Tag Archive for accessibility

Would you be my eyes?

Watching a film earlier today with an additional audio descript soundtrack; my son asked me

What does blue look like if you can’t see?

A question that made me think, I asked him what he thinks of when he thinks of the colour blue, to me it is the sky, the sea and swimming pools.

But mum, what if you had never seen before? What would blue look like?

And so I decided to write this post, I couldn’t answer my sons questions; but I have told him I will, I just need to do a little research first !!

For as long as the written word has existed there have been ways of evoking images from it.

Abjectives, Verbs, Nouns, connotation, yet these all rely on you knowing what such objects look like. In my research of this subject I have found something, something that was buried at the back of my brain with all of my other Secondary Educational learnings;  Pathetic fallacy – where the weather in the story or written word mirrors the emotion of the scene or the people in it. For example, when it is very hot the characters are agitated or when it is foggy, mystery is evoked. This is used to adds atmosphere to the writing and gives clues to the reader as to what is to come, especially if the weather is described before the event.  Just as many horror movies occur on dark stormy nights.

Do you need to know what weather looks like to understand it?

No, as someone who enjoys every type of weather and the changing seasons this is one element of life that I can use my other senses to understand.  Weather can be truly ‘FELT’ the hot sun on my skin, the drizzly rain, the north-easterly breeze.  Fog comes with the additional sounds of fog horns (living on this coast these can be heard miles in land) Mist gives a dampness to the air that isn’t present when it rains, morning dew has a smell to it, a storm too can have its very own smell and it’s not just thunder that makes a noise.

Weather can’t explain colour or shape though, although it works very well for emotion.

So, I am back at the beginning.

How would you describe the colour blue?  Without using the word, what does blue look like?

I have had sight and I have been fortunate to be able to see and remember colours, images, items.

Even though now my perception of colour is greatly altered, I can only really see the difference between orange and red when they are together and everything I see has a kind of haze or veil over it, so isn’t as vivid or true as it once were.

My hunt for answering my sons questions will continue, but for now; humour me?

Please reply to this blog post with your description of the colour blue.

No judgement will be passed, no humiliation with be sort.  Just an intriguing mind looking for help.

Thank You x

What does sound sound like?

Tomorrow I have my NHS hearing aid fitting appointment.  My hearing aid assessment was very quick and limited; unlike the hearing assessment I had done privately.  My NHS assessment didn’t test how I hear (or rather struggle to hear) certain voice tones or in areas where the background noise was high.

I guess this has led me to feel that I may not gain the full potential from my hearing aids, and also because I am only having one for my right ear. And nothing for my left!

I am fortunate that as I am registered blind, I do receive a second right ear hearing aid.  This is so that should I drop one, or (as suggested by the audiologist) my guide dog EATS one.  I am not left isolated while a replacement is sort.

The NHS Choices website states;

Hearing aids are designed to help you hear everyday sounds such as the doorbell and telephone, and improve your ability to hear speech. They should make you feel more confident when talking to people and make it much easier for you to follow conversations in different environments. They might also help you to enjoy listening to music and the TV again, at a volume that’s comfortable for those around you.

I guess I find it hard to feel confident.  For as long as I remember I have worn glasses and it was actually a feeling of loss that I felt when I was told I didn’t actually need to wear them on a day to day basis, when I changed my prescription for reading glasses.  I tend to just wear them out of habit and the ability to hide behind them.

How will I feel wearing a hearing aid?

 

Envious of the mundane

Sat waiting for a friend to arrive and watching (as best I can) the people coming and going with their shopping.

And a very mundane task struck me.  People were walking with shopping bags in both hands.  Sounds rediculous, but in that small insignificant moment I became upset.

And the reason for it?  The realisation that from now and forever I will always walk with one hand full; as I will either be holding a long cane,  a guide dog harness or onto another person’s arm.

It sounds silly, but having to consider what you are buying when you go out, to either contain it in a back pack or worst case over my shoulder.  It is very difficult with Fizz to have a bag in my right hand, she works off of tap que’s and a gentle reminder from having her lead in my right hand at times.

I guess for now I shall just add it to the list of ‘no longer possible’ and carry on by focussing on the ‘can do’ list.

On the buses …… audio failures

As a girl with a visual impairment, having tech on bus journeys or train journeys are key to my ability to be independent.  If such an option isn’t available then I will set myself up to use another method of knowing my location and when or where I am to get off.

so imagine my surprise and upset when half way through a bus journey yesterday evening, I find that the audio has stopped?

I was travelling to an poorly lit area, I had Fizz with me and as I got on the bus I checked with the driver that audio was on.  And as we set off, the audio read out the next stop, confirming what the driver had told me.  All good, I could feel safe and secure that I could just sit enjoying the ride and await my stop to be read out.

There seemed to be a long pause in the audio.  I checked with another passenger sat near me and he confirmed that the screen (as the audio on buses is teamed with a visual; just like on the train) was reading the next stop, but he hadn’t been paying attention and didn’t know where we were as he was getting off at the last stop, so didn’t need to know.

it was then moments later that the audio returned, only to read out a destination that was much further along the route, a good 45 minute walk back to where I needed to be if I had got off then!

so instead I travelled back to the bus station and started the journey again.

This time, when I got on the bus I asked the driver for my specific stop and asked him to ensure that he stopped there for me, he said the bus had audio, but understood my concern following my previous journey.

The audio on this bus was on, it also continued to detail each and every stop, so I was aware of where I was and when I was due to get off.

I put it down to a glitch and having safely arrived at my destination all be it an hour later, I forgot all about it.

That was until this evening.  This time I was travelling with my son home after a shopping trip.  Again, it was dark but I was more aware of my surroundings as it is a journey I have done thousands of times.

Again, the bus left the station and the audio announced the next stop.  This continued until just before we were due to get off the bus, we were literally around the corner and the audio stopped.  I could work out roughly were we were, and having stopped at several stops to let people in and off of the bus, there were no further announcements.

Thankfully a block of flats lit the way to enable me to work out that we were approaching our stop.  But again, the audio had let me down.

Memtioning it to the driver as we got off the bus he simple said “I don’t pay any attention, I couldn’t tell you it had stopped.”

So, what is a gal to do?

I shall be sending this blog to the bus company, is it just really bad luck that I have encountered this issue?  Is it a relay issue with the bus audio?

I know that my hearing is going, but to hear the audio and then to not hear the audio….., that isn’t me?

I feel that I am not able to trust the audio on my bus journeys anymore, and with the dark early evenings. This is making me feel that going out after dark isn’t an option.  Or do I just walk?

Lots of questions.  But I am totally stuck with whatever I do.

The Cheesegrater is going to have to wait

An image of the London Skyline, showing The Cjeesegrater with The Gherkin to the right and The Lloyds building in the foreground.

All the climbing of 2016 has taught me so much more about myself as a climber, I am going to need to work on my technique dramatically if I am to turn my 1st place into a Team GB place.

This doesn’t mean that I am giving up on my fundraising, now more than ever I want to show my worth and EARN my Resound Hearing Aids, but with my climbing partner currently our of action, as the post title suggests ‘The Cheesegrater is going to have to wait’

Just days before Christmas, my climbing partner in crime underwent an operation for a hernia, one that has left him unable to train for a minimum of six weeks.  So with him not even being able to go to the gym until mid-February, let alone climb.  I have made the decision to postpone my climb.

Yes, I can climb with another partner.

No, I am not sharing my climb with ‘climbing partner in crime’.

But…… He is my motivator, my muse and my forceful “not let me down until I have reached the top” coach.  It wouldn’t be right to climb without him as my belay.

The new date is looking like late March, early April.  But no date is being set until the whole of ‘Team T’ is fit enough.

First a gherkin; Next a Cheesegrater !! is where I wrote about my challenge back in October, it was hoped that the climb would happen later this month, but health comes first and so, I am going to be cheeky and link you to the Crowdfunding page that has been set up for me, ‘HelpTeeHear’ where you can see why I am doing all of this.

My world is getting quieter in addition to darker and I’m not happy with it, not one little bit.  I want to be able to keep me, my independence and my love of technology that helps me to do all this.

So, my shameless plug is above, please take a moment to have a look.

And in the meantime, follow me for more updates on the climb and my other adventures.

 

 

Raw Emotions

I have tried to think of a witty title, something to grab your attention …. Words really are failing me on this post though, so just going with the simple choice.

I have been struggling for a while, I have been fortunate to be able to talk to close friends, able to ‘gauge’ the reaction.  There are a few more I wanted to tell, but time and my own worry has stopped me.

Keeping it simple …… Not babbling on.  So, do excuse me if this sounds unemotional.  I don’t know how else to say it.

I am loosing my hearing.

So, it is said, those 5 little words and it is out there…… I have known now for a little while, it isn’t easy and I am not writing this for sympathy.

I’m writing this because it is getting harder and harder to hide it.  Saying “Pardon” sometimes three or four times, not being able to hold a conversation easily as a passenger in friends’ cars.

Its confusing, I can still pick up a conversation across the room, yet not hear the person beside me.  And the prognosis …. It will only get worse.

I am still awaiting my hearing aid appointment from the nhs, it could take upto another THREE months for them to book me in, I have however spoken with my consultants and they are putting appointments in place for me to confirm exactly the kind of deafness I have.

All early indications push towards it being a form of Ushers Sydrome, a condition that is part of the RP spectrum; Retinitis Pigmentosa Is the family that my eye conditions stems from.  And hearing loss or ‘Deafblind’ is another strand.

Those with ushers are either born with hearing loss or sight loss and the other sensory loss occurs later.

As someone who was only categorised as ‘severely sight impaired’ 8 years ago, having been born with the condition …. I am feeling quite numb about it all at the moment.

Those close to me have noticed something is up, but I haven’t been able to tell them all in person, either because of Busy diaries or because I haven’t been able to find the words.

(which anyone who knows me, knows I am not often stuck for words!)

Just like my sight loss, I am not going to let my hearing loss take away my sense of humour or change the friend I am, it’s just not an easy time right now and it’s all a bit of a struggle.

Thank you for taking the time to read, I appreciates it.

xx

Touch, but don’t Look

Read more

Are chains REALLY a bad thing ?

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Sightloss, Technology and Me


Steve Jobs, the founder of Apple believed that technology should be accessible to all.  So, when designing the Apple Mac, MacBook Pro, iPad and even iPhone he included accessibility; features that allowed those with impairments to work and use his products (with a little tweak) the same as everyone else.

For me, it is the ability to magnify and navigate both my phone and iPad with voice over.  A feature that literally single handedley save my sanity on a city break (Manchester madness) back in late 2014.

And has helped to keep me sane pretty much each and every day since.  I believe that I was most definitely born in the right age, the technological age that is!

I have always been a ‘mac’ !! Since studying at university, when Apple Macintosh’s were for all things design and PCs were for all things administrative.

I was also very fortunate to be bought an iPad many years ago (now) but before that, way back when they were originally released, it took me a long time to even consider an iPhone…. It had no key pad, it had no buttons, and it most certainly did not have a little raised dot on the number 5 for me to be able to work out where my fingers where…..

It was only when Nokia removed their navigator phone from the market, that I joined the world of iPhone.

And since then, the world has developed further, there is now the Apple Watch, sadly a product that is out of my price range, but has been used and trailed for the support that it offers for people with sight loss.  A friend, Molly Jane Watt has found it a great advance in technology, especially for her as she has additional sensory loss as a person with usher syndrome, a condition often also known as deafblind. Where in her instance she was born with significant hearing loss and then found her sight deteriorating.  Apple Watch and Molly is where you can read her personal blog, (this is set to open in a new window, so you won’t loose me!)  I wouldn’t have even known where to look to discover some of the fabulous and FULLY ACCESSIBLE features that can come in such a discrete, yet powerful ‘watch’ .

i wouldn’t have had the courage or ability to make it on my own in a city I didn’t know; I Wouldn’t have contemplated making London my ‘city of choice’ when South West Trains have discounted fares were it not for google maps and quirky little apps like Staion Master, developed with parents, those with disabilities and additional needs in mind.  Offering detailed information about each tube station, some quirky facts and even a 3D map with step count and floor plans to make it easier for me to navigate myself and familiarise myself with the stations before even going on them.

Yes, google maps and such apps are available on Android phones, but is this simple triple tap of the home button available to make my phone accessible for me?  A feature that can be set up for anyone of the accessibility features, be that sight loss, hearing loss, conflictive loss or even setting up assisted touch.

Me and my iPhone are inseparable now, but not because of emails or Facebook or even now Pokémon Go (which I have absolutely no understanding of) but for making and receiving calls, for typing and listening to text message and most importantly for giving me clear, instructions on my location, my ways to get from where I am to where I want to go and even recalculating such a route, should I miss a turning or get myself confused.

 

 

Jumping without a parachute …

Who needs a comfort zone anyway?  Last weekend I not only stepped out of mine, I jumped out of it without my parachute !!

Not even those closest to me may have even realised the inner turmoil I was battling with …… Fizz knew, she kept me calm, she kept me from falling apart and she kept me safe every time I needed her to put on her harness and be my eyes.

Any event/conference/summer spectacular is daunting for many!

A room with 2,000 other people is also terrifying in itself!

Then add to the mix you can only see shapes and colours; the lighting is set up as corporate and moves with the music; the music that is loud, pumped out around the room to ‘raise the roof’ to ‘motivate’ and to ‘excite’ EVERYONE in the room.

Having recently decided to stop ‘messing around with diets and fads’ and actual take control of my eating, my inner nutrients and my health, I looked to my cousin for support.  She introduced me to Herbalife, a safe, clean, nutrition fuelled way of eating, not a ‘diet product’ rather a way to live, a way to improve myself from the inside out, while being able to support me through training, rock climbing, bringing up my children and running around with each of my volunteer roles.

… Fast forward a few months and here I was, sat in Manchester, watching, learning and feeling empowered by The Herbalife Summer Spectacular.

The chosen venue was literally a large box!  A MASSIVE exhibition space that was broken up and segmented by heavy curtains, false walls and carpeting.

Having previously been to Manchester a few years ago, this didn’t concern me.  With the new Google Street View App on my phone I was able to walk around the outside of EventCity, I was able to find Starbucks, plan how to get from the hotel in MediaCity, again having visited the area before, I felt OK here.

I had a room-mate for the weekend, she absolutely adored Fizz and was wonderful, even volunteering to take her out for walks having never met either of us before.

…. Back to the venue…. I was invited to sit at the front of the room, an area reserved for those prestige members, an adjustment made just for me if it would help me see the event clearer.  Sadly no where I sat would have done that, so I stayed sat with my cousin and her friends.  Fizz was fabulous, she was so calm and took all the noises and light changes in her stride, not letting it bother her at all.

In the evening, we returned to EventCity for a dinner and awards ceremony.  I though I would be OK, I though that I now knew the venue and would be OK.  I had realised in the 2 hours that we had left the venue for, that the room had changed, the big round tables were still in place, but upon our return they were dressed in white linen cloths, fully dressed with red, white and blue balloons.  The large screens were in place also, but now decorated with the same colours, there was now also a checkered dance floor and the lighting was much dimmer.

Dressed to match the colours, as advised on the invitation I found a seat with my roomy and sat down to enjoy the show.  I had preordered drinks, that she kindly collected from the bar, we had a fabulous time, laughing, chatting and watching the awards ceremony; that saw my cousins husband won first prize of £10,000 !!!

The food was interesting and incredibly difficult….. Apparently it looked very pretty, but served on white plates with dim lights and light coloured food, it was a bit of a struggle for a VIP like me !

I survived though, my anxiety didn’t get the better of me, I had a pretty good time and I am now going to be giving away my inner turmoils of the weekend to those who were with me and will hopefully be reading this.


 

 

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