Tag Archive for independence

My personal journey that was the Great South Run

Having said I would update you on the training and how I was getting on, I let the side down. This wasn’t that the training wasn’t happening, it was just that life got in the way of me writing my blog.

So Sunday 27th came and so did the severe weather warnings!

I have to admit that throughout the training it was the rain I was worried about, not the wind. A very foolish misconception, after all the last 2 Miles of the race where along the sea front at Southsea, with no shelter. And as you will be aware if you have been anywhere near the great outdoors on that day, it was windy…. Very windy.

After an issue with my guide runner, the dog costume for the guide runner and everything coming together at the 11th hour I didn’t have the chance to be nervous about anything other than being able to finish the race.

My original guide runner was too tall for me, making him too fast in stride even at his walk pace. So, thankfully I was able to twist the arm of a friend, to join me. As a former partner, he is aware of my eye condition and my preferred way of being guided and having things explained to me. He also had a good understanding of what it meant to me to be doing such a challenge. Although I don’t think he had a full appreciation for what doing a 10 mile flat open air course would be like with a giant dog suit on!

The dog suit was another issue, the events team at guide dogs was arranging for me to have one of their costumes as the one that I had used from my local Southampton mobility team was already being used by someone else. With just 10 days to go before the race it arrived, a dog costume that looked nothing like the fat little puppy I had borrowed from Southampton, it was a very sad looking dog, with several sewing issues.

So, I went back to Southampton and asked for their help, the fundraising team were fab, they tracked me down a puppy costume that was in good condition, although missing its hand gloves, they arranged for it to be driven down from its home in Leamington and it arrived on the Thursday before the race.

It was a fat chocolate lab puppy costume, that with a guide dog race vest on looked the part. My guide would be able to play the role of being my dog after all.

top dog

top dog

So, it was all in place and race day came. On recommendation and for ease we travelled over to Portsmouth on the Gosport Ferry, and then walked the 2 miles to the charity village for a warm up before starting in the ‘green’ heat at 11.05.

It was only once arriving on site and getting the puppy ready, putting my own cane away that the emotion of the day hit.

And oh yes, it hit…. I was in an absolute panic. Not about running the race, not about even completing the race. No, it was something that unless you have trouble with large groups or very little vision will be hard for me to explain in a way that is easily understood.

The volume of people, more that 2500 of them were also taking part, yes we were ranked in different colours depending on ability, the green rank that I was in was the busiest and saved for the casual runners, walkers and those who had never done such an event before.

I was attached by an elastic strap on my wrist to the puppies wrist and when we had trained I had done so to hold his arm between his elbow and wrist. We had trained to work at a good pace together, none of this was of concern, this I had prepared for, trained for and had control over. All the other runners though, well they were a completely different story, over them I had no control, no understanding and nor did they of me.

In such a vast crowd no-one realised that I had a visual impairment or that the dog was my guide, not just a guy dressed up for the fun of it.

So we warmed up together, moved up to the start line together and then it all started, no more time for panic, no more time to think, just time to put my complete and utter faith in my dog.

But in a way that I had never put my faith in Vicky before, I couldn’t not do it now, there were several hundred people behind us, to the sides of us and in front of us and there we were, 2 people with no where to go but forward.

My senses were on ultra high, I could sense all of the people around us, especially those behind us, but I couldn’t judge their speed or distance and with a giant puppy head, vocal commands from my guide were non existant, instead it was all done through feel, touch and gentle gestures…. That we hadn’t practiced or used before. Where he went, I did, I gave up on trying to look forward, the movement of me and others was too hard to focus on, so I put my head down and watched his giant brown puppy paws instead and followed their rhythm.

We had trained together, to run together, but like I said, nothing prepared me for this. I felt like I was a failure, another thing that I couldn’t do, but then there were the people cheering and David attached to me and I WAS DOING IT, even if I had had to walk the whole course, I would have still have done it.

The race really knocked me down, yes I should of trained more, then maybe I wouldn’t have hurt so much after, but no amount of physical fitness prepared me for the emotion and the me part of the day.

I am struggling to explain this, but it was a very large marker for me, on how I do see things differently and how I feel about them. I have never and will not shy away from doing things like this again, in fact I am already thinking of next years challenge. Which not be a running event that is for sure!

I suppose that the reality that I was only able to do such an event by being with another person, not being able to just jog through the crowds and run my own race, I had to do it with a guide. A guide who was very happy to help and happy to go with my pace without complaint. But nether the less, a guide.

The great south run for me was another realisation that I can’t just get up and do things by myself, I am different and in this instance that has caused me upset.

Its been one of the highest moments for me to say YES I DID IT, but a low also to think that I wouldn’t be able to do it alone.

Getting a handle on things

As I have mentioned before, my guide dog has given me so much freedom and Independence, more than I feel I would have if I had continued to use my cane on a daily basis.

Vicky, however has decided that she is getting tired of her role as my guide dog and in recent months has slowed her pace considerably, to the point sometimes that I feel like we are standing still… She has had several health issues and in the past two years having suffered with a growth on her tonsil she has been receiving daily medication in the form of an inhaler. This has enabled her to breath easier. She is happy working and has been assessed several times as I would not wish to work her if she were not happy.

She is still very happy to work, her tail is testament to that, it is just that it is at a slower pace, a pace that is too slow for me.

Having celebrated her Eight birthday, thats Fifty Six in dog years!

The decision was taken last week to retire her from service, when a suitable replacement has been found or she decides she is no longer happy to work, which ever comes first.

This decision has been one that has been at the back of my mind for a little while now, so was not as a complete shock. But as she is such an amazing part of me and my family it is still one that fills me with upset.

I had commented before that when Vicky was to retire I would go on to work with a new dog, which I am still going to do. But I was not prepared for what happened next at the guide dog assessors visit last week!

To be matched with the ‘right dog’ it is important that the guide dog team know as much about your lifestyle as possible. This includes your usual day, places you visit, hobbies, interests, other family members, other pets, etc etc.

I had thought about this bit, I had even written a list, a list that is four times longer than the list I had when applying for Vicky, a list that impressed the assessor as it gave her a very detailed account of my life and what I would need from a dog.

This was all good….. Then E, my assessor invited me to do a ‘handle walk’ This is where she would hold the harness and work with me as if she were the dog.

This is a way of her understanding and judging my pace, stride length and most importantly control and balance, which are key for matching me with the right dog.

So off we went for a walk down my street, where all my neighbours know me and just in time for the mums at the pre-school to be walking past on their way for lunch pick ups.

I vaguely remember the handle walk from when I applied for Vicky, but this time it felt completely different, because I knew what I was doing, well….. In theory that is!

So, off we went. E told me that she was sniffing and I was to correct her, this is the same with a dog, (although with the dog on the harness you can feel them putting their head down to sniff, Vicky doesn’t actually talk to me) It is a vocal correction, where tone is key, if this doesn’t work then it is a correction using the harness, not to hurt the dog, but to stop them. This must be carried out with the correct verbal warning, where timing is crucial. Followed by immediate praise when the dog responds, which again is a different tone.

Then came the praise. Me walking along the street with a grown woman holding the front end of a harness, while I held the harness, telling her she was a ‘good girl’ as one of my daughters dinner ladies walked passed.

Another part of the test was my instructions. E had to find the crossing having been targeted to it, I then had to praise her with a soft yet exciting warm tone (thankfully she was happy for me to forgo the ear rub that they encourage in a new partnership!)

It was back to basics, time to put in place all of the commands that I use daily with Vicky, foot positions that have become second nature, so much so that when E asked me to stand in the ‘starting off position’ I FROZE. I couldn’t remember what this was or how I did it. E understood my hesitation and reassured me that I had used the correct position when we had taken Vicky on her walk earlier. But with E stood beside me I couldn’t remember it. Thankfully she came to my rescue and reminded me of what to do, a simple foot position that sets you off to walk forward or turn left or right in a fluid motion with the dog.

A motion that had become so fluid in fact that when I had to think about it, I couldn’t do it.

We worked on my preferred pace, my pace with the children and my ability to follow. This assessment was the same as the one I had had to complete when I first applied for a guide dog, because having had one dog did not automatically qualify me for another.

I have been assessed as fit to work with a new dog, awaiting medical conformation, which is standard practice. When received I will be put on the waiting list for my next dog.

This is a scary, yet exciting prospect. But one that will only help strengthen me for my future.

Looking towards the future

Part of me as a person, is someone who works and earns my own money. Being on benefits for me is a failure of my ability to do this.

I am currently in a position that I am reliant on the help that they offer. I am home looking after my two children, now on my own after my relationship broke down earlier this year.

But I want to do more……

It is not that I do not love being at home, or that I don’t love my children, but I need more. I have a strong work ethic and I want to be able to support my children more and allow them to have nicer things.

My career before my sight started to deteriorate was in design, a career that yes I could have continued with with the correct support, but one that I felt that my heart had fallen out of.

I have also worked within administration and with charities that deal with sight loss. But although I ave an eye condition and I enjoy the volunteer roles that I have with Open Sight and Guide dogs, my sight is just part of me.

So time to look to the future and to see what I can do for my next career.

Last year I started this ball rolling by doing a taster course in counselling. I fell in love with it as a subject and as a possible career move. And despite my initial concerns my sight loss has no affect on me being able to support others. It just means that I need to do things in a slightly different way.

This year I have been working towards my ABC certificate in counselling. Class makes up just 4 hours with 8 hours at home, however for me this is more like 12.

Studying and all that comes with it has been a learning curve in more ways that just the subject! I have learnt a lot about how and when I can use my eye’s and sight to get the most out of them, without creating negativities for myself.

An example of this, is using the computer. As I have said before, I am a Mac user and as such, have a MacBook Pro and iPad. Both of which offer fabulous accessibility as standard. (maybe thats another blog in the making!) But when I can use my Macs is becoming limited.

If I want to be able to close my eyes and wind them down to sleep, I must not be using them after 9pm in the evening. Even with the speech software, I still try to use my remaining sight, its a natural reflex. If I have reading to do, this must be done even earlier in the evening or preferably during the day.

So, study is nothing like the all-night, stopping only to use the loo sessions that I had when at university just 10 years ago. Which is a real marker for me of the deterioration that has occurred.

So, my work is done with an hour here, an hour there and also a stopwatch. Because as with most people when I am deep into something, time can run away with me and with my eye’s I do not feel the affects immediately, but it is often a few hours after.

But this has not put me off.

Just this week, went in the application for the DipHe in Counselling. Its a whole day at Eastleigh with 2 1/2 days of home study. The ‘perk’ of this course is that I can apply for assistance in the form of a scribe for the time in college. I can also apply for a grant to help me to upgrade my Mac, to a larger screen as my existing mac is becoming a struggle. Its not going to be easy. This I am in no doubt about, but this is where I want to be.

So, as I can no longer do late night studying, I will have to give VERY early mornings a trial instead.

My guide dog & me

As a guide dog user my guide dog is an extension of me and my Independence. This wasn’t a concept that I truly understood until we had worked together for several years.
When I applied for my first guide dog back in 2009, I knew that it would make a difference to my life, but to what extent I was not aware. There have been both good sides and low sides to having a guide dog. The biggest thing for me of having a guide dog is the emotional, love and soppy side that officially guide dogs don’t tell you about. When applying for a dog and training you are told all about how important the bond within the partnership is, for that reason it is key to have a period of bonding with no interruptions from anyone else before the training starts.

For me, both my daughter and my partner went away for the weekend, Vicky arrived on the Friday afternoon and we spent the weekend together, just playing and spending time in the garden. I groomed her, tickled her tummy and fell in love with her.

I was very nervous about starting our training and if I would be able to do it, but she seemed to sense this and just kept on nuzzling me as if to say “it’s going to be ok”. The very same way she still does now when I am down or upset. Without this connection I do not feel that we would have the working relationship and connection that we do today.

She has enabled me walk with my head held high and regain my posture that had slowly been being lost as I had began to look at my feet so much to watch my step, rather than my surroundings and where I am.

There was a very steep learning curve with Vicky, I made mistakes, we made mistakes together and we gained a wonderful trust for each other, that only strengthened our working bond.

A working bond that appears to be coming to an end.

It is with a heavy heart and tears in my eyes that I write this blog, my sight is slowly deteriorating, but with Vicky by my side my independence is at its highest, allowing me to improve my health and my fitness. But at a time when she is slowing down and asking not to work so hard or so much.

Vicky has had her own health issues during our time together, for which she has an inhaler to help to open her airways to increase her breathing, which she has responded well to. But, with her Eighth birthday approaching next week she has been hinting that it is time to hang up the harness.

She is well, she is very happy and will allow me to put the harness on and work, but she is also holding back, she has reverted to working in a way that we did at the beginning.

She is wishing to walk me close to walls, shop fronts and buildings, which with it brings an unsettled and troublesome result. Walking and working in this way means that the walk is a start-stop, we have to continually walk back out to walk around obstacles like a-frames, bins, posts and even people.

Initially we had trained this way, but as both our confidences grew, we moved more into the middle of the path, for Vicky to revert back to this shows a sign of unhappiness and possible stress or lack of confidence in what she is doing.

So, with great discussions with her and my guide dog mobility team we have taken the step to look at her retirement and me moving on to work with another dog.

I will take the time over the next few weeks and months to open up more about this, but for now, before my heartbreak over takes me I will end this post here.

Thank you for reading. Please feel free to ask questions xx

Employment and support allowance

Having suffered with my employer and my depression caused by my continued battle with getting to grips with my deteriorating eye condition and having to learn to use a new form of accessible software that I didn’t feel ready for, I had been on long term sick leave since October 2012. In February this year, after a lot of thinking, adjustments and not very successful adjustments, I was let go from my position on medical grounds.

This did not in fact cause me any great upset, as I had come to the conclusion that my current role was not the one for me.

It was the thought of accepting my eye condition and applying for the government benefit, for people like me who are unable to work…. Employment and Support allowance, often referred to as ESA. Read more

It sounded so simple…. Then you put me in the mix!

As well as blogging I keep up to date with friends and family via my Facebook account, the other day after what had started out as a fun conversation I put myself on the line and admitted to having been forced to admit that I had a limitation.

Yes…. I hear you all say, everyone does.  But this limitation wasn’t even something I had ever considered before, or even wanted to do.  And in the grand scheme of life is very unimportant and changes nothing.  But I started to bother me.

I thought the easiest way for you to see what I am talking about is to copy the post in below, including the comments.  As to protect the identity of my friends I have re-written the post and named them F1, F2 etc, etc.

I would be interested to follow on this conversation further, so feel free to comment yourself underneath on here.

THE STATUS:    An honest conversation with a trusted friend has made me realise that with my sight, there are some things I just won’t ever do….. Some I can get around, fudge through in a different way with help & support.  But today the realisation that there is something I won’t ever do, silly thing is that its only a small thing too…. But feeling 🙁

 

ME:  And it wasn’t even anything I though would bother me, it’s the realisation of limitation not the thing I can’t do.  Even my stubborn streak won’t get me through this one.

F1:  You will get through it hun!  Been there – spend some time wallowing in self pity and then equally important pick yourself up and get on with what you CAN do!

ME:  I know-its the kids, home, college, work is all that matters, but it’t limitations of not being able to do something so very simple for others——-even a small child can do it!

F1:  Yep!  Let yourself spend some time feeling sad, don’t try and ignore it.  Have a bath, get in you pj’s and bring out the chocolate!

F2:  If you don’t mind me asking, what is it?

ME:  Its very silly and ridiculous…….. Juggling!!!    Having looked after Miss Key the other evening while Mst Key & Simon Key did a juggling with scouts.  Mst Key came back telling how great it was & how his dad could teach anyone to do it, it never interested me, bit it set the challenge & the thinking cogs working.  So had a good talk about it & the answer was NO… I need to be able to follow the movement, although I do have some vision.  I have no ability to judge distance or quick movement.

Its not the juggling that is the issue, its the fact that it points out a limitation.  For example, I am not allowed to drive a car (legally) & have a driving license.  But  I can physically drive a car, on private property with the right support.  I know how to do it & can do it.  Its a silly thing, but its these little bits for me that stand out as a limitation.  That having discussed the options of making it accessible isn’t there, if I wish I could play blind football, blind cricket, if I so desired, silly isn’t it?

F2:  I don’t see why you can’t try??  Think of how much fun it would be.  Just make sure you use soft balls so not to knock anyone out though! 🙂  Nothing is impossible, we place on ourselves our own limitations so if you say you can’t then you won’t, if you say to hell with it I am going to have a go…. then you have got nothing to lose and if you prove yourself right they you can say hell at least I tried!!

F3:  I think the thing is that you have to have a base to start with.  If you know that it is something that might be nearly impossible to do before you start, then if you still want to try then you don’t set your hopes up too high.  The bonus is that i you did achieve it then it would make it all the more special. let me have a think, I’m sure Mst Key is right.  He tells me enough that he is 🙂

F2:  Nearly impossible! See not impossible at all 🙂

F3:  just have to be realistic.  Thats all I’m saying, what the hell, I have been learning 5 for 6 years !!!!

F2:  There is being realistic though and shattering poor Theresa’s juggling dreams.  I anyone can you can Mr Key 🙂 xx

ME:  Oh dear, what have I started?  It’s not the juggling that is the point here.

F3:  Well it kind of is and isn’t.  I think the point is that you wont know what you can and can’t do till you try……

F2:  Excellent!  I look forward to hearing your juggling tales Theresa and Mr Key.

ME:  It’s got taken all out of context, I don’t really want to juggle.  I hate the word ‘Can’t’ I know what you meant when you explained it, no it’s not impossible, bit it just highlights the fact that I can’t just grab a set of balls & get going.  You said yourself that you need to think about how!  It’s something highly skilled when you get to your level, but at the same time it’s very basic and simple at the start point.  And I can’t just get on and have a go.  This sees me start thinking & analysing other things I can do or can’t do & the spiral starts & thats why it was never about the actually juggling… Hence why I never put it in the start of this post!  I appreciate the support & kind words from you all.  I’m not as has been suggested (by pm) fishing for sympathy or compliments on what I can do or try.  I wrote this because it was how I was feeling & at that very same moment on looking at Facebook it just felt right to put into words, stop it just being in my head & driving me even more crazy!

F3:  Nope no taking it back now lol.

F2:  Nope, you can’t back out now.  Learn to juggle woman then you can pass your juggling wisdom to me 🙂

_____________________________________________________________

It makes for this being a rather long blog, but I hope it gives you an idea of my thoughts.  Juggling isn’t the issue for me, its not even something like I said earlier that is of great interest.  It merely highlights that for me to do some things, I need to set myself up in a very different way than others.  Have to alter the way in which I do things.  My friends were being helpful with their comments, I am always open to constructive criticism.

I grew up not seeing myself differently to others, but now I do…… I feel so very different.

And this is the point.

Feeling Isolated, yet surrounded by others.

Although I am a VIP, I pride myself on being independent and when I am within environments that I know or at least understand I am able to achieve this.

But move me away from my comforts and I struggle. I have often linked asking for help and needing support as a weakness and laughed it of as me being silly not being able to do things because of my eye condition.

After all,  lazy, I don’t like to just sit back and get others to do things for me while I am able to do it for myself.

A recent bought of bad health has seen me admitted to hospital. Which I am sure you will agree without adding in my eye condition is quite a daunting and scary thing.

But starting with the travel in the ambulance to get here, to moving from emergency medicine, to medical assessment to the current ward, I am feeling very low and lost.

The ambulance crew were fantastic, very descriptive and explained what they were doing and even where we were on our journey especially when we were travelling down the corkscrew of a slip road off of the motorway, which whil laying down and travelling backwards felt like a roller coaster ride!

Emergency medicine was very busy and nurses and doctors were rushing everywhere, I was really looked after and treated brilliantly, every time a nurse came passed my bed they asked if I needed help to get to the bathroom as they were all aware of my sight or lack of it.

Following hospital guidelines on time etc ( the politics of the nhs) I was moved to a medical assessment unit for further looking at. The handover on this ward was detailed about my eye condition, but sadly not passed over clearly to the next staff that took over, so having buzzed for assistance to go to the bathroom I was advised that if I couldn’t walk I was to use a commode…. So I corrected them that I was able to walk, but couldn’t see, which she argued over as I wore glasses, surely I knew where the bathroom was (don’t worry, the compaint went straight in to the staff the next day and the bed allocator who spoke with me about my preferences before I moved to the ward I am on now)

The porter that took me between the two wards was unaware and grumpy that she had been apparently stood by the side of my bed being ignored for 5 minutes, so she got a firm explanation of my eye condition and how it was polite to make people aware of her presence!

The ward I am on now was not able to accommodate me in, but I was given the next best thing. The ward I Amon with just 3 other ladies has a bathroom directly opposite me. The layout of the room was thoroughly explained as was the location of the bathroom, the rails and most importantly the help call buttons.

The odd slip up with cleaners moving my table or my glass from one end to the other has occurred, but the ladies on my ward have helped greatly, although immobile they have always explained the new location of the table or the glass perfectly. Just this morning they advised me of a wet floor sign just at the side of my bed that I would have kicked into.

Hospitals are not my favourite place and I know how busy the staff are, so hate to feel that I am making a nuisance of myself when taking up their time with silly little things.

The reaso sharing this with you is because, just this morning I had a great chat with the nurse. I explained my condition, my worries and had a really good chat, she then helped me sort out my clothes within the locker so I would find things easier. She briefed her staff about me and even got one of the assistants to help me plait my hair to cheer me up. She told me that all of the things I needed, whether that was medication or being told where food was on my plate wa all part of my care, nothing silly, nothing was because I was being stupid. She said that she would expect everyone on the ward to receive the care that they required with all of their needs, not just the medical issue that had bought them into hospital.

I sometimes need reminding of that. Just because I see my disability as a failing on my independence, others don’t and they would be failing within the job they were assigned to do if they did.

Fun Fairs

Lots of blogs this week, but I get to break from the usual boring home, study routine when my two children are home.  As I said before, I won’t let me being a VIP affect them or the fun they get to have.

So, on Sunday as a birthday treat we went to the fun fair at Hayling Island, I have never been there before, but friends had raved about it & how much fun the kids could have (big & small!)

They weren’t wrong.

With a 3 and 7 year old it is often difficult to find the balance on somewhere they can both have fun and do things together or with me.  Of-course my faithful GD came along too although she didn’t partake in much of the fun, just the run along the beach afterwards.

For me, I got to drive! only on the bumper cars, but didn’t I make the most of it, first with my son, then with my daughter and then they had their own car and I got to go alone.

 

We went on the halter skelter, the log flume, the balloon ride, even the rickettly old roller-coaster (I didn’t want to ask if it was part of its design or age that made it that way)

I know many people do these sorts of rides with their eyes closed, so most can guess what that feels like, but how about if your eyes were a blurry haze?

It makes things seem there that aren’t, it makes it feel that you will hit your head or that the cart your in will come off of the rails.

Also with no depth perception I have no ability to judge the hieght of a climb or the steepness of a drop….. But for me that adds to the excitement.

So to say that I had just as much if not more fun as the kids would be an understatement …….. We loved it!

The weather was just right and like all good funfairs I got to enjoy an old family tradition of having my bucket of pennies and playing on the slot machines too, dropping the coin at just the right time to not fall on top of the pile, put to push some of the coins down into the winning bit.

Who says sight loss has to make you miss things, it just makes it a different experience, but having never had brilliant sight I can’t say is it were a better or worse experience, my children had a fabulous time and that was the whole point of the day.

Me getting to join in so much was an added bonus!

Walking in the woods

A gorgeous bright sunny bank holiday Monday is just what everyone wishes for.  Me too, but with bright sunny weather comes other issues For me.

Taking my son out to a great little play park in the Forest of Bere, this means that I can also free run my guide dog in the woodlands, she loves finding sticks and jumping in the streams and puddles.

Today as we got a lift up to the forest, it appeared that most families had had the same idea, there was nowhere to park, so a thankfully we were just getting dropped off.  But being a veteran of these woods I knew that this would be ok.

Walk just 10 minutes past the park and adventure playground and your have tranquility.

maybe the odd group of older children making a camp, oor the odd dedicated dog walker, but none of the families enjoying their picnics while the Kids play in the parks.

But although I know this area very well, but with the puppy out comes the long cane.  In an off road track this isn’t ideal, but its better than nothing.

As I said earlier, bright sunny cloudless day’s are a struggle.  For me this comes in stopping me from using my remaining sight, relying purely on light and dark and shadows and sounds.

Vicky free runs wearing a play collar, this collar has a bell on it the makes a noise every time she moves (fantastic when she disappears off into the woodland)

My son is a little chatterbox and loves to sing woodland songs, so with strategically dressed bright clothes that contrasts when he runs into the woodland too to find twigs & bugs. So I know where he is too.

But on brighter days my concentration to keep safer safe and be aware that I’m not smothering him in Cotton wool is exhausting.  Mix this with panics over shadows of the trees That are created by the sun above suddenly appearing out of no-where and its quite a tricky walk in comparison to doing it on a cloudy day.

I still enjoy it, but when we get home the dog isn’t the only one who is exhausted.

Would you be able to navigate around rough terrain if your vision was clouded so you could only see the light against dark or shadow?

I would love to experiment with a few friends, wrapping scarves around their face just to let the light in, but no view….

even if you read this, but don’t go that far, I hope this post has helped you understand seeing my way!

 

 

Another ending

My condition is such that it often alters very little over time, so on a daily basis I may not notice any difference from the day or week before.  But when I go to do something that I did some time ago, that it when I notice it.

This recognition that something has changed, often hits me like a smack in the mouth!

When I started working for my employer in 2011 I had been using my home computer and work computer on a much lower level.  By this I mean that in my previous role my work was split up between dealing with clients, the computer and general office work.

The new position was all computer based and telephone connection with clients.  No more face to face contact.  Isolating yes, but this meant that I could work from home in the evenings after the homework was done.

Working from full spreadsheets I started to notice problems, through a scheme ran by the government called ‘access to work’ I was able to apply for a grant for adaptions to my computer, this included zoom text software to magnify the screen and allow me to move around the page with ease, this worked well.

But like all companies, the software and processes that they used changed.  I moved from a spreadsheet to an up to the minute online calling system, all the information was there in front of me, the computer also did an automatic dial to the client.

The new system was a struggle.

 

I work very well with order and sequence, with the new system this wasn’t always the case depending on the needs of the client.  This was not a design fault of the system the company used.  It was an issue I had due to my sight loss.  The programme was very simplistic and easy to use, were you able to see it all on one screen, which with the magnification, I couldn’t.

Work were more than happy to offer support and to aid me with my work I was able to work at a reduced rate without financially missing out while I went through a transition phase working with the new system.

It was in this period that I began to struggle personally with my sight loss and its implications, as a person who has a very strong work ethic I felt that I was letting myself and the company down.

It took months to actually admit this, during which time I struggled on.  It was at my breaking point in June 2012 that I admitted my struggles to my doctor, who was very kind, understanding and started to work with me to get the help and support that I required.

I also contacted my employers accessibility team and explained my issues, they made an assessment and felt that moving away from magnification and moving to a screen reading technology would be better for me.  So back to ATW I went with my report and all of my needs, including a brailliant (a computerised braille reader) I was able to start on the road to doing my job in a different, new and exciting way.

In theory anyway……..

Because of the way in which screen readers read a page on the computer and the layout of the software used, the two were not compatible.  An issue that was not of great concern for me as I was to move back to working with the spreadsheets, a preference of mine.  They included more data so that I was not disadvantaged over my colleagues.

But I broke.

I have been using a Mac for a long time and using the built in accessibility and with the help of my voice Lily, I have got on very well with it when I have needed it.

Having some useable sight I struggled to let go of that completely and with that I developed an eye strain that had a great affect on my levels of concentration for which I need to take eye drops on almost an hourly basis if I am using the computer or even watching tv or a film.

In October I took the step to visit my doctor again and explain these issues, she felt that it was important for me to understand my depression and how to deal with this and in turn my altering eye condition.  So she made an alteration to medications and put me forward for counselling.  Oh, and she signed me ‘unfit to work’

Having undertaken many changes in my life, some positive, some not so  I attended a final stage sickness review with my employer, and on Monday my contract with them was terminated on medical grounds.

I had always hoped to return to work, but this position was one, that even with assistive technology and support I would not be capable of, not through lack of knowledge or an imcompetance, just through circumstance.

This I think is a decision and understanding I had come to by myself long before the meeting, after all to get to stage three, I had been through stages 1 and 2, an in-depth report from my own doctor and an independent medical assessment.

It is heartbreaking to say goodbye to this job, today was the final ending as my ,ine manager collected all 6 boxes of computers, technologies and the hub that they had installed on the start of my employment.

This equipment has been boxed up for a few months to save it from the kids and dust, but the space it has left caused a tear or two.

I see this a defeat, I HATE to fail, to let people down.  To let myself down.  It is always hard for anyone to walk away from something when it is not working.  But hopefully this is one stress crossed of the list and will enable me to move forward.

Wish me luck.

 

Page Reader Press Enter to Read Page Content Out Loud Press Enter to Pause or Restart Reading Page Content Out Loud Press Enter to Stop Reading Page Content Out Loud Screen Reader Support