Tag Archive for blurred vision

Would you be my eyes?

Watching a film earlier today with an additional audio descript soundtrack; my son asked me

What does blue look like if you can’t see?

A question that made me think, I asked him what he thinks of when he thinks of the colour blue, to me it is the sky, the sea and swimming pools.

But mum, what if you had never seen before? What would blue look like?

And so I decided to write this post, I couldn’t answer my sons questions; but I have told him I will, I just need to do a little research first !!

For as long as the written word has existed there have been ways of evoking images from it.

Abjectives, Verbs, Nouns, connotation, yet these all rely on you knowing what such objects look like. In my research of this subject I have found something, something that was buried at the back of my brain with all of my other Secondary Educational learnings;  Pathetic fallacy – where the weather in the story or written word mirrors the emotion of the scene or the people in it. For example, when it is very hot the characters are agitated or when it is foggy, mystery is evoked. This is used to adds atmosphere to the writing and gives clues to the reader as to what is to come, especially if the weather is described before the event.  Just as many horror movies occur on dark stormy nights.

Do you need to know what weather looks like to understand it?

No, as someone who enjoys every type of weather and the changing seasons this is one element of life that I can use my other senses to understand.  Weather can be truly ‘FELT’ the hot sun on my skin, the drizzly rain, the north-easterly breeze.  Fog comes with the additional sounds of fog horns (living on this coast these can be heard miles in land) Mist gives a dampness to the air that isn’t present when it rains, morning dew has a smell to it, a storm too can have its very own smell and it’s not just thunder that makes a noise.

Weather can’t explain colour or shape though, although it works very well for emotion.

So, I am back at the beginning.

How would you describe the colour blue?  Without using the word, what does blue look like?

I have had sight and I have been fortunate to be able to see and remember colours, images, items.

Even though now my perception of colour is greatly altered, I can only really see the difference between orange and red when they are together and everything I see has a kind of haze or veil over it, so isn’t as vivid or true as it once were.

My hunt for answering my sons questions will continue, but for now; humour me?

Please reply to this blog post with your description of the colour blue.

No judgement will be passed, no humiliation with be sort.  Just an intriguing mind looking for help.

Thank You x

Envious of the mundane

Sat waiting for a friend to arrive and watching (as best I can) the people coming and going with their shopping.

And a very mundane task struck me.  People were walking with shopping bags in both hands.  Sounds rediculous, but in that small insignificant moment I became upset.

And the reason for it?  The realisation that from now and forever I will always walk with one hand full; as I will either be holding a long cane,  a guide dog harness or onto another person’s arm.

It sounds silly, but having to consider what you are buying when you go out, to either contain it in a back pack or worst case over my shoulder.  It is very difficult with Fizz to have a bag in my right hand, she works off of tap que’s and a gentle reminder from having her lead in my right hand at times.

I guess for now I shall just add it to the list of ‘no longer possible’ and carry on by focussing on the ‘can do’ list.

A little over SIXTEEN climbs isn’t THAT much!

… In one day, with each of those climbs topping out at 14m, doesn’t make a 225m climb sound TOO difficult, does it?

Or is it wishful thinking on my part?

Either way, there is no backing out now.  The posters have been printed, the wall booked and my climbing partner (in crime) has agreed.

So, on May 3rd I shall be climbing the equivalent height of The Cheesegrater; otherwise known as The Leadenhall Building, the 225m office building that towers over its closest neighbour (and another building who’s height I have climbed) The Gherkin, 30 St Mary’s Axe.

Time to ‘earn’ my hearing aids.

Poster reading "Climbing a cheesgrater, having conquered a Gherkin."

If you would like to show your support, you can donate HERE

Crowdfunding and me

So, it would appear crowdfunding as aposed to charity fundraising comes with a limit… Not a monetary limit, rather a time limit; of just 120 days !

So having been keen and set up a page (as detailed in my previous posts) we have had to change the name slightly and create a new page.

The £95 that was raised on the original page is being moved over and the link for the new one is:

https://www.justgiving.com/crowdfunding/HelpTinkHear

so, the 120 day counter has been reset and from today we have 3 months to raise this.  So, even if it is just £1, if you can help it would be greatly appreciated.

A very British problem ….


Is politeness.

Have just had a friend call me and apologise, it was lovely to speak with her, however I was a little confused.

She was all flustered and sounded upset, I initially thought she was phoning about her mum who was very sick and that it was bad news.

So it took a few moments…. Then again she apologised, so this time I asked her why.  Her answer;

Because I drove past you in my car going the opposite way and I waved to  you.

I couldn’t help but chuckle at this and said I hadn’t noticed her, so surely I should be the one apologising.  No, no; she continued.  She had spent the rest of her drive chastising herself for it, she wanted to call me the moment she got home to apologise for being so stupid.

By this point she was getting upset again and I struggled to calm her down.  I explained it wasn’t stupid and the gesture was lovely.  I explained that I wouldn’t have seen her, so apologised for not responding.

We both laughed about it and then she said the words, the words I have heard many many times before;

I just didn’t think, because you don’t look blind.

To this I laughed and again, she apologised.  Not that there was any need to, app of my friends know that I do not want to be treated differently, that if I need their help I will ask, so why wouldn’t she have waved to me while in her car?  She would do exactly the same to her other friends.

We talked about how I wasn’t offended by her comment, that I knew she hadn’t meant it as a bad thing.

We had a good giggle about how she would walk past me in the street and wave without me even noticing her.

it is not that I am ignoring or snubbing her, but if she is t speaking I wouldn’t be able to tell who it is.  And having spoken with total strangers before be chase they have waved at someone behind me!!  It is a situation I can relate to.

The lengths I go to for a swim…

Last weeks climb is nothing in comparison to today’s challenge.

Today though was a very different type of challenge, this one was more of an anxiety, need for preparation and gaining some control over a situation.

I explain my WHY in What does ……  Today was one of those days; the kind of day where something out of my control was happening, something I couldn’t hide away from and something I didn’t want to hide from.

Because if I did, I would be disappointing and letting my son down.

So, time for a plan…..

My son was invited to a swim party!  A party where I was required to be in the water with him, something we had done before…. But never like this!

This was different, it was in a pool I had never been to, it was in a party environment, so I didn’t know if there would be lights, music or inflatables.  Oh and it was with many of the mums and dads from the school playground!

I set to work, I had a plan…. I was not going to let my son down, I WAS NOT going to let his friend and her family down by bailing out (I have paid for numerous birthday parties and know just how much they cost)

The pool and leisure centre was one that I had actually used before….. All be it 19 Years ago, before it was fully refurbished and renovated though.

This was a positive though …. The wonders of the Internet and EVERYTHING being online I was able to find a floor plan of the new building, a ‘street view’ of the exterior and images from the centres website to put together enough information to make me feel like I knew where I was going.  A virtual walk through if you like.

Then came my next worry, when in the pool, would I be able to see my son? Short answer is obvious….. No!

I didn’t want to ask another parent to look after him, I wanted to enjoy the party with him, but without keeping him all to myself and stopping him playing with his friends.

So, with his help I got from the changing rooms (where my cane was locked away) and into the pool.  I headed for a space at the side as to not get in anyone’s way.

I initially heard him playing, but soon the noise increased and it was hard to make him out.

A casual  “Hey, is Lawremce playing nicely?”  Gave me a conversation starter to find out roughly where he was in the pool, so I could focus in.  It was then a friend and fellow school mum said that she was keeping a look out for him as she knew I would find it tricky.  And as he was playing with her son it wasn’t difficult !!

Lawrence is a confident paddler, the party was in the training pool and I wanted him to enjoy his time at the party, hence another WHY I had to be there…. Knowing that everyone in the pool was known by the party hosts enabled me to relax my fear of stranger danger.

At one point. He came over to me and asked if I wanted to play, we had a real laugh, he was guiding me, without guiding me (if that makes any sense)

The one hour swim part of the party was over too soon and not only had Lawrence had a fabulous time, I too had had the chance to relax and enjoy the party fun.

Please take a moment to answer in the comments below; a few little question for me…

1. Would you, previously have thought this was a bit obsessive?

2.  Would you fear the opinion of your peers if you asked for support?


 

What does depression look like?

Depression is a ‘hidden’ disability.  And yes it is a disability, anyone who has ever suffered with it, medicated or not will explain how on a ‘low’ day, even getting up to go to the loo is unbearable. Therefore, disabling….

So, if depression is a hidden disability; what does it look like?

it looks like this ……

Headshot of me, my hair is down, I am smiling and am chewing on the end of my glasses leg

Yup, it looks like me!

I don’t often put up the bits about me, but my depression is part of my sight loss, it is part of me and it isn’t something that can be fixed quickly with medication and ‘telling someone how you feel’.

As a trainee counsellor I more than most understand where my depression stems from and it isn’t just one thing, it is a lot of little things, some from my past, many of my present and also fears of my future.

Just because I know the WHY, doesn’t me I can fix it.  Depression is partly an imbalance of chemicals and to support me I take medication, but this isn’t the cure.

Just like knowing how your car works; it doesn’t mean you would know how to fix it if it broke….. I am not finished with my training yet, a good counsellor NEVER is.

We don’t always know what is going on on the inside, a reminder to be kind and understanding.  What may seem protective, controlling or even shying away may have a hidden meaning.

I wanted to share this, I do all I can to smile and ‘put a brave face on it’ but it doesn’t always work, also I have a really annoying best friend who knows me TOOOOOOOO well and he won’t always let me hide away.

Fun with Fizz

Today we (me & Fizz) found ourselves faced with a very different challenge.

Our local coop currently has one of its outer shutters down, so we have a slightly odd turn at the top of the steps by the door.  The door is set at a 45* degree angle to the corner of the building, meaning that when both shutters are down, the building looks square, yet with them both open, you can access from either side through the same entrance. (With one down, we have to walk around to the other, which isn’t at all an issue of difficult to do)

So, we did the turn & Fizz stopped dead and sat down.  This is a very odd thing for her to do.

She doesn’t just sit down like this if there is an obstacle, if there were an obstacle she would remain standing and then guide me around.  If she couldn’t guide me around it, she would turn me around to indicate the way was blocked.

Today she just sat, nothing would move her!

I focused in on a bull dog type dog sat by the railings a little way up, it’s tail was wagging and it wasn’t barking.

This is normally all the invitation Fizz would need to rush me over to say hello; yet she still sat.  So it wasn’t the dog!
Maybe it was a bike laid on the ground, I scanned but saw nothing….

A man came out the shop but before I could ask him, he rushed past and away.

Curious !!
Then out came a lady with a trolley and my mystery was solved

sorry dear, my cat has come out for a walk with me and my dog, he is sitting between you and the door.

So I scanned, I was able to work out another animal, about the same size as the bull dog and also similar colouring.

It was a cat!

It was a very HUGE cat, and he was happily sitting licking his paw with his tail wagging, just like the dog !!
Knowing now the situation I asked Fizz to walk on; nothing!

She did move eventually, but only then cower behind me until the cat had walked past !!

My clever.  Highly trained.  Intelligent. Problem solving guide dog is officially a WIMP.

Should you ever go back?

What is it they say?

The past is just a memory and not a place to visit or change:

While traveling on this journey of sight loss I have stopped myself from ‘going back’ to many places, places I loved before my sight deteriorated, places like Nottingham; that I called home for three years, where I studied for my degree and more memorably; where I first encountered a real life police horse (but that is another story!)

I haven’t gone back, even though as I was leaving university the city was in the final stages of having its tram installed, so even without sight loss I know that it would look very different from the way it looked 13 Years ago, but with my sight changing so much in that time, I am scared.

Some would say I am very ‘lucky’ and ‘fortunate’ that my sight has reduced gradually and in such a way that I find myself adjusting to it on a daily basis and as such I haven’t  ‘noticed’ it so much.

I’m not sure I would call it luck or fortune …..

Especially when I go back, back to places of my past.  This is when I am able to see the differences, especially in those place where I can no longer ACTUALLY see.

Yesterday I caught myself in just such a moment.  Not in a physical place, but rather while watching an old movie.

Not an old movie as in black and white, or set in the Wild West, a movie that is now 18 years old, (even idiot realise it was not THAT OLD!) a movie that; as a book loving romantic I could recite pretty much word for word.  And more importantly (for me at least) and to help you understand its significance a film that was released Pre-Audio Descript !!

A film that until I thought about it, I probably hadn’t seen in the last 10 years, the very same ten years that I noticed my sight getting worse.

It isn’t one of The Great films of all time, no it is a silly, soppy, romantic comedy with Tom Hanks and Meg Ryan.

A film that’s opening soundtrack is a computer connecting to a wired Internet connection !

yup, you may have guessed, The film was You’ve Got Mail.

The movie that found me crying my heart out, the movie that got me realising that even holding my iPad up to within an inch of my face, I could no longer make out the little details.

The little details like the lettering on the shop front, or the newspaper headlines or more importantly in the final scene, when they kiss, it just a jumbled mess of colours, no facial details, no contrast between them and the background in the scene.

And all those things about that I have described above are totally irrational, ridiculous ‘third-world’ issues and hold no bearing on my life today

It is JUST an old film.

It is JUST a silly teenagers memories of ideals.

And yet, it is JUST a smack in the face moment of recognition that I have actually lost so much.

 

 

Sightloss, Technology and Me


Steve Jobs, the founder of Apple believed that technology should be accessible to all.  So, when designing the Apple Mac, MacBook Pro, iPad and even iPhone he included accessibility; features that allowed those with impairments to work and use his products (with a little tweak) the same as everyone else.

For me, it is the ability to magnify and navigate both my phone and iPad with voice over.  A feature that literally single handedley save my sanity on a city break (Manchester madness) back in late 2014.

And has helped to keep me sane pretty much each and every day since.  I believe that I was most definitely born in the right age, the technological age that is!

I have always been a ‘mac’ !! Since studying at university, when Apple Macintosh’s were for all things design and PCs were for all things administrative.

I was also very fortunate to be bought an iPad many years ago (now) but before that, way back when they were originally released, it took me a long time to even consider an iPhone…. It had no key pad, it had no buttons, and it most certainly did not have a little raised dot on the number 5 for me to be able to work out where my fingers where…..

It was only when Nokia removed their navigator phone from the market, that I joined the world of iPhone.

And since then, the world has developed further, there is now the Apple Watch, sadly a product that is out of my price range, but has been used and trailed for the support that it offers for people with sight loss.  A friend, Molly Jane Watt has found it a great advance in technology, especially for her as she has additional sensory loss as a person with usher syndrome, a condition often also known as deafblind. Where in her instance she was born with significant hearing loss and then found her sight deteriorating.  Apple Watch and Molly is where you can read her personal blog, (this is set to open in a new window, so you won’t loose me!)  I wouldn’t have even known where to look to discover some of the fabulous and FULLY ACCESSIBLE features that can come in such a discrete, yet powerful ‘watch’ .

i wouldn’t have had the courage or ability to make it on my own in a city I didn’t know; I Wouldn’t have contemplated making London my ‘city of choice’ when South West Trains have discounted fares were it not for google maps and quirky little apps like Staion Master, developed with parents, those with disabilities and additional needs in mind.  Offering detailed information about each tube station, some quirky facts and even a 3D map with step count and floor plans to make it easier for me to navigate myself and familiarise myself with the stations before even going on them.

Yes, google maps and such apps are available on Android phones, but is this simple triple tap of the home button available to make my phone accessible for me?  A feature that can be set up for anyone of the accessibility features, be that sight loss, hearing loss, conflictive loss or even setting up assisted touch.

Me and my iPhone are inseparable now, but not because of emails or Facebook or even now Pokémon Go (which I have absolutely no understanding of) but for making and receiving calls, for typing and listening to text message and most importantly for giving me clear, instructions on my location, my ways to get from where I am to where I want to go and even recalculating such a route, should I miss a turning or get myself confused.

 

 

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