Tag Archive for Molly Watt Trust

My 10 ‘MUST HAVES’

Everyone has their own ‘must haves’ or ‘can’t live without’ items.  And maybe mine aren’t that dissimilar, I have very little specialised kit to cope day-to-day.

In no particular order, here are my 10 MUST HAVES:

  1. One Touch Kettle
  2. iPhone
  3. Apple Watch
  4. Compact Dome magnifier
  5. Wrap-Around Polarised Sun Glasses
  6. Power pack
  7. Amplicomms Amplified Bluetooth Neck-loop
  8. Notepad/Pen
  9. Book
  10. Dog Bowl

ONE:  One Touch Kettle:  I like most can’t start my day without a cuppa.  My cuppa of choice is Herbalife Thermogenic Peach Tea; and although there are fantastic gadgets like liquid level indicators and tipping support for enabling VIs to pour a normal kettle, my kettle isn’t a specialist bit of kit.  It is simply a water saving, energy efficient way of pouring just one cup of water at a time.  I don’t even need to lift it.  I simply set the cup size (all my mugs are large-so this is easy) press the button and when the water has heated, the water is dispensed automatically.  With no risk to me….. This also means it is safe for my children to make them or me a cuppa (although this novelty has really caught on yet!)

TWO:  iPhone:  Apart from the ‘usual’ needs for a smart phone to call, text and access maps; my iPhone is an AMAZING piece of accessible tech.  With the standard, ‘Notes’ ‘camera’ ‘Magnifier’ ‘Siri’ in addition to the ‘added at source accessibility features my phone is fully accessible’.  It is more than ‘just a phone’ it is a Canera, A CCTV Reader, a pocket sized PA, with the addition of recent apps such as ‘See Al’ ‘Big Spender’ ‘Station Master’ I have all the information I could possibly need at my finger tips means that nothing is ever far away.

THREE:  Apple Watch:  Just as my phone my Apple watch is an extension of the support I gain from Mac based products.  And actually my increased feeling of safety that my watch offers me, helps me to feel more confident in my surroundings.  With the use of haptics I can set a route on my phone that then gives instructions through vibrations on my wrist.  I have my watch set to enable me to zoom in on the screen, to read and send messages and even answer calls.  In addition to making contactless payments enabling me to keep my phone and purse both safely kept in my bag.

FOUR:  Compact Dome Magnifier:  This is my bewest piece of ‘kit’ that I actually received from the LVC (low vision clinic) at Moorfields Hospital recently.  It is a small Perspex domed magnifier that gives 2.5 magnification, which in the scheme of things isn’t much, but with a flat base and a domed top it enables the light to be increased and this has just as much importance to me as the magnification.

FIVE:  Wrap-Around Polarised Sun Glasses:  To protect my eyes from bright sunshine and glare. (Non-prescription)

SIX:  Power pack:  So that I always have a back up should I be using a lot of the apps on my phone and therefore depleting battery life.  As my phone running out is so much more than just ‘not being able to make a call’

SEVEN:  Amplicomms Amplified Bluetooth Neck-loop:  THIS IS a specialist piece of kit, this works with my hearing aids to support me.  I can stream calls direct to my ears (which works brilliantly for guiding from the ground when I climb)  I can listen to music or audiobooks (as I previously had done before hearing aids)  I can also use the amplification button on the front to enable me to hear a person stood in front of me in a loud, busy environment.  Or tune into a local ‘loop’ connection what is being said clearer and directly into my ears.

EIGHT: Notepad/Pen:  Because sometimes I like to jot down ideas for blogs or make notes and sometimes I like to not use tech.

NINE:  Book:  Just like the notepad, I like to just do the simple things, to enjoy escaping from the world for a few moments (after all with my magnifier and the right lighting, I can still read)

TEN:  Dog Bowl:  clearly this one isn’t for me, but with my faithful guiding girl I need to ensure that I can meet her needs and ensure that just like me, she is hydrated.

So, these are my lists.  And at times I will add other items to them and other times I may not include them all.  But I do start each day with a cuppa and I never leave home without my phone or watch (which probably isn’t any different to any other person in today’s society)  I am sure if you asked another VI they may have different items they consider important.

I just wanted to share with you mine.

i hope you have enjoyed.

When Molly and Chris gave a Masterclass

Image of Members of the group sat around a large table with phones, iPads and other tech sat on the table with numerous cups of tea, coffee and water with Molly stood at the head of the table showing her iPad:

Would you think of a pair of glasses as a mobility aid?

When you see an item every day and used by everyone then it becomes ‘the norm’ and not seen as an aid to support someone with a disability.

There are many products that are designed to support those with disabilities, these include glasses, hearing aids, walking sticks, wheelchairs and even other everyday products like iPhones and iPads.

It may not seem like it to a person who has no sensory or motor disabilities, yet all apple products were designed with accessibility and intergration as their base principle.

There are obviously other computer operating systems, programmes and technologies available.  But as a Mac (made famous in a Mitchell & Webb sketch) which I have been ever since I studied at university; way back when Apple Macintosh was for everything design and Windows was for everything administrative.

I have spoken before of my liking for Apple products, and in this I am not alone.  Molly from The Molly Watt Trust is a big believer and user of Apple products, her charity have also helped to support and fund those with Ushers Syndrome by funding an Apple Watch programme as she herself had found its features so very beneficial.

As part of an Ushers Social and awareness weekend (The Weekend that almost wasn’t) Molly was going to give a presentation similar to that that she gives to large companies about accessibility and awareness.

Her work as a Keynote speaker and accessibility advisor sees her working alongside Chris from Sigma (https://www.wearesigma.com/) Among others.

Molly explained the way in which she made use of the accessibility on her iPad.  She spoke of the obvious ‘voice-over’ and how she didn’t use it, how she found ‘zoom’ and ‘speak screen’ more neneficial to her.

She spoke of how you could set you home button triple click to bring you a list of accessibility options.  Including how to use your camera as a magnifier.

These little ‘nuggets’ of information were some that I was aware of and some that I wasn’t.

Since the latest iOS update there was also a rather clever new accessibility feature called ‘smart invert’ this is where the screen and text are inverted in the colours used, but the p have photographs are not……. Savi g confusion with colours when looking at images.

Chris spoke of how accessibility is in the every day, how as I said at the start of this post , “ when something is used and seen every day it becomes the ‘norm’” and how the work he does with Sigma and Molly is about making that a reality.

Molly explained how she found “Hey Siri” a great help; although this was when she realised that another piece of technology she was used stopped the others in the room from heading the response.

You see, Molly wears ReSound hearing aids; hearing aids that stream her iPhone and iPad directly and clearly into her ears.  Just as if she were wearing headphones!

Molly’s work has seen her work with ReSound and it is through this work that I have followed her and learnt about the fantastic products that are available.

Molly and the work she does through her company Molly Watt Ltd is paving the way for those with sightless, Ushers and hearing loss.

This masterclass have me some fantastic information to work with, some new connections to talk to and more importantly new friends who enjoy similar struggles to me.

The session was just a snapshot of what Molly and Chris do when talking to big companies, where there is often very rarely anyone with additional needs in the audience.

But it was enough to make me feel confident that accessibility becoming part of ‘the notm’ Could be a reality in the not to far distant future.

The Weekend that almost wasn’t

Those of you who have been following me for some time will know one of my mantra to life is:

Have dog, will travel.

And with this mantra in place and a connection made through the power of Facebook, when a fun social event that would be followed up by an information and tech based learning event popped up; I found myself booking a hotel and myself for an evening with an Amy Whinehouse Tribute act.

The Facebook connection was that with the talented Molly, The founder and inspirational woman behind The Molly Watt Trust, along with the younger company of Molly Watt Ltd.

With my (relitively) recent hearing loss, I had used my ability to connect through Facebook to link with groups that supported those known as ‘deafblind’.

Having made contact with Molly at the beginning of my blogger journey, along with having a guide dog connection with her I had taken more of an interest in the work of The Molly Watt Trust and found myself naturally drawn toward them with my increasing issues around my sight and hearing loss.

So, when this weekend came up to join in on a ‘social’ and learning based opportuity arrived.  I jumped at it.

THE PLANNING COMMENCED……

What type of journey would it take to get from my own home town to Maidenhead?

And from the station to the hotel?

The hotel that was hosting the dinner on the Friday and the Ushers day on the Saturday was on hotels.com, so I booked my room and set about not having to worry about travelling between venues.

The price was right and would save me additional travel; it was all falling into place …..

……. Or so I thought!

I was looking forward to the event and had everything in place, so now it was just a case of picking which shoes to pack to go with my dress.

After all, not having to go out of the hotel other than to allow Fizz to spend meant I could pack the hot pink heels without the worry of walking any great distance in them.  Not because I can’t walk in heels.  Rather I prefer to be in flat comfortable trainers if I am walking in an area I am not aware of, or in the dark, where I find more difficulty than I do if it were daylight.

Come September 15th my case was packed, my train ticket was collected and off with Fizz, we were on our way.

And then came the first of our hurdles…… Reading Railway Station!

This station is something from a futuristic movie; a large metallic, vast and somewhat oversized pedestrian gangway, which is accessed via long escalators (and multipul lifts) to enable you to walk safely away from the trains to any one of the stations many many platforms.

Yet without a clear indicator as to which train leaves from which platform.  And more importantly because I am well aware I may have missed the obvious large screens giving this information I need I couldn’t find any members of staff!

I only managed to find staff on the actual platforms as and when a train arrived.  Not ideal, as some of the staff I found actually arrived and were set to depart with the train….. So couldn’t direct me around the station.

It was ok though, I wasn’t going to let this get to me, I had managed to find Starbucks on my travels around the station, so when I found the platform and train I needed it was time to grab a nice coffee for me and a bowl of water for Fizz while we waited.

We (Fizz and I) arrived at Maidenhead and out came Google Maps.

It was at this point I realised my error.

The Thames Riviera Hotel (where the dinner and information day were occurring) was not The Thames Hotel I had in fact booked my room for the night!

They were so very close, just a short 5 minute walk along The Thames between the two, yet they were very different hotels.

This was when panic started to kick in.

How could I have made such a simple mistake?

How had I got it SO wrong?

A quick message in a Facebook group about the event and I was calmed.  I could do this.  I am a grown woman; who just happens to have an eye condition and hearing condition that may make life a little more of a challenge at times.

But I am strong and independent.  Who just happened to have a blip.  That was all it was…. a simple blip.  I had come so far, the hotel was already paid for, it would be silly to turn around and go home now……. Right?

So, as I said before.  On went Google Maps and off I went.

With hearing aids in place, I had to rely on holding my phone to hear the directions, while trying to keep out of the bright sunshine to roughly follow the blue line.

I didn’t even realise my first error with this.

Maidenhead Railway Station has 2 exits.  And I found myself leaving via the small, unassuming exit.

The second error came when I misheard a direction.

While walking alongside busy traffic I was sure the direction had been to walk forward.  Sadly, it hadn’t.  It had been to turn right.  And by the time I had realised my error, in true Google Maps programming, my route had been recalculated.

A walk that saw me walking along an almost non-existent path beside a dual-carriageway.  Walking into a multi story car park attached to a local Sainsburys store to find a foot bridge to cross the aforementioned carriageway.

A footbridge that landed me by a leisure centre and bowling alley just as the rain started to get heavy.

I bit the bullet, I went into the bowling alley and collected the telephone number for a local taxi.  Upon calling the firm, I explained my location and where I wanted to go, no problem a car could be with me within a few minutes.  So I kindly mention I have my guide dog travelling with me; that was when suddenly a car would not be available for almost forty minutes.

So, I gave up on the idea of a taxi and returned to my trusted phone and four-pawed companion to find the hotel.

This was a journey that took us another twenty-five minutes and a desperate plea to my best friend for help and linking my location on Google Maps to his Google Maps; and an hour after we had left to station to walk the seventeen minutes to the hotel, we arrived.

Both Fizz and I were damp (actually that was an understatement)

The doorman at the hotel instantly took control.

He collected my case and walked us to our room.

He commented on my damp dog (which I instantly apologised for), which he would hear nothing about.  He left us for only a few moments, before returning with an armful of towels.  He explained that these towels were clean, yet had lost their crisp white finish, so were no longer used for the guests……. But would be absolutely perfect to rub down my soggy dog with and give her a comfortable soft bed to dry off on.

This was too much, I managed to thank him before closing the door and collapsing in tears on the floor.  The anxiety of the day was taking its toll. But with a nudge from Fizz (I like to think as her ways of asking if I was ok.) I realised it was all going to be alright.

A conversation with my best friend put my mind at ease regards the hotel I was staying at and the hotel I was set to attend for dinner.  A dinner for which I was going to wear hot pink heels, that I would not feel comfortable walking outside (For the reasons I mentioned above)

What was stopping me wearing my trainers on the walk, with my ‘pretty shoes’ in my bag?  The answer….. Nothing.

This time, I not only looked on Google Maps for the direction, but I used Google Street View to actually walk the route virtually between the two hotels, a very straight five minute walk along the river, passing a park (perfect for spending Fizz) before crossing a large road to get to the hotel.

This time (although I would be walking in ‘twilight’) I was not leaving anything to chance!  Although, I did feel like I was taking my and Fizz’s life in my hands by crossing the road infront of the hotel, a road that was also one of the large bridges across The Thames River.

The rest of the evening passed with a blur of fun, entertainment and enjoyment, of putting faces to names and adding new friends into my life to enrich it.

I did wear my trainers for the walk; quickly changing upon arriving at the RIGHT hotel!  Switching them out again before leaving at the end of the evening.  One of the benefits of going to an event with others who have sight issues, is that such incidents are easier to hide.

I returned to my hotel, for a very comfortable and refreshing sleep, ready to return after breakfast for the chance to chat, chance to learn and more importantly, chance to find support and similarities with others going through their sight and hearing loss journey.

…………………………..

The walk The Riviera Hotel to the railway station was minus the difficulties of the previous day.  I even found the point where I had taken the wrong turn.  The turn that had caused so much anxiety.

Although the train journey home wasn’t without an interesting twist either!  That I found easier to write about at the time and you can read about it in  The day we caught the train

So, for the weekend that could have easily found me returning home, I discovered just how, as a strong independent (somewhat stubborn) woman, I am also human.  I make mistakes, but I also learned I am not to be so hard on myself.

This weekend did do one thing for me; it confirmed that I had to find a way of being able to channel my phone directly to my ears (as if I were able to wear headphones again)  I am still £4,000 away from the ‘ideal’ ReSound hearing aids I am fundraising for.  But there has to be an interim answer, isn’t there?

 

 

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First a gherkin; Next a Cheesegrater !!

September two years ago, I set about climbing The Gherkin (30 St Mary Axe) in the form of a relay climb at Calshot Activity Wall … My climbing partner did it too, he had a harder challenge I feel, as he took it on wearing a blindfold.  Together we set out to climb the 180m (591ft) between us, but having done that within 3 hours, we upped it to challenge ourselves further and finished 5 hours later; just before the wall closed for the night having climbed the height EACH.

It has been an odd time since then, I have trained with my now working guide dog Fizz, moved house and  discovered that my hearing is failing me along with my sight.

My climbing style has changed and these last few months I have found myself thrilled by the enjoyment of competing and moving my climbing forward to include bouldering and  it just top-roping.

This leads me into my next challenge. In December I shall compete in the final heat for the Team GB Paraclimbing team, which is no mean feet, and most definitely not something I would have dreamt was possible just six months ago.  It was through contact with The Molly Watt Trust, a charity that supports those with Ushers Syndrome that I made contact with John Churcher, a fellow climber who has both a visual impairment and a hearing impairment,  who just happens to have been on the GB team for several years.

Molly Watt (an inspirational young woman) has done lots of work with and around raising awareness and support for people with ushers Sydrome and RP (the family that my eye condition belong to)  She is a big believer in technology and has been using for some time Resound Lynx digital hearing aids.  These hearing aids are fully compatible and work with an app on an iPhone to be adjusted, directions and tested.  They also work as headphones to listen to music and with the addition of a small microphone enable her to be hands free to make and take calls.

I am not always so, but I try to look for the positives and I decided that if I was loosing my hearing, if I had to go through all this, then I wanted to do it in the most comfortable and least obtrusive way.  But at just under £5,000 for a pair, that isn’t going to be easy.

My climbing partner and dearest friend Simon set up a crowdfunding page, I wasn’t keen and felt ‘odd’ asking for friends to help me pay for these.

SO…… I have decided to do something to EARN the money from my friends and family, in the form of sponsorship.  And this is where the ‘Cheesegrater’ comes into it.

That is the nickname given to The Leadenhall Building, 122 Leadenhall Street, the 225m (738ft) building that towers over The Gherkin; as is shown here:

Image showing the London Skyline, The cheese-grater is on the Left, with The gherkin on the right and The Lloyd Building in front.

So, the challenge …… To climb this height, all 228m of it, that is a whole 45m MORE than The Gherkin or 147ft in old money!

The tallest straight wall at Calshot is 14m (45ft) meaning that it will take 17 climbs up the wall to complete the equivalent of the buildings height.

Sounds simple when I break it down like that.  But I know I have lots of training ahead of me, and a date to set.  But I hope that you would agree, it is worth a little bit on sponsorship money?

The fundraising page: HelpTeeHear is up and running, so feel free to pop over and have a look, it shows the hearing aids in much more detail.  I would appreciate your support.

 

Sightloss, Technology and Me


Steve Jobs, the founder of Apple believed that technology should be accessible to all.  So, when designing the Apple Mac, MacBook Pro, iPad and even iPhone he included accessibility; features that allowed those with impairments to work and use his products (with a little tweak) the same as everyone else.

For me, it is the ability to magnify and navigate both my phone and iPad with voice over.  A feature that literally single handedley save my sanity on a city break (Manchester madness) back in late 2014.

And has helped to keep me sane pretty much each and every day since.  I believe that I was most definitely born in the right age, the technological age that is!

I have always been a ‘mac’ !! Since studying at university, when Apple Macintosh’s were for all things design and PCs were for all things administrative.

I was also very fortunate to be bought an iPad many years ago (now) but before that, way back when they were originally released, it took me a long time to even consider an iPhone…. It had no key pad, it had no buttons, and it most certainly did not have a little raised dot on the number 5 for me to be able to work out where my fingers where…..

It was only when Nokia removed their navigator phone from the market, that I joined the world of iPhone.

And since then, the world has developed further, there is now the Apple Watch, sadly a product that is out of my price range, but has been used and trailed for the support that it offers for people with sight loss.  A friend, Molly Jane Watt has found it a great advance in technology, especially for her as she has additional sensory loss as a person with usher syndrome, a condition often also known as deafblind. Where in her instance she was born with significant hearing loss and then found her sight deteriorating.  Apple Watch and Molly is where you can read her personal blog, (this is set to open in a new window, so you won’t loose me!)  I wouldn’t have even known where to look to discover some of the fabulous and FULLY ACCESSIBLE features that can come in such a discrete, yet powerful ‘watch’ .

i wouldn’t have had the courage or ability to make it on my own in a city I didn’t know; I Wouldn’t have contemplated making London my ‘city of choice’ when South West Trains have discounted fares were it not for google maps and quirky little apps like Staion Master, developed with parents, those with disabilities and additional needs in mind.  Offering detailed information about each tube station, some quirky facts and even a 3D map with step count and floor plans to make it easier for me to navigate myself and familiarise myself with the stations before even going on them.

Yes, google maps and such apps are available on Android phones, but is this simple triple tap of the home button available to make my phone accessible for me?  A feature that can be set up for anyone of the accessibility features, be that sight loss, hearing loss, conflictive loss or even setting up assisted touch.

Me and my iPhone are inseparable now, but not because of emails or Facebook or even now Pokémon Go (which I have absolutely no understanding of) but for making and receiving calls, for typing and listening to text message and most importantly for giving me clear, instructions on my location, my ways to get from where I am to where I want to go and even recalculating such a route, should I miss a turning or get myself confused.

 

 

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