A voice for radio

Today marks one week before the Guide Dogs award ceremony.  Emails about articles have come in.  As a guide dog owner, I see myself as an ambassador for guide dogs, as a volunteer I see myself as someone who is able to raise awareness of what a guide dog does, including all the bits they don’t tell you about in training.

So, when the email came in from my local mobility office about taking part in a radio interview, I bit back the nerves and agreed.

That was a few days ago….. Today I woke with a stinking cold and an incredibly nervous tummy.

 

Today, me and Vicky went along to the studios of BBC Solent in Southamptom.  Today I took part in my first ever live interview on Radio……

And it was exhilarating !!

I had the support of Katie from the Southampton guide dog team.

Here it is, the interview.

http://www.bbc.co.uk/programmes/p02ddl21

Life Changing Award

Every year Guide Dogs celebrate special partnerships with their annual awards.  They ask people to nominate special partnerships in one of 2 categories, life changing and beyond the call of duty.

i was lucky to hear that my gorgeous girl had not only been nominates in the life changing catagory.  But she was a finalist in the catagory and as such we have been invited to the annual gala dinner in December.

Which is now fast approaching…..

Earlier this week we had a small article, thought you might enjoy the read:

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Although, she is much more than my ‘Merry Mutt’ !!

Watch this space … Rumour has it we have a radio interview to do !! EEK

Creative SparKs are Flying

Although I am only just writing about this, the things I am about to share with you actually started just over 18 months ago.  But it has taken this time to get the project to where it needs to be.

A friend of mine is a magician, children’s’ entertainer and balloon artist.  A role that he has played out for many years before I even knew him.  Many of his clients and party gig’s he got through word of mouth and his website and business card.  Both of which he admitted didn’t show his true personality.

He is known in the business as sparkey…..  A play on his main profession and surname, but with no definition between the two parts.

He mentioned that he was trying to redesign his image and website, to enable him to move forward in his role.  This is where my creative brain kicked in  And I asked him if he would mind me having a play around with his ideas.

So, I started with my brief and his name….. And off I went.

First things first, his name….. I wasn’t going to change it, but I did ‘alter’ it a bit.

So sparkey became SparKey.

And the fun really started to begin.

I am not going to bore you all with the sleepless nights and crazy ideas that flowed (due to me suffering with insomnia, not due to the stress of the brief!)  But I took the initial idea of a ‘burnt out clown’ and gave him The SparKey personality.

 

The brief was to work in fun, laughter, magic and balloon modelling into a single character.  The balloon magic was a challenge, although it didn’t need to have been, I was missing one key feature of the package.  SparKey always made and wore a 3 coloured balloon made top-hat.

The magic was simple with a traditional black and white magic wand.

The fun came in the form of 3 iconic metallic green juggling clubs that SparKey used within many of his shows from the very beginning.

The fun, from his oversized green and blue clown shoes.

But how to portray the laughter?

That took more work, that took many a drawing being scrunched up on the kitchen floor, over flowing the waste paper basket at the kitchen table.  It turned me into, what to appear to others, unaware of the project….. A First Class Stalker.

Several hundred photographs, videos and observations of the man behind SparKey.

As the time went on, my sight went away.  Graphics was part of my degree, part of my soul and a brief like this wouldn’t have taken me a quarter of the time before.  This with it, bought its own demons, its own dark moments and at the same time, its own moments of creativity that may not have come, had the brief been completed in a quicker time.

One part of the design was really challenging, it was the key to bringing the whole design and character together.  It was the laughter, the smile, the energy that came through from the man behind the costume that was SparKey.

At one point, I struggled to distinguish shadows and laughter lines on his face, so I even spent time, feeling his face.  Touching his mouth and sketching as I felt the ever so slight small lines that made the smile.  The smile that made SparKey the character come to life and also the smile, that on many a draft occasion made the character look more like a psychopath than a childrens’ entertainer!

Tweaks and re-draws filled yet more waste paper baskets.  Colours and rendering took time.  Then, just before Christmas 2013 SparKey was born, he wasn’t perfect…. But that was part of his charm, part of his fun and part of the cheeky personality of the man that lay behind the image.

The man that is Simon Key. A.K.A SparKey.

 

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Then came the colour and the logo to match.

 

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All in all not bad for a VIP like me !!!

The images above are the ‘computer tweaked’ images of my hand drawings. That have now been formed to make SparKey’s business cards and website. A website that you can find at www.thesparkeyshow.co.uk

 

(copyright 2014)

Fabulous Five Years

An image of Tee and Vicky (Tees Guide Dog)Today marks Five Fabulous Years since I was signed off as having qualified with Vicky, my guide dog.  In that time, she has given me so very much, at a time of sadness, sorrow and increasing darkness, she has given me love, support, companionship and above all else….. Independance.

Without her guid are readding ing me, protecting me, showing me the way, I honestly feel that the darkness would have taken over, and it is propable that I may not even be here today to tell you these tales.

I know you, you are reading this thinking “she has sightloss, its not terminal.”  Which yes is true, but with my sightloss, came depression.  And if not treated, it can become all consuming and that can be a terminal illness.

I’m not here to talk of that though, I am here to talk about how much I have gotten from my gorgeous guiding girl.

She is a dog, YES.  But actually, she is a walking, breathing, living mobility aid.

Without her by my side, I wouldn’t be leaving the house.  I wuldn’t be able to take the kids to the park, I most deinately wouldn’t be contemplating returning to Uni next year.

As my guideing star, a friend has nominated Vicky for an award with Guide Dogs.  She is in the final 3 for the ‘life changing award’ to be decided at the annal Guide Dog Gala Dinner, to be held in December in London.

Me and Vicky have been invited to the awards ceremony, which if she wins her catagory, she will also be put forward to be crowed as Guide Dog of the Year.

I am very excited, to win this award wold be fabulous recognition of all that she has done for me.  I already know all of this, so if the judges don’t pick her, it won’t change my ove for her and my appreciation for having her by my side for the past five years.

Sticks & Stones may break my bones, but names will stay with me

People tell me to ignore the rude comments, the horrible comments, the meanness of others.  Most of the time I can do this, pass off their comments and words…. They are people who don’t know me, people I don’t care about and will most probably never see again.  THANKFULLY!

Every once in a while someone who I do care about, someone who I thought cared about me, says something.  A few words that have real hurt and pain behind them, words that make me question myself, question my ability to be a better person, question why I do try as hard as I do just to live the way I do.

These are people that I thought loved me, people who have seen the changes I have gone through, the struggles I have had…..

Yet they have short memories, they question me about MY DISABILITY, the genuineness of it.

People who don’t ‘Believe’ it can be that bad!  Because if it were as bad as I am telling them, then how do I manage to go to the gym? How do I manage to look after my children? How do I still read? Write? Swim? Cycle?

And how can I sit back while they struggle to earn a wage that barely covers the bills and just expect hard working tax payers to foot the bill for me ‘NOT WANTING TO DO ANYTHING’

….. ADDITION …..

I just want to stand on my chair in a crowded place and scream, ” I DO WANT TO DO THINGS, I want to be able to SEE”

I also have some ‘usable’ vision, which I use as much as I can, bu if I over do things then I pay, I struggle with bad headaches, exhaustion, yet an inability to close my eyes for sleep as they get very dry.  So I limit myself.  As I am sure I have said before, I take full advantage of technology, my phone, computer and free-view box for my tv talks to me.

I use my ‘sight’ to enjoy time with my childen, to help with homework, to cook nice meals, to shop for myself, to stay independant.  I use my time when the children are at school to volunteer, to help others, to give back for all the help and support that I have been given.

I oringinally published this post when I was in a dark place, things are still pretty grey at the moment, but re-reading it, I have realised that I do not need to justify how I spend my time, I do not need to justify why I recieve disability benefits.  I would much rather not ‘need’ this support.  Because as any person with a disability or illness that limits their capabilities will tell you, we/they would much rather be fit, healthy an have no disability…. Even if that meant working a 60 hour week.

 

 

 

 

 

An open letter to Richard Branson

OPEN LETTER

 

Sir. Richard Branson,

Founder of The Virgin Group.

I am writing this open letter to make you and everyone else aware of the service that I have received.  A service that was far beyond my own expectations and as such has enabled me to feel confident and less anxious about a journey I will soon be taking.

My name is Theresa, I have a severe sight impairment and as such travel with my partner in crime, my guide dog Vicky.  It is her (Vicky) that has enabled me to become a strong-willed, independent and adventurous young woman in the five years that she has been walking by my side.  We travel everywhere together, she is my sight, my strength and my beautiful girl.

At the beginning of November, I will be travelling to Manchester, with Vicky by my side.  I am looking forward to this exciting adventure.  It is a real break for me, I have spent my time exploring online what to do and where to go.  The hotel is booked, as is the train.

And this is the reason for my letter.

I booked my ticket online on the virgin website, I was impressed that when reserving my seat I could choose the direction I sat in, whether I sat at a table or in an airline style seat and even, probably the most important thing for a four and half hour journey, I could request to be seated with a power socket!  (the little things that make for a more enjoyable journey)

All the relevant boxes were ticked, times chosen and seats reserved.  The confirmation email came through and I was very happy.

A friend then asked in a joke “Will Vicky be able to find the correct carriage and seat?”  Good point, no she can’t!  It was something that hadn’t even crossed my mind.  Although I often book my tickets in advance, I have never reserved my seat when travelling alone.  I knew that there is assistance for disabled passengers, so back online I went.  On the virgin website was the details for passenger assist.  Which considering it was a Sunday lunchtime, I was surprised to find that the telephone number to discuss my needs was open.

I gave it a ring, and spoke with a very nice man, who talked me through the help he could offer.  I explained that I would be travelling with my guide dog, so needed no assistance around the station, but just a bit of help to find my reserved seat on the train.

It was then that he asked for my booking details, so that he could cancel my reserved seats.  I will admit for about 10 seconds (which felt much longer) I panicked.  He explained he was doing this, so that he would reserve a more appropriate seat, along with reserving a seat for my guide dog.  I told him that I couldn’t afford a seat for her, as she wold sit at my feet under my seat.

Thankfully he quickly confirmed that the seat reservation would not cost me anything, it was ‘standard proceedure’ for anyone travelling with an assistance dog, so that it would allow her  space on the floor to stretch out and enjoy her journey too.

So, the call handler changed my seats, he even explained to me where on the train I would be, where I could download a seating plan for carriages.

He explained to me where to go at the station for my assistance, he even put me on hold briefly while he confirmed this with Southampton Central Station as my train was departing at 05.48 which is before the ticket office opens.

He confirmed all the details with me verbally before sending me an email.  He spent a considerable amount of time on the phone with me, which is why I am unable to tell you his name.

The service I received from the Passenger Assist booking line and the additional thought of allocating floor space for my guide dog has gone a very long way to easing my anxiety about making such a big trip by myself.

So for this, I want to say Thank You.

Yours Sincerely

Theresa Osborne-Bell

(20th October 2014)

Its been a long time

Hello All,

It has been a while, it has been a busy time, it has been a sad time, but it has also been a happy time. It has been a time of challanges, both personal through choice and personal through others makings. This is my blog for me to write down not only the good stuff, but also the different, the difficult and the emotional.

I had shyed away from putting it all down before, but its time to use this blog for the reason it was designed. To allow me to put myself out there…. Some posts (propably most actually) will be written with humour and quirks of my days as a VIP, but some may also be a personal and emotional view into my life, afterall, life can’t always be humour and giggles.

I will publicise my funny tales through my facebook and twitter accounts, the others will be published on my blog, but left for you to find.

So keep popping back and feel free to have a good look around.

As always your comments are very welcome, feel free to be honest, this blog is all me and honest, it is my opinions. as such the opinions are true to me, this does not mean that they may be true to you and that is all good. Feel free to challange my opinions.

Your thoughts and comments will be read, considered and as long as they contain no inapporpriateness or abuse, they will be published on for all to see and add to.

Thank you for reading.

xxT

The Struggle is easing, just a wee bit

So, having bad enough eyes that glasses no longer help other than when I am doing super close up work or reading is taking a lot of getting used to.

I can now leave the house without feeling that I am naked, after all I have been wearing glasses for the last 30 years, so they are kinda a big part of me.

This year though with the fabulous bright summer days I wasn’t actually leaving the house without glasses on, because for the first time I was wearing sunglasses, really nice wrap around sunglasses by Trespass, not fancy in anyway, but very comfortable.  In fact, I have been wearing my sunglasses this week as between the rain showers the sun has been blaring through the clouds.

It is interesting to ‘see’ (excuse the pun) how people treat me differently.  I haven’t been asked if I am a guide dog trainer once!  I have been offered more assistance than ever before and God knows I have needed it!

I have felt more vulnerable than ever, not even being able to see my friend that I know who is stood directly beside me.  I haven’t coped so well with dealing with the frustration that this has caused me.

 

My shopping habits have changed, I am no longer a bargain hunter in stores, nor have I bought any new clothes, it is so hard now. Much more harder than I imagined it would be.

More than I am happy to admit right now.

 

 

One Gherkin wasn’t enough

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WE DID IT !!!!!!!!!!!!!!!

On Wednesday 17th September, me and Simon faced our challenge of climbing the height of The Gherkin. We set out to climb the 180m between us. We felt that this was a realistic challenge to conquer.

 

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How wrong we were……

 

The climb equalled 90m each, on a stretch of wall we both knew well. The climb was for endurance, rather than climb technique. After all, Simon faced a bigger challenge than me. He had to climb blindfolded. I have only ever climbed blind, so I didn’t have that additional element to deal with.

We got 120-odd meters into the climb when we both agreed that it wasn’t enough. We then made to interesting if not slightly bonkers decision to continue climbing, until we had both individually climber 180m.

I say bonkers decision, as we both felt the adrenaline going at that point…. The very same adrenalin that began to wear off at around 300m.  Redbull, Kendal Mint Cake and Dextrose Tablets saw us through the last 60m….. Along with a VERY large amount of finger tape !!!!!

It was an amazing adventure. One that has left a few scars and bruises, but one that has spurred us both on to do something even bigger and even better.

So, having doubled the climb height, we are still pushing forward to ask those who wish to support us to show their support. The Just Giving page is still up and active. As is the ability to send a text donation from your phone.

www.justgiving.com/gherkinblindclimb

OR

TEXT BGCC70 £10 to 70070

 

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Struggling with the change

Last month I got my routine 6 monthly eye test. My prescription has altered, which I knew before going to the opticians. I was struggling to see my phone, without holding it at the end of my nose and looking over the top of my glasses as I could no longer see close-up with them.

The change in my sight wasn’t a big change, but it was a significant one.

The way my eye condition is, with the strength of prescription that I need I can’t have near vision and long vision. I can have ‘reading glasses’ to see things that are close to me, like reading, seeing my children etc. Or I can have distance glasses and be able to watch tv or the kids playing around in the park. But I can’t see anything closer than my arm length away. If I didn’t suffer with LCA or Nystagmus I would be able to wear varifocals. But as I do, I can’t.

With my LCA I am now also unable to adjust easily to different light levels, meaning that I am also unable to adjust between two different prescription glasses, to go from distance to reading lenses.

So I had to make a choice…….

And I chose to see my children, large printed letters and the people that I love. Because on a bright sunny day, I wouldn’t see anyone even with distance lenses!

However, this time at the optician I received the news that I was very close to the limit of what they could do for me with prescription glasses. I am getting to the limit of a difference that having a prescription would make to me.

The other issue I had, is that although my eye’s have only changed ever so slightly in the last six months, it has actually been over two years of ‘ever so slight changes’ since I have been in a position to purchase a new pair of glasses, because before I have even chosen pretty frames, the lenses themselves are in the region of £280 (after allowances)

So, having the money to spend, I bought a new prescription and the frames to sit them in. Two weeks to make them, and additional £100 to reduce the thickness from 9mm to 3mm, I got my new glasses……

And all the ‘slight changes’ have added up to one hell of a dramatic change.

A change that means that on a bright sunny day, I am better protecting my remaining sight with a pair of non-prescription sunglasses than wearing my actual prescription.

My new prescription, although strong for me. Is in-fact the equivalent of a reading glass prescription in the amount of difference that it makes, especially with my distance vision.

So for the first time since I was about 4, I am getting used to not wearing glasses full time. An issue that I am struggling with just a bit.

When I am outside in the glorious sunshine that we are experiencing at the moment, I am comfortable and confident wearing my new sunglasses, but inside is a different story.

At home, right now as I write this I am wearing my glasses, when I at meetings I am wearing my glasses, but when I am in the gym or on the climbing wall, I do not wear my glasses.

And it is not a look or feel that I am getting used to…… Just Yet!