could without breaking into an actual run!

When relaying this embarrassing story to a sighted friend they helpfully pointed out…

Rule 243 of the Highway Code states you must not park opposite or within 10 metres (32 feet) of a junction, except in an authorised parking space.”

This didn’t make me feel any less embarrassed,  however one bonus to tthis sight loss journey is that I would never recognise the kind man who came to my aid, if I saw him again. So that’s a small mercy, right?

Remembering the day everything changed; yet stayed the same

Thirteen years is a long time:  It’s also an incredible measure.  

On this day 13 years ago I left my Consultants office feeling that my life was over; all because in that 45 minute appointment where I entered expecting to discuss a double cataract operation to DRAMATICALLY IMPROVE my sight I actually found myself leaving with my CVI (Certificate of Visual Impairment) and being told that my sight was already bad enough for me to be registered Severely Sight Impaired. (previously classed as BLIND)

And in the grand scheme of things, the risks of cataract surgery because of my eye movement (Nystagmus) would not offer me any significant benefit.

This day 13 years ago, nothing significantly or physically had changed with my sight.  The deterioration had been there all of my life, but it had been so gradual and undetectable by my optician that even though Doctors predicted that I would go blind as a child; because this hadn’t come to fruition at the age of 10/11 I had been discharged from the hospital.

And only after a chance conversation with my optician about how long it took my eyes to adjust from outside to inside has found me back seeing the consultant at the local eye hospital for the first time since I was about 12!

This day 13 years ago was actually the beginning of so many good things.  

However that wasn’t before I went through some incredibly dark times (mentally) and still do to this day.

I am so very grateful to those who have walked beside me in the last 13 years.  

As well as those who have walked away.  

Because for someone who now no longer makes out even that GIANT single letter on the eye chart or anything that is not within the 3% of my remaining central vision; the way my life has changed in those 13 years has enabled me to see many situation incredibly clearly. (Pun intended)

So with a smile, a positive outlook and an AMAZING group of cheerleaders behind me.  I am the girl I am today because of the pain I faced ON THIS DAY 13 years ago.

My sight has deteriorated dramatically from that appointment 13 years ago, but my character, my inner strength and my stubbornness have got me this far. And I have no doubt they will get me through the next 13+ years.

Part of life just got A LOT simpler !!!

The role of the designer is that of a good, thoughtful host anticipating the needs of his guests.

Charles Eames

I first read this while studying at university 21 years ago; in this previous life before my severely sight impaired diagnosis and even a half decent understand of how terrible my vision was, this quote spoke to me.

Along with a book called ‘The Design of Everyday Things’ by Don Norman that was yellow with a red coffee pot that had the handle and the spout on the same side have always stuck with me.

Why am I telling you this?

Well, just as I have previously written about how Steve Jobs had a vision for Apple that put accessibility at its very core, instead of an after thought. Being mindful at the design stage can change the experiences of the end user.

Apple isn’t the only company or product to do this. My Breville ‘One Cup‘ is another example as are the scales I received today.

As an independent Herbalife Distributor who allowed lockdown to take control, I gained far too much weight, teamed with not climbing or swimming and well you can imagine where I found myself at the beginning of the year?

I have for the past 5 years started my day with a Herbalife Nutrition shake along with a whizzy, fat burning tea. However throughout lockdown my healthy, good nutrition would start and end with breakfast!

The products are good, however they are not magical.

So, fast forward (or is it rewind?) to January this year; January when I turned 40! When a friend shared a photo of me sat at their dining-room table and I realised how much I had let myself go. Yes I could feel my clothes were tight, uncomfortable and I was certainly not happy, however as someone who can’t see the reflection in the mirror; I was in denial.

I looked at that photo over and over again. I felt embarrassed, mortified and realised that I needed to make some changes.

I had all the tools I needed, the products in my kitchen cupboards and a wealth of knowledge. I had to start treating myself like I was a client, a client in Herbalife was something I hadn’t had in a while; (after all who is going to take weight loss advice from a fat person?)

So I (Re-) started my journey, went back to basics, a simple 1, 2, 3 approach and along with a new model; I found my focus.

There was just one part of the process that was VERY difficult.

Each morning, after I woke and popped to the bathroom I would stand on my bathroom scales.

My scales are a little more detailed than your average scales, they were in-fact Tanita Scanners. In addition to my weight I would get a whole host of other information, most importantly my body hydration and body fat percentages.

These scanners are programmable, with memory. All I had to do was switch them on, wait for them to beep and stand on. They would record all the measurements and then beep several times to say I could step off.

All my measurements were saved so I could grab my phone and take a photo of each measurement to zoom in on and record in a little challenge group I am in.

These scanners were a game changer for me as long gone were the days when I could when see my feet when stood upright, let alone the neon green scales beneath them, all before even trying to make out that in the middle was a digital display.

However, in the last 3 or 4 weeks my sight has changed (there’s another blog coming about that) it was taking more concentration to read from the photos.

I needed another solution.

I didn’t even look at talking bathroom scales. I didn’t research ANY accessible, visually impaired products. Instead I focussed my research on scanners like those I had that I could use with an app.

My reasoning for this?

If the scanners relayed all the data into an app, I could use zoom on my phone to read that data.

Today my Kamtron scanners arrived. I chose these based on the ‘Fitdays’ app which looked the simplest on the App Store. They were also significantly cheaper than the Bluetooth enabled Tanitas that appeared (on paper) to do the same thing.

They connect via Bluetooth to the app. All I have to do is touch the button on the back of the scanners, wait for the beep and step on, a little sound emanates from my phone when the data is recorded and off I step.

Then by using the ‘read screen’ toggle on my iPhone all the details are read out to me, no taking photos, no screenshots to then have to zoom in on. And more importantly no masses of screenshot photos taking up space on my phone or iCloud!

So simple…

Good products designed well can easily help and support those who may have additional or altered needs.

It may just be a ‘happy coincidence’ that this product is so accessible? It may have been part of the design brief? Sadly I will never know which, I will simply refer back to my original quote.

The role of the designer is that of a good, thoughtful host anticipating the needs of his guests.

Charles Eames

FOOTNOTE: In writing this post I am simply sharing a product I found that works for me, I am not in anyway endorsing Kamtron Scales or The Fitdays app. Just as I have previously spoken about other products and apps.

Dogs just wanna to have fun!

It is true to say that many people only think of guide dogs as well trained, hard working dogs. This is of-course true; however there is also the puppy that comes out to play when the harness is removed.

As part of fizz’s work she, like us humans needs to have her down time; her run around with other dogs and possibly much more importantly that time where she can stick her nose to the ground and have a good sniff and as my son calls it ‘check her Pee-Mail’s’ which she doesn’t do when in harness.

This weekend was proof that she has plenty of time to explore and have no responsibility.

This weekend we met up with her dog friend Dave, we walked in fields, beaches and along the canal. She got to sniff, roll, swim and run.

She certainly did not act like a 10 year old guide dog, she certainly covered double if not more than the 8 miles I walked.

She met other dogs, soaked in expecting passers-by and even enjoyed a sneaky empty ice-cream cone.

A new friend we were with commented “I thought guide dogs were always working and well behaved?”

Nope and Nope!

She wasn’t naughty, she was just ‘being a dog’

So, it’s not all work and actually when she has had a really good run it can actually improve her work.

It’s all about having a good work-life balance.

London sans guide dog.

I am just heading home after an amazing evening at the theatre.

With my dear friend as my sighted guide I left my leading lady Fizz with a friend for a doggy-sleep-over. 

With work commitments it was literally up to London for the show and home again, not really ideal given the wintery weather. Also I would not be alone until on my own home territory; Fizz deserves to be able to put her paws up and relax.

There are few positives about me going out with my cane against going out with Fizz, however one of the biggest makes me act a bit like a kid in a sweatshop, which would be …………….. Travelling on escalators!!

No need to hunt for the stairs, or find the lift. I can literally get swept along with the crowd at London Victoria and (remembering to stand on the right hand side) travel up and down the series of moving stairs.

No walking out of the station; into the rain to find the obscurely placed lift that has only been an addition in recent years.

My friend was born and brought up in London, so she was a brilliant guide. However, London theatre district on a Friday evening is not a place for the faint hearted!

And I would be lying if I said I didn’t make the odd ‘deliberate’ cane tap with Mr and Mrs Arrogant. (Fellow long cane users will know where I am coming from on this)

However we both survived.

We enjoyed the comedy.

I succeeded in making my friend laugh with my ability to act as if I were Moses, parting the oncoming crowds as if they were the sea.

And all while not having to think of where the nearest patch of grass or earth around a tree was.

It isn’t often I would venture into the capital without my guiding girl Fizz, but given the times of the travel, not leaving London until just before midnight it was much more important to ensure Fizz’s needs were met….. While pleasing another of my friends as Fizz went to hers for a sleepover and a play date with her pet dog.

Changing Perceptions

I am in the midst of working on my 2020 challenge, but in a bid to let Fizz work and for me to get a change of scenery we popped into town.

But not before I packed a book I am reading at the moment. An actual hard covered book with pages as not all books are produced equal and come with an audio version.

There was nothing to tempt me in the sales, so off to Caffè Nero we headed. (Other coffee shops are available)

Coffee ordered, seat located and Fizz happily hoovering crumbs; I reached for my book. Realising that in my eagerness to get out I had forgotten to pack my magnifier. No problem though, I could always just use the magnifier on my phone.

My book is fascinating, but all the will in the world I can’t hold it, my phone and my coffee cup all at the same time. So I pop my book and phone down to enjoy some coffee and give my eyes a brief break.

When I hear

“Dad, I didn’t realise blind people could read?”

From a young girl and as the saying goes ‘out of the mouths of babes’ I was not expecting to hear what came next.

In fact it was such a shock I actually found myself fighting back tears. But not in the way you may think.

“Blind people can do ANYTHING, they just have to tweak how a little. That lady is using her phone to magnify the words so they are big enough for her to read, it’s not the reading that’s the issue, it is just the seeing bit.”

His reply to his daughter was perfect. All too often parents and adults shush children when they comment on someone or something that is different. But in my experience it is simply because they do not know or understand, so rightfully they have questions. And they aren’t saying it to be embarrassing or rude.

I personally am happy to answer questions, especially from children as they are raw and genuine.

Yet on this occasion I don’t think I could have added anything to what the dad said; which was just as well because his explanation brought a tear to my eye and a lump in my throat.

Myth Bust: Blind Girls (and guys) Can Wear Contact Lenses

Just as someone who is severely sight impaired (blind) can and does often wear glasses; they are also able to (sometimes) wear contact lenses.

And why ?

For the same reason anyone else would wear contact lenses…. And for me, wearing contact lenses enables me to wear non-prescription sunglasses; among other reasons. (Vanity induced)

Until I wrote this post, it is part of me that very few know about.

Having had hard contact lenses when my sight was much more complicated as a teenager I did not get on with them.

Yet now with my simpler prescription I have been introduced to the world of soft monthly disposable lenses and for the past month or so I have been trialling them and find them so comfortable and easy to use and wear.

I thought I would write this post because earlier this week I was asked to ‘prove’ that I wore them. (By someone of authority-not just a random stranger)

This found me standing in the middle of a very busy London area, cleaning my hands, then moving and removing one of my lenses.

Which was followed by apologies and a long conversation about assumptions !! (And me getting a little bit told off for being ‘sarcastic’ )

My visual field is now at less than 3% and even with the best lenses I still can’t make out the top line of the eye chart, yet I still wish to make the most of my remaining vision and as I have found the days getting brighter (another part of my sight issue) I find contact lenses with wrap around (non-prescription) sunglasses help me with this.

I guess the point I am trying to make here is that it is the assumptions of others and people’s need for ‘proof’ of disability that needs to change; which is only going to happen by people asking questions (something most adults aren’t good at) and by people having conversations.

Those who know me, know I will happily have these conversations over and over again…. But I am just one person.

Myth Bust: This blind girl CAN shop!

Today I had a very rough encounter with a shop assistant. A very quizzical, judgemental encounter….. But rather than be negative, this got me thinking; unless you have a visual impairment or live within close proximity to someone who does, this may be a common misconception that anyone of my readers may also hold.

So here in a series of blogs I am going to look at busting some myths and misconceptions. Now as my blog is all about me (selfish I know!) what I write here works for me and is my point of view. Sight loss has a MAHOOSIVE variant in the many that it affects, so what works for me may not work for another. After all VIs (Visually Impaired) are unique Human beings with their own individual characteristics.

I personally love to shop! Muse through rails of clothes, feeling the different texture. I find some shops easier than others, I also have my staple ‘go to’ shops for my essentials.

When I trained with my guide dog (both of them) it was explained to me about how a dog works in certain environments. How a dog works in a supermarket for example is different to how they work in a clothes shop. And most of this is down to how we as humans move around in said shops.

Mostly because of how the shops themselves lay out their stock. A supermarket is quite regimented, with aisles and shelving. Where as clothes shops work with rails, displays and a more ‘hap-hazard’ movable approach.

So, when in a clothes shop I do not ‘work’ my guide dog Fizz. By this I mean I do not hold her harness handle and ask her to guide me around….. Manly because we wouldn’t get past the first row of clothes as the space between rails isn’t wide enough for Fizz to work properly!

So once inside a clothes store I will simply hold her lead, I will keep her on my left hand side and I will use my right hand to feel my way around the store, feeling out mostly for the ends of rails that could cause me issues if I bump them.

The stores I frequent regularly are used to me and Fizz, they even know that at times she will just lay down if I am spending too long looking at a section! After all she is a dog; she has no need or interest in clothes!

But when we go into a different shop (which doesn’t happen often) the other shoppers (as today) and the staff appear amazed by it.

Today’s encounter saw me being asked to leave. And this was because the store assistant believed that I was not VI and that my guide dog was just a pet. (Despite her harness and all her ‘uniform’ stating she is just that)

The store assistant had watched me move around, touching the clothes, but that my dog was just walking behind me. I did explain the main reason for this was because the space between the clothes was only just big enough for me to walk in, let alone Fizz to walk beside me.

I explained how I am trained with Fizz and how dropping harness means she doesn’t have to be responsible for trying to navigate in such an unnavigable space. To which the store assistant became very interested and was then asking questions out of interest not judgement.

Another point to make is that clothes shopping isn’t a rushed affair (not for me anyway) So I take my time, I can focus using what little sight I have left on navigating my way around. It’s not ideal and at times it doesn’t always work. But it is making the best of the situation.

For me, I prefer to shop alone for clothes, not be rushed or concerned with someone else getting bored or fed up with me. So this is how I work around it. It’s a quirk and it is following my guide dog training; which means I can’t be the only person who does this.

After all VIs shop, VIs go out alone and VIs above all else, have their own minds.

Personally I would not consider going clothes shopping using my long cane. As most clothes are hung on rails a cane could alert me to the floor being clear, but won’t alert me to the tops hanging from a rail (if the lighting isn’t right for me to see) And for this reason I do understand why some VIs prefer to shop with others.

So, I hope you have enjoyed this Mythe bust? Feel free to comment below on this subject or other myths you may have questions about.

Discovering just how independent I can be

This post is probably the wrong way around.  But for me it seems only right that I write this bit first……

Today I am heading home after an amazing week away with my Guiding Girl Fizz.

Today I am realising that although this journey wasn’t the one I had originally planned for, it was the journey I needed to take.

And as much as I almost found myself not taking it …. I am grateful to my own stubborn nature and my ability to plan and organise.

And the fact that I would always have wondered ‘what if?’ Had I not at least tried.

So, try I did and I am so very grateful that I did.

 

…… TO BE CONTINUED

GETTING MY GEEK ON in Glasgow

Photograph of my gold Starbucks travel mug with the guide book to The Glasgow Science Centre with the SEC Armadillo building behind across the river Clyde.

Continued from … Welcome to Glasgow

After a relaxed evening in the hotel which included a Tai Chi class, a swim and a sauna before a gorgeous dinner, on Wednesday morninf I decided to visit The Glasgow Science Centre before embarking on another train journey deeper into Scotland (you’ll have to read on to find out where)

The Science Centre and adjoining iMax cinema were architecturally interesting buildings even before I walked through the doors.

 

Photograph shows a round ball like building on the left which is Glasgow IMAX with a large screen on the right of the photograph, with a small green area in front of it

Photograph is taken of the rear of the IMAX building where Starbucks sits amongst a glass wall sat beside part of an old dock areaPhotograph of the entrance to The Glasgow Science Museum, shoring what looks like the top half of a letter C shaped building, the glass front of the building sat to the right of the large screen

These building were custom built for purpose and opened to the public in June 2001, with a titanium clad exterior the Science Centre (science mall) with its crescent shaped glazing enables it along with the neighbouring imax to ‘blend in’ with the often grey overcast skies of Glasgow while offering a reflection from the river Clyde.

Set over three floors and including a planetarium and many interactive work station I could understand how it had gained its reputation and place on trip advisor as a ‘MUST SEE’ even though it was a pay for attraction (which many museums are not)

I fell in love with each and every floor.

Although I struggled with a few small issues (like no large print or alternative format maps or voice information on the lifts) I did find a very helpful member of staff who explained the floor levels to me and even explained where the stairs were as they were tucked away as the main traffic was directed towards the large lifts.

One perminant exhibit that I was interested in was ‘A Question of Perception’ that looked at optical illusions, the science behind it and how the human brain helps with this.  In addition to the illusions, I watched the cctv monitors for the centres own ‘wacky salon’ (you can find a video for this on YouTube, but as it is not accessible I have decided against sharing it here)

With interactive exhibitions across the whole centre, including a wonderful planetarium I enjoyed a good couple of hours here and took hundreds of photographs of the different exhibits, of which I will share just one with you.  This is of the ‘perfect triangle’ which from the angle of my photograph looks far from perfect.

Photograph of tabary - A mind blowing sculpture of a three part solid triangle, which is in fact an optical illusion and it is only when you get to within 2 foot of it that you see the sculpture is actulay 3 separate solid four sided rectangular, not actually a triangle at all.

However, too soon it was time for me to go, popping back to the hotel to collect my bags and head off for another train journey.

A train journey that saw me travelling from Exhibition Road to Glasgow Central, to hop on the shuttle bus to Glasgow Queen Street before boarding a train to Perth, where I would then change again (after a quick ‘wee stop’ for Fizz) to travel onto Pitlochry.

A place that could not be further from the hustle and bustle of Glasgow, with a population of just over 2,500 in comparison Glasgows 500,000….. It was a place I really couldn’t wait to escape to.

To be continued…….

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