Tag Archive for Tunnel vision

Myth Bust: Blind Girls (and guys) Can Wear Contact Lenses

Just as someone who is severely sight impaired (blind) can and does often wear glasses; they are also able to (sometimes) wear contact lenses.

And why ?

For the same reason anyone else would wear contact lenses…. And for me, wearing contact lenses enables me to wear non-prescription sunglasses; among other reasons. (Vanity induced)

Until I wrote this post, it is part of me that very few know about.

Having had hard contact lenses when my sight was much more complicated as a teenager I did not get on with them.

Yet now with my simpler prescription I have been introduced to the world of soft monthly disposable lenses and for the past month or so I have been trialling them and find them so comfortable and easy to use and wear.

I thought I would write this post because earlier this week I was asked to ‘prove’ that I wore them. (By someone of authority-not just a random stranger)

This found me standing in the middle of a very busy London area, cleaning my hands, then moving and removing one of my lenses.

Which was followed by apologies and a long conversation about assumptions !! (And me getting a little bit told off for being ‘sarcastic’ )

My visual field is now at less than 3% and even with the best lenses I still can’t make out the top line of the eye chart, yet I still wish to make the most of my remaining vision and as I have found the days getting brighter (another part of my sight issue) I find contact lenses with wrap around (non-prescription) sunglasses help me with this.

I guess the point I am trying to make here is that it is the assumptions of others and people’s need for ‘proof’ of disability that needs to change; which is only going to happen by people asking questions (something most adults aren’t good at) and by people having conversations.

Those who know me, know I will happily have these conversations over and over again…. But I am just one person.

Just over there

‘Over there’ is a world of myths and legends, often where ‘that way’ can be found. (Or so I am told)

It’s a place where as someone with a visual impairment upon asking for the location of something I have been directed to MANY times.

“It is a place I have never found !!”

Usually such explanation to a location comes with a wave of a hand or arm, but rarely any eye contact from the person giving the instruction.

Don’t get me wrong, there are times when such directions do come with eye contact, but due to other people or a counter my guide dog is often obscured.

I am more than happy to press the matter and ask for more detailed direction. And thankfully on most occasions it has been easily obtained.

But it reminds me of how we can all become so familiar with our environments that we forget that someone new (with or without sight-loss) may not find it so easy to navigate.

I know people get flustered giving directions; do they give it from their point of view or the person asking?

If it is a shop or business and you are the employee being asked for directions the easiest way to direct someone is to walk them there.

Asking if the person would like to take your arm, explaining to them when you are turning left or right and most importantly when you are walking through a doorway, even if the door is open.

I am thankful that Fizz will fall in behind someone guiding us and simply ‘follow’ but for me I like to have the verbal directions as it means that should the need arise I can find my own way if there is a next time.

A different sport, but just as much of a challenge

This year has been fairly quiet for my climbing.  However I have not been doing nothing with my time.  I have in fact been in training.

Training for a different kind of challenge.  This challenge is to run.  Something I have not done since completing The GSR five years ago.

The reason I haven’t run for so long is that I discovered just after I started to notice my hearing loss that when running at the gym I suffered with motion sickness.

But I have (in secret) been completing my own variation of ‘couch to 5k’  I have even been taking off my Apple Watch as to not alert my friends who I share my activity with aware of my training.

My training has been on a set flat path at the far side of a local leisure centre parkland.

I have not quite manaeged a full 5k to date, but I have discovered that on a flat concrete path I do not suffer with the motion sickness I had suffered on each occasion (I tried several times at different times etc) of a treadmill run.

So, why am I letting you all know my secret?

Well, this Sunday I am attending a race.  A flat course where I will have a guide runner and my children.

This Sunday we will undertake The Poppy Run.

This run is organised to raise money for The Royal British Legion.

Those who have followed me for some time will know how much I love the poppy.  I love what it represents and I am forever grateful to those who have stood up protected our country.

So, along with my children, my guide dog Fizz (who isn’t running in harness, rather joining the other dogs who are welcome to join in the days events) and my friend and guide runner Vicky on Sunday 4th November at 11am we shall stand in silence for 2 minutes before setting off on the 5km course around Southampton Common.

I am doing this for other reasons.

4th November 2018 marks 10 years since I received the news that I would loose all sight and was registered severely sight impaired (blind)

This day is one I wish to celebrate and what better way could I do that then support a fantastic charity and face a personal challenge?

Well, maybe it’s because the girl in me enjoys a bit of bling and I can’t wait to complete the run to receive my poppy medal.

So, dear readers I ask for your support.  As I am sure you are aware this year marks 100 years since the end of the First World War, a war where so many have their lives to enable us to keep our future.

As a family with multiple different surnames we have set up our just giving page as ‘Madhouse Family Poppy Run’  We would love to smash our £100 target.

To donate please click here

Discovering just how independent I can be

This post is probably the wrong way around.  But for me it seems only right that I write this bit first……

Today I am heading home after an amazing week away with my Guiding Girl Fizz.

Today I am realising that although this journey wasn’t the one I had originally planned for, it was the journey I needed to take.

And as much as I almost found myself not taking it …. I am grateful to my own stubborn nature and my ability to plan and organise.

And the fact that I would always have wondered ‘what if?’ Had I not at least tried.

So, try I did and I am so very grateful that I did.

 

…… TO BE CONTINUED

Peaceful Pitlochry

Continued from ….. GETTING MY GEEK ON in Glasgow

The train journey was through rolling hills and beautiful landscapes.

Arriving at Pitlochry a fellow passenger helped me off with my case as there was a pushchair and hold-all in the door; only to have someone take my case on the platform!

All was okay though…. the man taking my case was in fact my cousin who had come to meet me!  I would be spending my time with him and his wife.  He gave me the warmest of welcomes and enveloping hug, easing away all the tensions from galavanting in Glasgow.

Fizz also had a friend, in their dog Honey (although on first impressions they weren’t too keen on each other)

Pitlochry is somewhere I have never been before, but thanks to good olde Google Streetview I felt it was somewhere I would be comfortable.  The high street was made up of a mix of cafes, charity shops and outdoor shops.  The homes were nestled within lush green fields and with numerous whiskey distilleries, long walks and most importantly … FAMILY

A family who opened their home to me. Who cooked me a overly dinner and who walked me via the local golf course to the pub to enjoy a drink or 3 with them and their friends.

After a very comfortable nights sleep we took the dogs out for a walk to Black Spout Wood, a beautiful and refreshing walk with streams for the dogs to splash about in and my first ever encounter of a natural waterfall.

Photograph of small waterfall in the middle of trees and bushes, taken from the waterfall lookout opposite

The waterfall was considerably smaller than than usual, because water levels in the streams were much lower as even in Scotland they have been having a very hot summer.

All before returning for some lunch before embarking on a second walk and whiskey tasting in the afternoon.

Afterall, you can’t come to such a beautiful Burgh without tasting the local produce … Even if that is whiskey and gin!

And it is a whiskey that the store keeper knows so well, with the undertones of banana in one and dark chocolate in another; I must admit that to my untrained nose I could taste the differences in the samples, but not what was explained.  We even sampled some of Pitlochry’s new gin, which I found very enjoyable and easy to drink.

After a few purchases we headed off towards The Pitlochry Dam.  A structure that was planned back in the 1950s, being fully operational in 1962.  You see the dam had (at the time) been part of Scotland’s history as the dam created hydro-electricity that helped to power just under two-thirds of The Highlands energy supply (bearing in mind the in 1960 energy usage was no where near what it was today)

The dam being on the river Tummel also included ‘A fish ladder’ enabling the salmon to move through their migration into the river after the dam.

The visitor centre had been renovated in recent years and for my cousin it was the first time he had visited it, we enjoyed some time looking around and learning the history and impact of the dam.

Photograph taken from the top of the dam looking towards the river tunnel and Loch Faskelly Photograph taken from the top of the fish ladder, showing it move down in stages like the gates on a canal

Photograph taken from ontop of the dam looking down the river and into Pitlochry

Again, the river Tummel and the Dam are showing how deplested the water levels are given the hot weather.  It was very interesting though to find out how important and revelationary this dam was and how even now it continues to support Scotland’s power supplies, although now much of Scotland receives its energy from wind turbines.

Photograph of a plaque within the visitor centre with a quote from one of the civil engineers who helped design the dam

During our walk we encountered the odd shower, but this just created a beautiful sky of blue and grey with the odd black cloud against the lush creeks and earth colours of the hills and trees.

But sadly all too soon, it was time to catch another train.  For the next part of my adventure.  A train journey that saw me returning to Perth before changing to travel on to Dundee.

Dubdee is a city I have visited many MANY many times before, but not for several years.  In fact, the last time I visited was when I went to my Grabs funeral.

But that is another post.

To Be Continued …

 

 

 

 

GETTING MY GEEK ON in Glasgow

Photograph of my gold Starbucks travel mug with the guide book to The Glasgow Science Centre with the SEC Armadillo building behind across the river Clyde.

Continued from … Welcome to Glasgow

After a relaxed evening in the hotel which included a Tai Chi class, a swim and a sauna before a gorgeous dinner, on Wednesday morninf I decided to visit The Glasgow Science Centre before embarking on another train journey deeper into Scotland (you’ll have to read on to find out where)

The Science Centre and adjoining iMax cinema were architecturally interesting buildings even before I walked through the doors.

 

Photograph shows a round ball like building on the left which is Glasgow IMAX with a large screen on the right of the photograph, with a small green area in front of it

Photograph is taken of the rear of the IMAX building where Starbucks sits amongst a glass wall sat beside part of an old dock areaPhotograph of the entrance to The Glasgow Science Museum, shoring what looks like the top half of a letter C shaped building, the glass front of the building sat to the right of the large screen

These building were custom built for purpose and opened to the public in June 2001, with a titanium clad exterior the Science Centre (science mall) with its crescent shaped glazing enables it along with the neighbouring imax to ‘blend in’ with the often grey overcast skies of Glasgow while offering a reflection from the river Clyde.

Set over three floors and including a planetarium and many interactive work station I could understand how it had gained its reputation and place on trip advisor as a ‘MUST SEE’ even though it was a pay for attraction (which many museums are not)

I fell in love with each and every floor.

Although I struggled with a few small issues (like no large print or alternative format maps or voice information on the lifts) I did find a very helpful member of staff who explained the floor levels to me and even explained where the stairs were as they were tucked away as the main traffic was directed towards the large lifts.

One perminant exhibit that I was interested in was ‘A Question of Perception’ that looked at optical illusions, the science behind it and how the human brain helps with this.  In addition to the illusions, I watched the cctv monitors for the centres own ‘wacky salon’ (you can find a video for this on YouTube, but as it is not accessible I have decided against sharing it here)

With interactive exhibitions across the whole centre, including a wonderful planetarium I enjoyed a good couple of hours here and took hundreds of photographs of the different exhibits, of which I will share just one with you.  This is of the ‘perfect triangle’ which from the angle of my photograph looks far from perfect.

Photograph of tabary - A mind blowing sculpture of a three part solid triangle, which is in fact an optical illusion and it is only when you get to within 2 foot of it that you see the sculpture is actulay 3 separate solid four sided rectangular, not actually a triangle at all.

However, too soon it was time for me to go, popping back to the hotel to collect my bags and head off for another train journey.

A train journey that saw me travelling from Exhibition Road to Glasgow Central, to hop on the shuttle bus to Glasgow Queen Street before boarding a train to Perth, where I would then change again (after a quick ‘wee stop’ for Fizz) to travel onto Pitlochry.

A place that could not be further from the hustle and bustle of Glasgow, with a population of just over 2,500 in comparison Glasgows 500,000….. It was a place I really couldn’t wait to escape to.

To be continued…….

All Aboard

Stock photograph of Glasgow Central Station sign

Continued from The start of an adventure… 

With a coffee in hand, along with my suitcase, book bag, handbag and guide dog I soon found the mobility assistance within London Euston Railway station.  My assistance had been pre-booked so at just after 22:00 i was guided to my train.

The man assisting me happily took my case and my book bag and off we went.

It was a very different ‘check-in’ for The Caladonian Sleeper.  It reminded me more of checking in to a flight.

First I checked in and was informed by the staff that I would be upgraded to a berth, they allocated me the ‘accessibile berth’ so that I was directly beside the toilet and just a door away from the lounge car.

The train measured over a quarter of a mile long and I was towards the furthest end.  This is because the train that leaves Euston travels towards Scotland as one train, before splitting; with one part going towards Edinburgh and the other part towards Glasgow.

Photograph is of the side of The Caladonian Sleeper train carriage from the platform

Once onboard the train, my room wasn’t quite ready, so I was seated in the lounge car where I was able to enjoy reading the extensive whiskey menu before I settled for a glass of red wine; before making myself and Fizz comfortable for the night in our berth.

Photograph from the open electronic door on my berth, showing the open and close panel on the left, Fizz sat in front of the single bed which has an orange hand rail and a top bunk bed that is seen at the top of the picturePhotograph is taken from where I sat in the bottom bunk in the berth, showing the width of the bed, with a counter at the end of the bed and the sink with a bottle of water on the side

The bed was comfortable, I took the extra pillows off the top bunk and although I looked at the little ‘sleep pack’ that was sat on the bed, I chose not to make use of the eye mask or ear plugs.  For my first ever sleeper journey I wanted to be as aware of my surroundings as possible.

I plugged my phone and watch in the USB ports, worked out which switch was for the main light and the bed light; popped to the loo again for one last time and tucked in to bed to listen to my audio book all before the train had even left the station.

This was a school girl error as I suddenly felt very aware and awake when the train did start moving.  Especially at the beginning when we were stopping at other London stations (just like a normal train would) so it was not until we were clear of London that I found myself getting comfortable again and drifting off to sleep.

I remember waking several times throughout the night, but there was not a clear reason for it.  It wasn’t until I awoke in a panic when the train seemed to ‘turn off’ that I got a reasonable nights sleep.

My panic awakening was because I felt that we must surely have arrived in Glasgow, although upon reaching my phone I realised I was over an hour early for the arrival time of Glasgow, let alone for the extra thirty minutes I had to vacate my room once we did arrive.

So I took the time to get dressed and raise the blind in my room to let the Scottish scenery in.  I even made myself a Herbalife shake for breakfast and got packed up.

Photograph of the open blind within my birth showing the countryside with the sink and worktop in the foreground

It wasn’t long before we pulled into Glasgow Central Station and the kind staff gave me a bottle of apple juice and informed me that my requested station assistance was ready to guide me from the train to the exit of the station.

It was lovely to walk into a quiet station (being 7:10 on a Tuesday morning). The rail assistance asked me where I was heading and asked if I needed help getting a taxi, I politely informed him that I was going to head to my hotel to drop off my case and enable Fizz to stretch her paws along The River Clyde.

Because thanks to more support on social media and google maps I knew all I had to do was walk toward the river and then along it for 19 minutes to reach my base for the next day and a half.  The Glasgow Crowne Plaza.

TO BE CONTINUED …

Hybrids are great … BUT

…. When your visually impaired even good hearing wouldn’t have helped.

This beautifully hot summer that is killing the grass and creating havoc with everyone’s sleep is also creating issues for us guide dog owners, I am seeing friends arrive at work for 6am and getting taxis home as they must have their dogs with them.  I have been taking Fizz out early morning or late evening.

But I still have things to do.  Appointments to attend and meetings to sit in on.

Today was one such day.

Today’s meeting was at 10am, by which time temperature was already mid-twenties, knowing that I would be travelling home again by lunch.  Fizz was left with daytime tv and a cool house (all my curtains were drawn-the neighbours must thing I am sleeping all day!)

Anyway.  With my faithful hound limited to her work, I too have been limited to how much I have been walking also ….. And it’s starting to annoy me!

So today on my way home after my meeting I decided to get off the bus earlier and walk the 25 minutes home (instead of getting a second bus)

Using my cane I am walking slower, taking more time crossing the road and ‘scanning’ my route more; which is creating eye strain issues as-well.

All was going well, I was even managing to navigate the bins left precariously after the bin-men had done their rounds.

Then before I knew what had happened I felt a sharp pain in my left thigh & hip.  The moments that followed are a bit blurred and also a time that seemed to last for too long.

I must add that I am ok.  I am after all writing my blog about this.

But today I was hit by a car.

It was low speed, the car was reversing off a driveway and as the title suggests….. it was a hybrid so at such low speed wasn’t omitting any sound.

The man driving the car was quickly by my side as I found myself falling down.  I suffered bad bruising and scratches to both my thighs (one from the car, the other from the pavement) and some soreness in my hand where I put it out to push against the car.

No lasting damage and thankfully no damage to my cane or the contents of my bag (which included my iPad) from being on the side of the impact.

Bruises will fade, grazes will heal and for now I won’t be wearing any short shorts! (Although my leg looks pretty colourful!)

But for me, my confidence has been knocked.

This evening as I headed out for another meeting I found myself fearful walking past houses with driveways.  I stopped at each and every one as if it were a road crossing.

I found myself doubting my ability to do this.

I found myself wanting to turn around and go back home….. But I didn’t.  I got the bus into town and sat in the sun with a cold glass of water, pottered about getting some shopping and found myself writing this.

Hybrid cars do have their place and I am very pro them.

However the law in the EU about them having a ‘white noise’ added doesn’t take affect on new built cars until July 2019 and retrospectively added to older models until 2021.  As detailed in many newspaper articles earlier this year.  Such as this one I have included below:

Daily Mail Article May 2018

 

When my disability felt disabling

This weekend I had a real wobble; anxiety, panic, fear and upset all rolled into one.  This weekend didn’t start off very well.

There are times when people say how inspirational or how positive I am, well this weekend I wasn’t any of these things.  In fact I felt like I was being penalised because of my sight and hearing issues. And I just wanted to leave where I was, give up on my plans for the weekend and walk away from it all.

Thankfully I was surrounded by some great friends; who didn’t allow the negativity to get to me, who stepped up and even stepped in to support me and change things around….. And for this I have gratitude.  Because what started out pretty shitty ended up being pretty AMAZING.

This weekend I attended a MAHOOSIVE Herbalife training event called ‘Summer Spectacular’  This training consisted of two days of training, stories and information from not only some of the best in the UK part of Herbalife, but also some of the best from America, France and South Africa.  Men and woman within the business that were not within my immediate reach.

So my ticket for the event was bought, childcare sorted, transport and sleeping arrangements sorted.  I had the support of my amazing team so I knew that both me and Fizz would be ok.

The training was at a venue I hadn’t been to before, but that was ok because an hour or so on google and I had found enough images of the venue to feel that I had a good enough virtual awareness of it to get through.  There was even a Starbucks on site, what more could I ask for?

The venue; The International Conference Centre (ICC) in Birmingham was also only a short ten minute walk from the apartment we were staying in AND there were plenty of grass areas between the two for me to know that Fizz’s needs were catered for also.

Saturday morning came and while my team mates were taking part in a very large ‘Fitclub’  I was able to grab a coffee, get my bearings and feel prepared for the next few days.

We came to entering the training room and a member of staff quickly found me (having the only dog in the building will get you noticed!!)

My team mates explained (because it was too loud for me to hold a conversation) that I would need to be seated near the front with space for both me and Fizz, but not in a direct walk-way as this could put Fizz and others in danger (black dog in a dark venue is a real trip hazard)

So, the staff guided me down the steps of the auditorium and sat me at the front, but with space the side where Fizz would be able to lay out.  Brilliant, a seat was allocated for my team mate too and I thought all was ok.  That was until the music started.  It was not that it was LOUD.  It was the fact that it was coming from a large speaker right beside where Fizz was to be able to rest…. let’s just say, she would have probably been more likely to burst an ear drum than relax.

No trouble I thought my friend and companion  Jenny got the attention of the staff, asked for us to be moved and off we went.

The next seating we were offered would see Fizz sat directly beside the auditorium steps (a major trip hazard)  but as the seating within the venue was fixed in place the staff were a little perplexed.

Another member of staff was called upon and it was decided that a couple of chairs could be brought in from outside and placed by the door……

“Um sorry I am not sitting right beside the door, where people will be coming and going throughout the day, that’s hardly relaxing for Fizz or suitable for me.”

So the chairs were moved and we were seated beside the camera mans tripod.  But that was ok; at this time the meeting was starting and I just wanted to sit down.

So me and Jenny moved the chairs across slightly giving Fizz the space to lay down.  But by this point not only was I feeling anxious and upset, I was also feeling that because our seating was so different to everyone else that I was on show, a bit of a ‘look at our token blind guest’  and this was what ALMOST saw me walk out.

I messaged my teammate and cousin Charlie with a very frank, honest, choice set of words and we simply replied

”Stay put I will sort this”

Charlie is a rock.  Jenny got me a drink and Fizz nudged at me as if to say ‘it’s ok mum’

Charlie sent me a message a few moments later that simply said “it’s sorted” so I sat, listened to the speakers and awaited the break.

At the break we stepped outside and were greeted by the events coordinator who moved me away from the crowds (these events have upwards of 2000 people attend) and explained that there was a larger room just opposite that had the lights up, had tables, plenty of space and a large screen that was streaming the main event directly into the room.

Well considering at similar events I can only just watch the stage via the screens and never actually see the people as they stand on the stage, this sounded like a good solution.

So into the room we went, table found, cool air con and really good lighting and I felt both me and Fizz relax.  Jenny came with me and she instantly agreed that this was a great alternative and would make it easier for her too to write notes and move about. (The room was a large conference hall, with about two dozen large circular tables.

Fizz was aware that I was more relaxed and as such, she was more relaxed.  And thankfully the rest of the day was much calmer.

The events staff came back to find us to discuss the evening dinner and party.  It would be held in the very room we were sitting in, but dressed to celebrate.  There were set to be food stations, where festival themed food would be available.  The event team asked me to just come also for and try to see if I could cope.

Again they made arrangements for me, Fizz and the a guest of my choice to enter the room before it was opened up to everyone.  To enable me to come in while the lights were up to navigate the room.

Fastforward to the evening ……

I entered the room early with Fizz and Jenny, we found a table to sit at and I was able to familiarise myself with the room layout.  The food stations would be far to tempting and distracting for Fizz, so Jenny agreed to support me by collecting food for me.

Entering the room early may not sound like much; but actually it made all the differenxe to enabling me to enjoy the evening.

I felt relaxed; I felt much more relaxed than I have at any other party event I have attended with Herbalife.

I even got up and danced for a bit and found myself mingling through (with a Jenny’s help) to catch up with other friends and colleagues.

Sundays Training was so much simpler.

We went straight into the ‘break out room’ and we actually found a good few more people sat here.  News of the air conditioning had spread through to the auditorium and even some of our own team joined us.

I don’t feel that I missed out by sitting in the other room.  I did however gain so much.  I would highly recommend that such ‘accessible’ seating was available ….. And as such and email has gone off to the company to ensure more support is available.

After all, o can’t be the only person within Herbalife that has a disability or anxieties about large numbers of people?

 

The day I brought my cane

“Stepping through the door like a troubadour
Whiling just an hour away
Looking at the trees on the roadside
Feeling it’s a holiday
You and I should ride the coast
And wind up in our favourite coats just miles away
Roll a number, write another song
Like Jimmy heard the day he caught the train.”
On this beautiful sunny summers day I couldn’t resist the play on words!
But with this beautiful weather and scorching temperatures come one very sad moment.  And that is that for me to go out during the peak part of the day, my faithful hound Fizz must stay behind.
It isn’t because she is a black dog, it is simply just because she is a dog. And as such can only reduce her body temperature through panting.  She would also be walking bare foot on pavements that have been heated by the sun, which could cause blisters on her paws.
So for me, it is back to my (not so faithful) long cane.  With its red and white strips it was recently likened to a barbershop candy striped cane!!
As a guide dog owner it is important to keep up my cane skills for very such occasions……. But it doesn’t mean that I enjoy this time at all; not one little bit.
Bright sunshine, blue skies and long canes (for me) do not mix well.  I find myself scanning with my residual sight, apologising to shadows and generally find myself more exhausted by the whole experience.
I can’t however cancel all plans and stay home.  I am however limited to how far I can go as Fizz is home I need to ensure I don’t leave her alone too long either.
It is a balancing act and in one way I am grateful that I can still keep my essential independence because of my long cane skills, but in another way I will be much happier when the weather cools a little.
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