Tag Archive for independence

Part of life just got A LOT simpler !!!

The role of the designer is that of a good, thoughtful host anticipating the needs of his guests.

Charles Eames

I first read this while studying at university 21 years ago; in this previous life before my severely sight impaired diagnosis and even a half decent understand of how terrible my vision was, this quote spoke to me.

Along with a book called ‘The Design of Everyday Things’ by Don Norman that was yellow with a red coffee pot that had the handle and the spout on the same side have always stuck with me.

Why am I telling you this?

Well, just as I have previously written about how Steve Jobs had a vision for Apple that put accessibility at its very core, instead of an after thought. Being mindful at the design stage can change the experiences of the end user.

Apple isn’t the only company or product to do this. My Breville ‘One Cup‘ is another example as are the scales I received today.

As an independent Herbalife Distributor who allowed lockdown to take control, I gained far too much weight, teamed with not climbing or swimming and well you can imagine where I found myself at the beginning of the year?

I have for the past 5 years started my day with a Herbalife Nutrition shake along with a whizzy, fat burning tea. However throughout lockdown my healthy, good nutrition would start and end with breakfast!

The products are good, however they are not magical.

So, fast forward (or is it rewind?) to January this year; January when I turned 40! When a friend shared a photo of me sat at their dining-room table and I realised how much I had let myself go. Yes I could feel my clothes were tight, uncomfortable and I was certainly not happy, however as someone who can’t see the reflection in the mirror; I was in denial.

I looked at that photo over and over again. I felt embarrassed, mortified and realised that I needed to make some changes.

I had all the tools I needed, the products in my kitchen cupboards and a wealth of knowledge. I had to start treating myself like I was a client, a client in Herbalife was something I hadn’t had in a while; (after all who is going to take weight loss advice from a fat person?)

So I (Re-) started my journey, went back to basics, a simple 1, 2, 3 approach and along with a new model; I found my focus.

There was just one part of the process that was VERY difficult.

Each morning, after I woke and popped to the bathroom I would stand on my bathroom scales.

My scales are a little more detailed than your average scales, they were in-fact Tanita Scanners. In addition to my weight I would get a whole host of other information, most importantly my body hydration and body fat percentages.

These scanners are programmable, with memory. All I had to do was switch them on, wait for them to beep and stand on. They would record all the measurements and then beep several times to say I could step off.

All my measurements were saved so I could grab my phone and take a photo of each measurement to zoom in on and record in a little challenge group I am in.

These scanners were a game changer for me as long gone were the days when I could when see my feet when stood upright, let alone the neon green scales beneath them, all before even trying to make out that in the middle was a digital display.

However, in the last 3 or 4 weeks my sight has changed (there’s another blog coming about that) it was taking more concentration to read from the photos.

I needed another solution.

I didn’t even look at talking bathroom scales. I didn’t research ANY accessible, visually impaired products. Instead I focussed my research on scanners like those I had that I could use with an app.

My reasoning for this?

If the scanners relayed all the data into an app, I could use zoom on my phone to read that data.

Today my Kamtron scanners arrived. I chose these based on the ‘Fitdays’ app which looked the simplest on the App Store. They were also significantly cheaper than the Bluetooth enabled Tanitas that appeared (on paper) to do the same thing.

They connect via Bluetooth to the app. All I have to do is touch the button on the back of the scanners, wait for the beep and step on, a little sound emanates from my phone when the data is recorded and off I step.

Then by using the ‘read screen’ toggle on my iPhone all the details are read out to me, no taking photos, no screenshots to then have to zoom in on. And more importantly no masses of screenshot photos taking up space on my phone or iCloud!

So simple…

Good products designed well can easily help and support those who may have additional or altered needs.

It may just be a ‘happy coincidence’ that this product is so accessible? It may have been part of the design brief? Sadly I will never know which, I will simply refer back to my original quote.

The role of the designer is that of a good, thoughtful host anticipating the needs of his guests.

Charles Eames

FOOTNOTE: In writing this post I am simply sharing a product I found that works for me, I am not in anyway endorsing Kamtron Scales or The Fitdays app. Just as I have previously spoken about other products and apps.

Dogs just wanna to have fun!

It is true to say that many people only think of guide dogs as well trained, hard working dogs. This is of-course true; however there is also the puppy that comes out to play when the harness is removed.

As part of fizz’s work she, like us humans needs to have her down time; her run around with other dogs and possibly much more importantly that time where she can stick her nose to the ground and have a good sniff and as my son calls it ‘check her Pee-Mail’s’ which she doesn’t do when in harness.

This weekend was proof that she has plenty of time to explore and have no responsibility.

This weekend we met up with her dog friend Dave, we walked in fields, beaches and along the canal. She got to sniff, roll, swim and run.

She certainly did not act like a 10 year old guide dog, she certainly covered double if not more than the 8 miles I walked.

She met other dogs, soaked in expecting passers-by and even enjoyed a sneaky empty ice-cream cone.

A new friend we were with commented “I thought guide dogs were always working and well behaved?”

Nope and Nope!

She wasn’t naughty, she was just ‘being a dog’

So, it’s not all work and actually when she has had a really good run it can actually improve her work.

It’s all about having a good work-life balance.

How do the blind, date?

Since locking down in March 2020 because of the global pandemic, I like many have done a little evaluating of my life.

I am headstrong, (stubborn) fiercely independent and actually enjoy my time by myself. However I have those times when I don’t want to do it all alone.

Dating for anyone can be a minefield, its all about an online presence; dating apps and even Facebook have got in on it. After all it is a multi-million pound industry in the U.K alone. It is where swiping left or right appears to be the way you decide. Then there are time wasters. Those are often only after one thing. Thankfully within a message or two these become obvious. Even me as a blind gal is now getting the hang of spotting them!

It appears even for those who have perfect vision, the days of locking eyes across a crowded room are gone. You can now even do online speed dating, where you don’t even have to get out of your chair; or worry about having garlic breathe.

The route I decided to take was semi-old fashioned. I got chatting online to a guy who was in a group on Facebook for mutual interests. We spoke virtually and then over the phone before actually meeting in person.

Those of you who have followed my blog for some time or who are connected with me on Facebook will know I post regular updates, posts and photos of my adventures. I am very much real. Many people have met me in real life, I have also gone through a very thorough evaluation to get my sight diagnosis, DWP disability benefits and my guide dogs.

Which has probably just given you a heads up to the direction that this date took…

I chose the venue, one I would feel comfortable in and also, if things went well we could enjoy a walk along the beach after. I arrived a little early, however was pleased to realise he was already at the bar.

We had spoken about my guide dog, he had asked questions about my sight and we had become Facebook friends, so he could see for himself. He was a gentleman and got our drinks before we sat down at a quiet end of the bar.

This was when things went very quickly south. (to put it politely)

My guide dog Fizz only made the briefest of hellos before laying down. She didn’t even wait for me to take off her harness before she settled. And following a recent conversation with a friend about dating and dogs intuition this should have been enough for me to stand up and leave; I however thought she may be sulking because we were so near the beach and she hadn’t been in the water.

Not taking off her harness did have its benefits though.

It would appear; despite several online conversations, telephone calls, facetime calls and my general online presence being true to myself, about my ‘blind fails’ and life with my guide dog; he was a little surprised when I actually walked in with my leading lady.

Obviously, writing this type of blog isn’t easy for me and there have been many re-writes; however I feel it is important to share this with you, as it may just stand as educational to some on how words can actually hurt more than sticks and stones. (as the childhood rhyme goes)

I am independent, I (partly) live my life to prove to myself that I can; that I am not solely defined by my disability and to help my children understand that life is to be lived, not purely existed. I will not apologise for that.

Wearing my sunglasses (being summer isn’t that what most people do?) and having a guide dog beside me apparently made my blindness too obvious! (so it began)

“You appear so outgoing and fabulous with the climbing, cycling (on a tandem) and solo adventures, but seriously how can you do any of it LIKE THAT?”

Was not a question I expected to be asked. And I think I managed to croak out “Pardon” before taking a rather large gulp of my drink.

“Well, I mean a real blind person couldn’t do any of that.”

At this point I finished my almost full pint, stood up, took Fizz’s harness and walked out.

I was about ten paces outside the pub when I heard an “excuse me miss” I turned around to be greeted by the barman. He had seen me finish my drink quickly and my sharp exit. He wanted to double check I was safe and if I needed any assistance. He told me that the man I was with had made no move to follow me and asked if I wanted him to walk me back into the pub by another door. I explained I was alright, just foolish and thanked him for his concern.

And then I reached out and spoke with a dear friend. She reminded me it was best to get this sort of rubbish out of the way quickly and that I didn’t need to waste anymore time on it.

I, like many with any disability have faced my fair share of people not understanding. I have been quizzed by strangers when I have used my phone or picked out my own shopping. I have also had people I believed to be close to me not understand.

Sight loss is a spectrum, it varies greatly and is not as simple as sighted or blind. Just as some who use a wheelchair can also walk, some registered blind (severely sight impaired) have some usable vision.

In all honesty, walking with a guide dog gives me a greater confidence than when I walk with my cane, she is a literal extension of my left arm that makes moving around appear effortless; even in a busy pub.

I have not yet undertaken a truly solo adventure, as I have always had my guide dogs with me, just as when I cycle I have a pilot on my tandem (I think riding it alone would look a little concerning!) and in the very same way that when I climb I also have a partner. I do much of ‘life’ with what I call blind hacks and tweaks. And as I have said before; I wont apologise for that.

This is one of those ‘chalk up to experience and move on’ moments.

It was not said as a compliment. Or as an admiration.

There has been no further contact and nobody has been blocked.

For now I am thinking of going ‘old-school as regards dating. I will hold out for that ‘eyes locking across a crowded room’ moment.

Oh wait…

Sunglasses after sunset…

Spring is in full flow; with frosty mornings and the lighter evenings it is as if there are more hours in the day; or rather it is the illusion that more daylight creates. It is wonderful for lifting the mood after what felt like an even longer than usual winter considering much of it was spent in lockdown or local restrictions because of the continuing covid pandemic.

Spring and summer evenings extend the opportunity for me to get out for a walk. Recently I have deliberately headed out as the sun has begin to set to experience the lowering light levels; ensuring I am home before it actually gets dark as this is when my sight changes dramatically.

Part of my sight condition is ‘night blindness’ which for me means that any lights that are on are glaring and sometimes even painful to look at. While the light they cast is actually totally lost on me as I would be lucky to see my own hand in front of my face. It is a time when Fizz really has to work; which over the years together she has learnt to do. She will even pause on the step up a curb when its dark as apposed to daylight when she will just step straight up. (which has on more recent occasions seen me trip) yet in the dark, she does this without being asked.

Today, due to circumstance I found myself heading out for our evening walk AFTER the sun had gone down, it wasn’t really dark, but dark enough for the street lights to be on. Having been a beautifully sunny day I found myself with my sunglasses sat on the top of my head; so took the opportunity to test something out.

I have previously sat in a friends car (when we could do that sort of thing) and put my sunglasses on to help reduce the ‘dazzle’ I was getting from oncoming cars when it was dark, although I was sat still and didn’t need to actually concentrate on my surroundings. Tonight however was different, I was walking with Fizz, all be it on a route we both know well. It may sound silly, but I felt nervous, anxious even.

But it was just a pair of sunglasses, I could always take them off again, only (other than to capture this photo) I didn’t. The reduction in ‘dazzle’ from oncoming cars was AMAZING and it wasn’t just cars that I found it worked with; the reduction in glare from the street lights was also really good.

Photograph taken looking through sunglasses, to show the lighter sky and street light outside the sunglasses, with a darker tint and glare reduction though the sunglasses

The reduction in what I could see was affected, however only in the way that I had lost the shadow definition, however with Fizz guiding me I felt comfortable with it all. Fizz quickly picked up that I was being more vocal with my commands and as we walked further she adjusted to the change in light levels too.

So, from now on it will be sunglasses after sunset as well as before.

Nope, No tears even though we are in Tiers

With covid cases again on the increase and new strains popping up it is no real surprise that as a Country, most of England has entered into stronger restrictions as of December 26th.

For me, I wanted to ensure I didn’t repeat some of the ‘blind fails’ that I incurred during both the first Lockdown and Lockdown 2.0. While being able to increase my walking, for both fitness and stamina.

So, my Christmas present to myself was two new cane tips. Sadly one won’t actually arrive until January, however I am off to a great start with the first.

I introduce you to my Ambutech High Milage Rolling Ball Tip.

Ambutech High milage roller tip on the end of red and white cane, with my hand to the right for size comparison

Measuring 5.1cm it is significantly larger than my previous tip as well as feeling much heavier. My cane is a slimline graphite long cane which gives it more ‘bouncy’ and initially on adding the tip felt like it was ‘dragging’ but as I have got used to and learned to release my grip on my cane handle it has got easier.

As for tip itself ….. A-M-A-Z-I-N-G !!! A long 2mi walk and not a single ‘cane jab’ or it catching on anything. I deliberately walked a route where the paving slabs are cracked, the path has roots in it and where I have previously experienced many a ‘cane jab’ or catch.

So, as the title suggest. “Nope, no tears even though we are in tiers.”

Eek …. 40 is fast approaching

As my youngest has recently celebrated turning 10, it makes me aware that the next birthday is our family is mine.

My birthday has often been a Love-Hate subject for me, being at the beginning of January it’s always been pretty rubbish timing. (Better than it could have been, I believe my due date was December 21st)

As a child I often got money for my birthday, which mixed with what were True-January sales I got so much more for my money. However since adulthood as much as I would love to celebrate and socialise with friends I am acutely aware that January is a VERY long month.

Many often joke that January is actually much longer than its 31 days, which in reference to paydays is certainly true; as it can be as much as Seven weeks rather than Five.

However, a real plus for me is that restaurants and pubs are generally much quieter for these exact same reasons! Meaning that I can enjoy myself without the worry of additional difficulties because of noise, crowds and party-type lighting. (Hence the Love-Hate)

Having my youngest 10 years ago meant that I was a very tired newish mum for my thirtieth as it was a very different experience to when I had my eldest because of the changes in my sight.

Lots of people have started asking what I want to do the celebrate.

And honestly, with the world still in the middle of these ‘unprecedented times’ and with so many restrictions in place, there is a distinct possibly that even if I started RIGHT NOW….. I would not achieve what I want to by the end my thirties with a ‘Forty things before I am Forty Bucket list’

So, the question is; do I make it ‘Forty things to do as I turn Forty’?

Or as one friend suggested….. “Celebrating beginning my Naughty Forties in Style”

And if that is the case, What do I do?

I do have a pretty big ‘challenge’ planned for 2021, which is currently being tweaked and trained for. Which, linking to my previous challenges (Gherkin 2014, Cheesegrater 2017 and my Tube Challenge 2019) will be following the London theme.

This Challenge will most certainly help me to achieve my fundraising target to name a guide dog pup and future life-changer. Which would be an AMAZING way to celebrate starting my “Naughty-Forties.”

With the exception of this year (thanks lockdown!) I have in recent years taken to a solo travel adventure, so it is only fitting that that would be included. But I would also like to do something with my children, with friends and with those I now come to call family.

I do also like the idea of celebrating in several different ways. I’m not thinking of a big party; actually I can’t think of anything worse! Rather many smaller and different experiences that will be much easier to adapt to include my different circles of friends and family.

It goes without saying there will be Climbing, Hiking, Tandem Riding, London, Trains, Beaches, Cocktails and Cake …. Plenty of Cake!

But as for particulars….. This is where you my reader comes in. What would you do if you were me?

Please comment below and help me make this an amazing and incredible year to look forward to.

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What is this all leading to ?

Yellow medal staring 50 miles walked

Lockdown has not been easy for me from a mental health point of view. As someone who holds multiply volunteer roles I work better when my schedule is full.

They say

If you want something done, ask a busy person.

And for me that is most definitely the case. When I have all the time in the world to do something it never gets done. To the point that my diary schedule now also includes specific days and times for mundane housework.

I also need to find something to get me working out, gaining strength and becoming fitter; rather than just sitting in front of Netflix’s.

Along came a Facebook advert for a virtual challenge called ‘Race At Your Pace.’ Ever skeptical about just adverts I asked a few friends and they confirmed it was a genuine company and that actually many of them were doing a running challenge with them.

Social distancing for me with a visual impairment means that I am unable to run or cycle; given that I need either a guide runner to run with me or a pilot to ride my tandem.

Which left me with walking.

Not a problem, as I needed to exercise my guide dog Fizz, and this was a mix between ‘working walks’ for her in harness and ‘sniffy walks’ where she was on a longer lead and able to just be a dog, sniffing at each post to catch up on all the ‘Pee-Mails’

So, April’s challenge was set, I set myself the target of 50 miles of walking workouts. Which I new was a MASSIVE challenge for me, however with both indoor walks and outdoor walks counting I felt it was achievable.

Oh how wrong was I?

In April I did walk 50 miles, however it saw me going right up to the last minute with a 4 mile walk on the 30th April. Having always measured my distance in Kilometres, it was a bit of a shock to the system to measure in Miles.

However when this beauty arrived in the post I felt proud that I had achieved it.

And having gone right to the wire for April I knew I needed to work harder. So not only did I re-enter for May, but upped the distance…. This time 65miles.

A target that I not only reached on the 29th May with 2 days to spare but I discovered that I had smashed through it as only looking a ‘walking workouts’ on my Apple Watch did not include the 6+miles I had recorded as ‘Hikes’.

So yes, you have probably guessed by now, I am going again in June, I am again increasing my distance…. increasing to 75 miles.

But why?

I hear you ask, we’ll Lockdown has been a time of planning, and for now let’s just say when the world reopens I will be walking much much further than 50, or 65 , or even 75 miles……

Two months in ….. Covid-19 and me.

Uk gov poster reads, stay alert, control the virus, save lives

As I sit here on a Wednesday evening and type up this blog, I must begin with saying that I am well. I am not, nor have I been unwell with Covid-19 or had any symptoms. (Lets just hope that hasn’t put a ginx on it)

As all news channels are continually reminding us,

We are living in unprecedented times.

And that is putting it mildly. As I touched on in my previous blog post over eight weeks ago; when we hadn’t actually fully entered into enforced social distancing and restrictions on what we did and how we did it.

Social distancing and being aware of those around you are not so easy when you have sight or hearing issues. (I can only assume that people with other disabilities must also be finding this time hard)

The country as a whole has never seen anything like this in peacetime…..

Even the amazing Captain Tom Moore, who set out to raise £1,000 for NHS charities as he walked 100 laps of his garden in celebration of his impending 100th Birthday (who has actually raised over £33 million to date) says that this virus is nothing like any of the wars he was part of.

We have seen our country led by our amazing NHS workers, supermarket staff, delivery drivers, teachers, support staff among many many others and where The Daily Briefing has become part of a daily routine for so many, along with the weekly ‘Clap for Carers’ on Thursday evenings, I am struggling to find the words to write.

Yes, you did hear that right…

All of my volunteer roles are suspended.

Planning for my next big adventure is on hold.

My house has been rearranged multiple times.

I hold weekly meetings with my small group sisters from church.

Sunday morning worship is all online via a live church platform.

And in all honesty; I find using Zoom absolutely exhausting. However, at the same I time I am incredibly grateful for this way to be able to stay in contact with others.

Daily life and this ‘new normal’ isn’t easy on anyone. However, I made a conscious decision at the beginning of this to be more of a Positive Patsy that a Negative Nancy; don’t get me wrong, I have hosted a few pity parties for one. But actually the way you react to a situation is what strengthens you as a person.

For me, the biggest part of this is my independence, there are no other adults living in my home. My son has continued to live between me and his dad, while my daughter has been isolating with her dad and step mum for about 10 weeks and only seeing her on my phone has been heartbreaking, however she needs to protect her dads health and being 14 she is actually incredibly well adapted for not going out and only speaking to people via WhatsApp and Instagram.

Delivery slots for shopping are still few and far between, however one bit of good news is that Tesco have (off of their own backs) enabled those with visual impairments to register for their priority delivery. While sight loss charities Guide Dogs, RNIB and The Thomas Pilkington Trust have been working on a petition to make the government aware of the vulnerabilities of those with sight loss and the need for these to be included within the Governments scheme especially to enable access to home delivery from supermarkets.

The Bad news is that my guide dog Fizz doesn’t understand why when we do go into town that we are not going into Caffè Nero, Coffee 1 or Costa (being that they are all closed). She is however grateful that we can still shop in Wilko and Poundland, because actually for cleaning supplies, medications and toiletries I have found these stores much quieter than popping into a supermarket for anything I need between deliveries. (And the plus for Fizz is that both stores have pet aisles!). And for my own sanity, having the ability to pick up these little bits myself has helped me feel in control.

Guide dog Fizz sat with her red and white check harness infront of a wall painted with a giant rainbow to support the nhs

Social distancing has continued under the government guidance and I fully understand and support the need for this, to not just keep me safe; but to also keep others safe…. Especially key workers.

For me it is simply the struggle for me to do this…… Although Fizz has started to just stop and stand still when anyone comes near us, I have found different stores difficult for different reasons. Especially since the introduction of one-way routes. My local Coop store has been the best by far. Not only have they put arrows on the floor to point you in the right direction; they have also put big red ‘NO ENTRY’ markings on the floor for aisles you should not enter at that end. Simple, yet for me incredibly affective as I can see the red much clearer than the blue arrows.

As I said before, I have decided to be more of a Positive Patsy (and not as in continually drunk like the Patsy in Abs Fab) and in turn my anxiety has reduced as this ‘lockdown’ has continued. There have been occasions where I have missed the queue of people socially distancing to get into a store. It was not intentional that I queue jumped, it was rather that Fizz has set routes and entrances that she is use to using. I have tried my best to keep the distance between me and others, but I have also made mistakes. And when we have been out on our daily exercise Fizz has taken to just stopping, standing still and waiting for the other people on the path to move out of our way or cross the road. Which (at the moment) I can’t decide if this is a good or a bad thing.

So, for someone who couldn’t find the words to write this post, I have managed to take up quite a bit of your time. It’s turned into a long post; however that said, I hope that you have enjoyed it.

Please do Stay Safe, if you can Stay Home, Protect the NHS and above all please Take Care.

Meaningful Memories

Social media can be both a blessing and a curse. It has the power to make or break your day. For some it is part of their daily routine; flicking through friends posts and memes of cats over morning coffee.

I have always said that my Facebook wall is mine to graffiti how I see fit, it contains The Good, The Bad and The Ugly. However this may not be how others use it.

For me each day I look back on my memories. A chance to look back and see what I was doing on this day in any given year right back to 2008.

Memories of both my son and daughter growing up, my pregnancy with my son, family celebrations and days out. They also map out my journey with sight loss; because although I was born with my conditions, I slipped through the net until 2008, however I did keep my Facebook posts about this part of my life fairly vague, that is until I got the news that I had been accepted onto the waiting list for a guide dog in August 2009.

The other day a post popped up in my memories that holds even more truth now then it did in 2012, especially as way back then I wasn’t aware of how just two years later my life would be, or that I would later discover that I was loosing my hearing too.

The post read:

Some people go through life asking “why me?” Others say “God gave me this/these challenges to test me.” I say “if you can’t change a situation, change your attitude towards it.” My disability does not define me, nor does it rule my life. I define me, I rule my life… I am me, not my disability. My crappy eyes are only a small part of me, tiny in relation to other parts… My personality for example. Do not define me by my disability and i will not define you by your ignorance.

And this popping up in my memories was a timely reminder that I define me, not my disabilities, my differing abilities or other people. However as one friend pointed out;

I like your crappy eyes, if it weren’t for them, we would never have met.

Which is also true, through my love of helping others, numerous charities and even supporting children in cub scouts I have been able to cross paths with so many that had I not had any of this, I doubt we would.

So, the point of this blog?

My one piece of advice would be that it is okay to look back every now and again, but only so you can see how far you have actually come.

Puzzling perceptions

Always one for challenging myself.

However, this challenge is on a totally different level than any other I have done before.

It’s not particularly physically challenging, rather mentally challenging and reliant heavily on a sensitive touch. (A skill I am working on improving)

What is this challeng? I hear you ask….

It’s a puzzle, not as in I am teasing you all; but rather an actual puzzle. A jigsaw puzzle that is.

With my lack of sight, the actual picture on the puzzle is redundant. So, for this reason I have chosen one made up of butterflies, in varying colours and shades, to give a finished puzzle that is almost a rainbow.

I will be honest, it’s been hard work. There has been tears and just to get to this stage has taken many a late night.

It all started with finding the edge pieces. Then out came my magnifier; so that I could separate the pieces by their main colour, which is easier said then done as several of the pieces morph into the next colour.

So, for now this is where I am.

Image of a white board with all the edges of the colourful jigsaw pieces on it.  Sat in the centre is a tray with the separated colours in.
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