
Today is one filled with mixed emotions, concerns and thoughts. Today, 18th January 2015 is the last working day for my guide dog Vicky. We have been working together as a qualified team since 18th November 2009, and it has been an amazing 5
Today is one filled with mixed emotions, concerns and thoughts. Today, 18th January 2015 is the last working day for my guide dog Vicky. We have been working together as a qualified team since 18th November 2009, and it has been an amazing 5
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I wrote a blog last year about good friend who was joking with me about dating, how it really would be a blind date in my case!
But as new year roles in and friends were kissing their partners, I got to thinking ….. How do the blind date ?
There is the world of Internet dating, you can meet hundreds of people just like you (so the adverts say)
There are even dating websites for ‘those with disabilities’ and there is the tv series on Channel 4 that highlight the whole thing with the documentary ‘The Undateables’
I’m not the sort of person who has ever gone out looking for love, it’s just always …happened! I’m not looking for it now either, I am happy as me, but I do miss being with someone when with other friends. As I am beginning to feel like a spare wheel, especially during the festivities.
So, how do I go about dating?
I suppose sitting in a pub with a guide dog is good ice-breaker! But my days of catching the cute guys eye are long gone….. I do t think I could even spot the cute guy, let alone catch his eye!
A friend offered to set me up with a friend, is that how it’s done?
I sound so naive, but my last partner was the best man at my wedding (it sounds like we ran away together when I put it like that-but that’s another story) I knew him for a while, we were good friends. I have always had more male friends, but there aren’t any of them that I would consider dating now, I know them all TOO WELL.
So, how do I date?
I have looked at the dating sites for the disabled, it’s not that I don’t want to date someone with a disability, but just as I don’t have a preference on hair colour or even skin colour I don’t feel that because I have my own disability that I should be defined by it.
So, I ask again, how do the blind date?
A few weeks ago my faithful Guide Dog had to temporarily hang up her harness to have a lump removed (just a ‘older age’ cyst, very routine) With her doing this, I had to dust of my long cane. I have kept up my cane skills and on occasions have used it when it has not been practical to use Vicky. However, it has been a long time since I have used it on this scale….. Even when I trained with it, my independence wasn’t what it is now, so team this a decrease in my usable sight and it has been a hard 10 days.
I managed the first few days of her being off work with doing very minimal trips out, mostly because she was very groggy from the operation, so I daren’t leave her too long at home. I then managed to time things in with when I was seeing friends who could come with me.
But there is only so many times I could do this, not to mention, wanted to do this! I was struggling with the dependancy I had on others.
So off I went alone, with only a few of the normal ‘cane jabs’ recieved from uneven paths, or missing a curb edge. These are part of ‘the norm’ any long cane user will tell you about.
On Friday, one week after her op, Vicky was delivered to a boarders, where she got to enjoy some doggy company and rest, while I went up to London to see my eye specialist and professor for a dna trial I am part of.
A trip I dislike at the best of times, but without my faithful friend I felt lost. I had a friend with me, but the concentration needed in London increases ten-fold even with a guide dog, with the cane it was horrendous. Even before I had my eyes dilated and could see even less.
Thankfully my friend drove to help ease my stress. But the concentration needed even for the much shorter walk from the car to the hospital was too much. (Thats another post though.)
By the time we left the hospital four hours later my eyes were heavily dilated and what little I usually see was much smaller and incredibly painful. At this point the cane was used purely to role infront of me and I linked in to my friend for support.
Saturday morning I headed off to collect my son from his friends house where he had been enjoying a sleep over. Hearing the bus coming up the road, I started to run, resulting in me going over the top of my cane having caught it on a drain, flying forward through the air and landing on the palms of my hands and my knee.
Thankfully, grazes, bruises and a damaged pride were all I suffered. I couldn’t stop, the day was getting away with me and I still had to pick up Vicky after Lawrence, so there was no time to hang about, go home or even feel sorry for myself.
So on I went, enjoyed the rest of the day and soaked my wounds in a warm bath later.
Having used a long cane for some time, I am used to the odd bump. Either from me bumping into something, or a poorly laid pavement causing my cane to ‘stab’ me.
But I could not cope without it when my guide dog isn’t available. Because without either cane of dog, I could not cope on my own in the great outdoors.
I was not prepared for the bump I had on Monday on my way to college though…………
I had negotiated my local station, no problems. With the odd ankle sweep for people who thought they could nip in in front of me to cut me up. (One of the enjoyable sides of using a long cane over a guide dog!!!)
Generally as usual, people were very helpful. I was asked upon reaching the station I required, if I needed any assistance, to which I politely thanked them and said (knowing the station well) that I would be fine and headed for the stairs.
Up the stairs, across the bridge no problem, almost down the stairs on the other side when it happened.
When walking up stairs, I hold my cane upright in front of me, in the middle of my body, so that I can use it to judge the depth and height of the treat on the stair and also to be able to feel when I have reached the top step.
On the way down though, this is different. On walking down steps, having swept the ground on the initial step to find the first step down, I then hold my cane like a pencil, so that it crosses my body on a diagonal, so that the ball tip can run along each of the steps again so I can feel the depth and also feel when I reach the final step.
My cane is no more than my shoulder width while doing this, so that it is not sticking out, but enough to enable me to feel if an obstacle is in my way.
So, almost at the bottom of the staircase, I had already negotiated the 180 degree return half way down, the commuters with suitcases and bikes rushing up the stairs to get to their platforms.
A kind women helped me up, while another bought a guard over. They were concerned and checked my hands for cuts and any sign of breaks.
I felt (yet again) very embarrassed by falling and was doing all I could not to cry or get upset in front of these strangers.
When the guard arrived, I shoe’d the helpers away. I was stood up again and just wanted to get to college and away from people.
The guard asked me how I was and what had happened, I explained that it was ‘just one of those things’ and that I was more embarrassed than anything. To which he suggested that next time I use the lift, or had assistance in the station, “after all, you are disabled and shouldn’t do these things alone.”
I made it across the road before bursting into tears, I had to hear a friendly voice, so using Siri on my phone (as I always do) I called a friend….. It took a few attempts as Siri had trouble understanding a blubbering me!
By the time I got to college I was composed and ready to face the day.
I daren’t share what happened with any of my college group for fear it would set me off again.
Having managed to escape any further bruising to my knee, but having my right palm take the full brunt of it, I am now wearing a padded support on my hand and wrist to help relieve the pain that I am in and also to cushion my wrist and palm, so that I can still use my long cane and try and not put myself into a forced hibernation until my trusted guide dog is ready to return to work.
This week saw me with my family go and watch a firework display with my daughters Cub group, after navigating in the dark from the car to the camp site where the bonfire was crackling away.
We sat around enjoying campfire songs, I was mesmerised by the flames, watching the little flecks fly off into the night sky, thinking how this looks to others, do they see the flames as I do?
This was when I began to think about what a firework
Actually looked like when it went off
In the sky?
For me it is just a burst of colour, but I wondered if ‘sighted people’ saw individual flecks or different colours?
So after the camp songs & warming up by the fire we walked up to where the fireworks were being set off from & I divided that I would film some of the fireworks on my phone so I could see it as others.
This was what I filmed
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The film shows almost perfectly what a saw from the embers that were coming off of the fire, little fuzzy balls like those I spoke of in an earlier post (looking through raindrops)
Looking at the practicalities of using an iPhone to film fireworks that are roughly 100 feet in the air won’t give you the clearest image, but actually the ‘poor film quality’
Allows me to explain more to you about how I actually do see.
Maybe you can have more of an understanding as to why I was mesmerised by the little embers flying off the fire rather than the fire itself.
This has given me the chance to let you literally ‘seemyway’
I hope you enjoy?
Although I am registered as ‘blind’ I do have some sight, all be it distance vision that doesn’t even get me the top line on the eye chart and central vision with a peripheral of less than 10%, a figure that has recently reduced by 17%…. Feel free to do the math on that! To me it means just one thing
“my remaining sight is deteriating and quicker that I really would like”
Making the most of my remaining sight is key, and by actually using my eyes I am causing no harm, nor am I strengthening them. The deterioration of my retina is uncontrolled and unmapped.
So, by now you may feel confused by the title of this latest blog, well let me explain. As my sight has deteriorated, my eye’s and the period for which I can use them to concentrate on anything has reduced dramatically. In theory anyway, I say this, because I can still spend hours watching a really good film, of which without the aid of audio descript I miss a large percentage of it.
But for this I suffer.
As my eyes tire from the concentration, they in fact become dry, and difficult to close without seeing vivid flashing images on my eyelids.
As I said above, having missed a large percentage of a film, I now rely fully on Audio Descript and do not strain or even try to see what is actually happening on the screen. This has given me back my love of the cinema in recent months, so that is a bonus!
But there is one part of my life that I can’t stop over concentrating on and overworking my eyes, that is my phone, my laptop and my iPad. All of which have fabulous built in accessible software, after all Steve Jobs insisted that technology was assessable to all, not as an after thought, but as part of its design, hence why all my tech is Apple…. That and the fact that originally my training before my sight loss was in Design and if it was design, it HAD TO BE Apple.
Anywho, I digress. I have dragon and Siri that enable me to speak to my tech for it to then type my words. I have magnification, I even have voice over. And yes for you techno-phobes, it even works on touch screen. Even more so since the IOS 7 update!
But the thing is….
I have SOME vision and I can’t help but use it.
I can touch type and thankfully have been able to do this from a very young age (I think I was about 8) so I don’t have to look at the keyboard or technically the screen either, but I do like to proof read what I have written, especially when it comes to emails, letters and more recently college assignments.
It is a college assignment that has in fact lead me to write about this. You see, it is currently 4.15am on a Monday morning, having been working on my latest assignment that is due in at 9am THIS MORNING. I am now not able to sleep, even though it would be a really good idea if I could as I have a 4 hour lecture and a gym class later today too!
The question you are probably asking right now as you read that last paragraph, is what the….? Yes, I did leave this assignment a little later than others, but actually that isn’t the reason why I am up so late with it.
The REAL reason I was working on it so late, was because of my wish to see what I am doing and the light levels. You see even with the daylight lamp on, if it is too dark in the rest of the room, I struggle greatly to focus on all of my work, as the light level varies from that under the lamp to the rest of the room.
With the darker evenings (which in fact cause the darker days) I am able to sit down with a suitable light that illuminates the whole room at about 6pm.
This is slap bang in the middle of feeding time at my zoo, then comes baths, books and cuddles before bed for my 2 little monsters. So that 6pm soon becomes 8pm and I’m sure you can see where I am going from here?
I have tried and tested myself with this, so that I can understand what I can do without suffering and what I can’t achieve without the suffering.
The short answer is not much.
Once I hit 2.5 – 3 hours thats it, I can look at spending at least that again letting my eyes settle down. The good news is that if I extend that to 5 hours, that doesn’t increase the ‘down time’ that I need.
So, to save my sanity, especially in the winter months I need to start to stop looking.
But its hard, emotionally more than anything….. The reason is because, one day I wont ACTUALLY be able to see it, so while I can why shouldn’t I?
If your sight were or if your sight is deteriating would you want to stop seeing all the things you can see now knowing that in the future you will have no choice but not to see them?
This is a tricky argument that I have had with a few people, you see the one point I struggle with is that apart from the lack of sleep, I am not causing myself any harm, I am certainly not causing my eye’s damage.
This I have checked, double checked and yes, you got it TRIPLE CHECKED!!
I have explained before that I have a wicked sense of humour….. This blog post shows this off perfectly.
Sitting yesterday with a friend having a much needed catch-up over a leisurely Sunday brunch at a popular Italian American restaurant, the following occurred.
As usual, my trusted guide dog was laid on my feet under the table waiting for any food to drop. Me and my friend had been talking about how life had been for me since seperating from my long term partner earlier in the year. She knew that I had struggled with others opinions about being a single parent, she also knew that I had taken the decision to end the relationship and that it had been a happy decision for me.
This led us to talking about dating and how after having been in a relationship for so long you would even start going about this. At this point, a couple were seated in the booth behind us. I remember this point as the woman in the couple was sneezing continually, so I passed a packet of ultra-balm pocket tissues behind me to her partner.
At this point I was aware of uncomfortable mummbles from the couple in the booth behind us. Me and my friend continued to speak about how a blind person would go about dating, when the ‘gentleman’ in the booth behind me turned around and commented, (these words have stayed with me….
“You really are being quite rude and insensitive, talking about poor blind people who can’t possible have as enjoyable and free life as you ((me))”
To which I was shocked, so I said all I could which was, “I beg your pardon?”
“Well, you two are sat her enjoying a nice leisurely breakfast, probably off to do some shopping laughing about those less fortunate than you who have a horrible disability and can’t even think of coming out for treats like this. Whilst you both sit here poking fun at them for not being able to date, you both have such freedom, people like you make me sick.”
At this point my blood was boiling and I’m sure my friend could sense this too, as she reached across the table and asked me if I wanted to leave, which no I did not.
“I’m sorry sir if my ‘private’ conversation with my friend has upset and sickened you, I am so very sorry that you feel that ‘poor blind people’ don’t have such freedoms as to go out for a long breakfast or enjoy shopping. I am so very sorry that you feel that I was insulting those with horrible disabilities. I was in fact talking about myself and how ‘ironic’ it was to use the word ‘blind date’ you see because for me now that is what it would be, I am sorry for that.”
At this point he stood up and called over the waitress, he said “I can’t believe the nerve of you ((me)) now pretending to be blind, while you clearly aren’t to justify and make excuses for your terrible behaviour, I wish to be moved. (Directed at the waitress)”
I was close to tears at the point and the waitress was about to speak, the very same waitress that had seated me and my friend and made a fuss of Vicky before she had curled up under the table.
I myself now stood up and turned to the gentleman, a term I use very loosely as he was about the same age as me, and definite not gentle!
“It’s ok, no need for you to move, we were just finishing up and off to enjoy some carefree shopping, I will even go to the till to settle up my bill as to not upset you a moment further, if you would just be so kind as to give me a minute to get my guide dog in her harness?”
He sniggered at this, but he soon stopped when I woke up a sleeping Vicky and got her out from under the table….
I finished putting her harness on and walked toward the till. My friend was talking behind me to the man and his girlfriend, but At this point I just wanted to leave.
She came and joined me a moment later to tell me that on the girlfriends insistence her boyfriend would be paying our bill for us, he hadn’t spoken another word apparently, just stood there shocked and embarrassed.
My friend said that she had explained that I was clearly upset by his insults and assumptions of ‘poor blind people’ and that it was incredibly rude to earwig on others conversations.
His girlfriend was very apologetic, but still he said nothing.
As we left the restaurant, my friend said she could see through the window that his girlfriend was clearly shouting at him.
To be honest I didn’t care…. I was using every muscle in my body to stop me from breaking down in tears, I was so shaken by it that we didn’t go shopping, without a word spoken, we got in her car and we went straight to the nearest pub for a large whiskey (for me anyway)
We had been having such an enjoyable time and only a true friend would laugh with me while we spoke of blind dates and meeting someone new. She knew instantly that I had been upset by those cruel words, but that I wouldn’t scream and shout, but calmly and with sarcasm allow that horrid man to be left thinking about what he had said and done.
And to answer the question you may be thinking by now…. No, I haven’t and nor will I be signing up to an iNternet dating of any kind !!!
Having said I would update you on the training and how I was getting on, I let the side down. This wasn’t that the training wasn’t happening, it was just that life got in the way of me writing my blog.
So Sunday 27th came and so did the severe weather warnings!
I have to admit that throughout the training it was the rain I was worried about, not the wind. A very foolish misconception, after all the last 2 Miles of the race where along the sea front at Southsea, with no shelter. And as you will be aware if you have been anywhere near the great outdoors on that day, it was windy…. Very windy.
After an issue with my guide runner, the dog costume for the guide runner and everything coming together at the 11th hour I didn’t have the chance to be nervous about anything other than being able to finish the race.
My original guide runner was too tall for me, making him too fast in stride even at his walk pace. So, thankfully I was able to twist the arm of a friend, to join me. As a former partner, he is aware of my eye condition and my preferred way of being guided and having things explained to me. He also had a good understanding of what it meant to me to be doing such a challenge. Although I don’t think he had a full appreciation for what doing a 10 mile flat open air course would be like with a giant dog suit on!
The dog suit was another issue, the events team at guide dogs was arranging for me to have one of their costumes as the one that I had used from my local Southampton mobility team was already being used by someone else. With just 10 days to go before the race it arrived, a dog costume that looked nothing like the fat little puppy I had borrowed from Southampton, it was a very sad looking dog, with several sewing issues.
So, I went back to Southampton and asked for their help, the fundraising team were fab, they tracked me down a puppy costume that was in good condition, although missing its hand gloves, they arranged for it to be driven down from its home in Leamington and it arrived on the Thursday before the race.
It was a fat chocolate lab puppy costume, that with a guide dog race vest on looked the part. My guide would be able to play the role of being my dog after all.
So, it was all in place and race day came. On recommendation and for ease we travelled over to Portsmouth on the Gosport Ferry, and then walked the 2 miles to the charity village for a warm up before starting in the ‘green’ heat at 11.05.
It was only once arriving on site and getting the puppy ready, putting my own cane away that the emotion of the day hit.
And oh yes, it hit…. I was in an absolute panic. Not about running the race, not about even completing the race. No, it was something that unless you have trouble with large groups or very little vision will be hard for me to explain in a way that is easily understood.
The volume of people, more that 2500 of them were also taking part, yes we were ranked in different colours depending on ability, the green rank that I was in was the busiest and saved for the casual runners, walkers and those who had never done such an event before.
I was attached by an elastic strap on my wrist to the puppies wrist and when we had trained I had done so to hold his arm between his elbow and wrist. We had trained to work at a good pace together, none of this was of concern, this I had prepared for, trained for and had control over. All the other runners though, well they were a completely different story, over them I had no control, no understanding and nor did they of me.
In such a vast crowd no-one realised that I had a visual impairment or that the dog was my guide, not just a guy dressed up for the fun of it.
So we warmed up together, moved up to the start line together and then it all started, no more time for panic, no more time to think, just time to put my complete and utter faith in my dog.
But in a way that I had never put my faith in Vicky before, I couldn’t not do it now, there were several hundred people behind us, to the sides of us and in front of us and there we were, 2 people with no where to go but forward.
My senses were on ultra high, I could sense all of the people around us, especially those behind us, but I couldn’t judge their speed or distance and with a giant puppy head, vocal commands from my guide were non existant, instead it was all done through feel, touch and gentle gestures…. That we hadn’t practiced or used before. Where he went, I did, I gave up on trying to look forward, the movement of me and others was too hard to focus on, so I put my head down and watched his giant brown puppy paws instead and followed their rhythm.
We had trained together, to run together, but like I said, nothing prepared me for this. I felt like I was a failure, another thing that I couldn’t do, but then there were the people cheering and David attached to me and I WAS DOING IT, even if I had had to walk the whole course, I would have still have done it.
The race really knocked me down, yes I should of trained more, then maybe I wouldn’t have hurt so much after, but no amount of physical fitness prepared me for the emotion and the me part of the day.
I am struggling to explain this, but it was a very large marker for me, on how I do see things differently and how I feel about them. I have never and will not shy away from doing things like this again, in fact I am already thinking of next years challenge. Which not be a running event that is for sure!
I suppose that the reality that I was only able to do such an event by being with another person, not being able to just jog through the crowds and run my own race, I had to do it with a guide. A guide who was very happy to help and happy to go with my pace without complaint. But nether the less, a guide.
The great south run for me was another realisation that I can’t just get up and do things by myself, I am different and in this instance that has caused me upset.
Its been one of the highest moments for me to say YES I DID IT, but a low also to think that I wouldn’t be able to do it alone.
Vicky, however has decided that she is getting tired of her role as my guide dog and in recent months has slowed her pace considerably, to the point sometimes that I feel like we are standing still… She has had several health issues and in the past two years having suffered with a growth on her tonsil she has been receiving daily medication in the form of an inhaler. This has enabled her to breath easier. She is happy working and has been assessed several times as I would not wish to work her if she were not happy.
She is still very happy to work, her tail is testament to that, it is just that it is at a slower pace, a pace that is too slow for me.
The decision was taken last week to retire her from service, when a suitable replacement has been found or she decides she is no longer happy to work, which ever comes first.
This decision has been one that has been at the back of my mind for a little while now, so was not as a complete shock. But as she is such an amazing part of me and my family it is still one that fills me with upset.
I had commented before that when Vicky was to retire I would go on to work with a new dog, which I am still going to do. But I was not prepared for what happened next at the guide dog assessors visit last week!
To be matched with the ‘right dog’ it is important that the guide dog team know as much about your lifestyle as possible. This includes your usual day, places you visit, hobbies, interests, other family members, other pets, etc etc.
I had thought about this bit, I had even written a list, a list that is four times longer than the list I had when applying for Vicky, a list that impressed the assessor as it gave her a very detailed account of my life and what I would need from a dog.
This is a way of her understanding and judging my pace, stride length and most importantly control and balance, which are key for matching me with the right dog.
So off we went for a walk down my street, where all my neighbours know me and just in time for the mums at the pre-school to be walking past on their way for lunch pick ups.
I vaguely remember the handle walk from when I applied for Vicky, but this time it felt completely different, because I knew what I was doing, well….. In theory that is!
So, off we went. E told me that she was sniffing and I was to correct her, this is the same with a dog, (although with the dog on the harness you can feel them putting their head down to sniff, Vicky doesn’t actually talk to me) It is a vocal correction, where tone is key, if this doesn’t work then it is a correction using the harness, not to hurt the dog, but to stop them. This must be carried out with the correct verbal warning, where timing is crucial. Followed by immediate praise when the dog responds, which again is a different tone.
Then came the praise. Me walking along the street with a grown woman holding the front end of a harness, while I held the harness, telling her she was a ‘good girl’ as one of my daughters dinner ladies walked passed.
Another part of the test was my instructions. E had to find the crossing having been targeted to it, I then had to praise her with a soft yet exciting warm tone (thankfully she was happy for me to forgo the ear rub that they encourage in a new partnership!)
It was back to basics, time to put in place all of the commands that I use daily with Vicky, foot positions that have become second nature, so much so that when E asked me to stand in the ‘starting off position’ I FROZE. I couldn’t remember what this was or how I did it. E understood my hesitation and reassured me that I had used the correct position when we had taken Vicky on her walk earlier. But with E stood beside me I couldn’t remember it. Thankfully she came to my rescue and reminded me of what to do, a simple foot position that sets you off to walk forward or turn left or right in a fluid motion with the dog.
A motion that had become so fluid in fact that when I had to think about it, I couldn’t do it.
We worked on my preferred pace, my pace with the children and my ability to follow. This assessment was the same as the one I had had to complete when I first applied for a guide dog, because having had one dog did not automatically qualify me for another.
I have been assessed as fit to work with a new dog, awaiting medical conformation, which is standard practice. When received I will be put on the waiting list for my next dog.