Today is one filled with mixed emotions, concerns and thoughts. Today, 18th January 2015 is the last working day for my guide dog Vicky. We have been working together as a qualified team since 18th November 2009, and it has been an amazing 5
Today is one filled with mixed emotions, concerns and thoughts. Today, 18th January 2015 is the last working day for my guide dog Vicky. We have been working together as a qualified team since 18th November 2009, and it has been an amazing 5
It’s almost 11.00 o’clock, 12 hours after this crazy day started. The climbing arena was nothing like I had ever seen before and no matter how much I had researched and looked at photo after photo I was not prepared for the quarry that I
Well, this is something new……. I am sat in the passenger seat of my friends car doing 70+ MPH on the M6 Motorway travelling on my way to Edinburgh; while typing this blog. My iPad is tethered to my phone for 4G and my voiceover
it is time for me to ask for you to help me. If I were to write a book, giving in sight into my life and how I have got myself in and out of many a situation. Would you read it? I am talking
My daughter moved from Rainbows to Cubs in September. She has been a very busy bee with her challenges, leaving me with the joy of sewing them on.
Until recently I had called upon my ex-partner to do this, but on Monday evening when Alannah came to me stating she needed her art challenge badge sewn on before her meeting in 45 minutes time! Eek….. It was down to me to get out the needle and tread.
Well, you can imagine, just threading the needle to start with was fun! Not.
Then trying to figure out where the badge needed to be placed followed with a quick call to a friend who is a cub leader.
Calm restored, the sewing began. It went very well, it was neatly done and in the right place as described to me.
Although the badge itself…. Was upside down!
Dilemma struck.
Do I un-pick it and send her in in-complete uniform or make her look a fool?
I admitted defeat and un-picked it.
Alannah explained to AJ her leader about my ‘silly sewing’ And came home with yet another badge for me!
Thankfully she didn’t loose points for my mistake and I have already had an email offering me sewing support too.
I wrote a blog last year about good friend who was joking with me about dating, how it really would be a blind date in my case!
But as new year roles in and friends were kissing their partners, I got to thinking ….. How do the blind date ?
There is the world of Internet dating, you can meet hundreds of people just like you (so the adverts say)
There are even dating websites for ‘those with disabilities’ and there is the tv series on Channel 4 that highlight the whole thing with the documentary ‘The Undateables’
I’m not the sort of person who has ever gone out looking for love, it’s just always …happened! I’m not looking for it now either, I am happy as me, but I do miss being with someone when with other friends. As I am beginning to feel like a spare wheel, especially during the festivities.
So, how do I go about dating?
I suppose sitting in a pub with a guide dog is good ice-breaker! But my days of catching the cute guys eye are long gone….. I do t think I could even spot the cute guy, let alone catch his eye!
A friend offered to set me up with a friend, is that how it’s done?
I sound so naive, but my last partner was the best man at my wedding (it sounds like we ran away together when I put it like that-but that’s another story) I knew him for a while, we were good friends. I have always had more male friends, but there aren’t any of them that I would consider dating now, I know them all TOO WELL.
So, how do I date?
I have looked at the dating sites for the disabled, it’s not that I don’t want to date someone with a disability, but just as I don’t have a preference on hair colour or even skin colour I don’t feel that because I have my own disability that I should be defined by it.
So, I ask again, how do the blind date?
A few weeks ago my faithful Guide Dog had to temporarily hang up her harness to have a lump removed (just a ‘older age’ cyst, very routine) With her doing this, I had to dust of my long cane. I have kept up my cane skills and on occasions have used it when it has not been practical to use Vicky. However, it has been a long time since I have used it on this scale….. Even when I trained with it, my independence wasn’t what it is now, so team this a decrease in my usable sight and it has been a hard 10 days.
I managed the first few days of her being off work with doing very minimal trips out, mostly because she was very groggy from the operation, so I daren’t leave her too long at home. I then managed to time things in with when I was seeing friends who could come with me.
But there is only so many times I could do this, not to mention, wanted to do this! I was struggling with the dependancy I had on others.
So off I went alone, with only a few of the normal ‘cane jabs’ recieved from uneven paths, or missing a curb edge. These are part of ‘the norm’ any long cane user will tell you about.
On Friday, one week after her op, Vicky was delivered to a boarders, where she got to enjoy some doggy company and rest, while I went up to London to see my eye specialist and professor for a dna trial I am part of.
A trip I dislike at the best of times, but without my faithful friend I felt lost. I had a friend with me, but the concentration needed in London increases ten-fold even with a guide dog, with the cane it was horrendous. Even before I had my eyes dilated and could see even less.
Thankfully my friend drove to help ease my stress. But the concentration needed even for the much shorter walk from the car to the hospital was too much. (Thats another post though.)
By the time we left the hospital four hours later my eyes were heavily dilated and what little I usually see was much smaller and incredibly painful. At this point the cane was used purely to role infront of me and I linked in to my friend for support.
Saturday morning I headed off to collect my son from his friends house where he had been enjoying a sleep over. Hearing the bus coming up the road, I started to run, resulting in me going over the top of my cane having caught it on a drain, flying forward through the air and landing on the palms of my hands and my knee.
Thankfully, grazes, bruises and a damaged pride were all I suffered. I couldn’t stop, the day was getting away with me and I still had to pick up Vicky after Lawrence, so there was no time to hang about, go home or even feel sorry for myself.
So on I went, enjoyed the rest of the day and soaked my wounds in a warm bath later.
Having used a long cane for some time, I am used to the odd bump. Either from me bumping into something, or a poorly laid pavement causing my cane to ‘stab’ me.
But I could not cope without it when my guide dog isn’t available. Because without either cane of dog, I could not cope on my own in the great outdoors.
I was not prepared for the bump I had on Monday on my way to college though…………
I had negotiated my local station, no problems. With the odd ankle sweep for people who thought they could nip in in front of me to cut me up. (One of the enjoyable sides of using a long cane over a guide dog!!!)
Generally as usual, people were very helpful. I was asked upon reaching the station I required, if I needed any assistance, to which I politely thanked them and said (knowing the station well) that I would be fine and headed for the stairs.
Up the stairs, across the bridge no problem, almost down the stairs on the other side when it happened.
When walking up stairs, I hold my cane upright in front of me, in the middle of my body, so that I can use it to judge the depth and height of the treat on the stair and also to be able to feel when I have reached the top step.
On the way down though, this is different. On walking down steps, having swept the ground on the initial step to find the first step down, I then hold my cane like a pencil, so that it crosses my body on a diagonal, so that the ball tip can run along each of the steps again so I can feel the depth and also feel when I reach the final step.
My cane is no more than my shoulder width while doing this, so that it is not sticking out, but enough to enable me to feel if an obstacle is in my way.
So, almost at the bottom of the staircase, I had already negotiated the 180 degree return half way down, the commuters with suitcases and bikes rushing up the stairs to get to their platforms.
A kind women helped me up, while another bought a guard over. They were concerned and checked my hands for cuts and any sign of breaks.
I felt (yet again) very embarrassed by falling and was doing all I could not to cry or get upset in front of these strangers.
When the guard arrived, I shoe’d the helpers away. I was stood up again and just wanted to get to college and away from people.
The guard asked me how I was and what had happened, I explained that it was ‘just one of those things’ and that I was more embarrassed than anything. To which he suggested that next time I use the lift, or had assistance in the station, “after all, you are disabled and shouldn’t do these things alone.”
I made it across the road before bursting into tears, I had to hear a friendly voice, so using Siri on my phone (as I always do) I called a friend….. It took a few attempts as Siri had trouble understanding a blubbering me!
By the time I got to college I was composed and ready to face the day.
I daren’t share what happened with any of my college group for fear it would set me off again.
Having managed to escape any further bruising to my knee, but having my right palm take the full brunt of it, I am now wearing a padded support on my hand and wrist to help relieve the pain that I am in and also to cushion my wrist and palm, so that I can still use my long cane and try and not put myself into a forced hibernation until my trusted guide dog is ready to return to work.
This week saw me with my family go and watch a firework display with my daughters Cub group, after navigating in the dark from the car to the camp site where the bonfire was crackling away.
We sat around enjoying campfire songs, I was mesmerised by the flames, watching the little flecks fly off into the night sky, thinking how this looks to others, do they see the flames as I do?
This was when I began to think about what a firework
Actually looked like when it went off
In the sky?
For me it is just a burst of colour, but I wondered if ‘sighted people’ saw individual flecks or different colours?
So after the camp songs & warming up by the fire we walked up to where the fireworks were being set off from & I divided that I would film some of the fireworks on my phone so I could see it as others.
This was what I filmed
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The film shows almost perfectly what a saw from the embers that were coming off of the fire, little fuzzy balls like those I spoke of in an earlier post (looking through raindrops)
Looking at the practicalities of using an iPhone to film fireworks that are roughly 100 feet in the air won’t give you the clearest image, but actually the ‘poor film quality’
Allows me to explain more to you about how I actually do see.
Maybe you can have more of an understanding as to why I was mesmerised by the little embers flying off the fire rather than the fire itself.
This has given me the chance to let you literally ‘seemyway’
I hope you enjoy?
Although I am registered as ‘blind’ I do have some sight, all be it distance vision that doesn’t even get me the top line on the eye chart and central vision with a peripheral of less than 10%, a figure that has recently reduced by 17%…. Feel free to do the math on that! To me it means just one thing
“my remaining sight is deteriating and quicker that I really would like”
Making the most of my remaining sight is key, and by actually using my eyes I am causing no harm, nor am I strengthening them. The deterioration of my retina is uncontrolled and unmapped.
So, by now you may feel confused by the title of this latest blog, well let me explain. As my sight has deteriorated, my eye’s and the period for which I can use them to concentrate on anything has reduced dramatically. In theory anyway, I say this, because I can still spend hours watching a really good film, of which without the aid of audio descript I miss a large percentage of it.
But for this I suffer.
As my eyes tire from the concentration, they in fact become dry, and difficult to close without seeing vivid flashing images on my eyelids.
As I said above, having missed a large percentage of a film, I now rely fully on Audio Descript and do not strain or even try to see what is actually happening on the screen. This has given me back my love of the cinema in recent months, so that is a bonus!
But there is one part of my life that I can’t stop over concentrating on and overworking my eyes, that is my phone, my laptop and my iPad. All of which have fabulous built in accessible software, after all Steve Jobs insisted that technology was assessable to all, not as an after thought, but as part of its design, hence why all my tech is Apple…. That and the fact that originally my training before my sight loss was in Design and if it was design, it HAD TO BE Apple.
Anywho, I digress. I have dragon and Siri that enable me to speak to my tech for it to then type my words. I have magnification, I even have voice over. And yes for you techno-phobes, it even works on touch screen. Even more so since the IOS 7 update!
But the thing is….
I have SOME vision and I can’t help but use it.
I can touch type and thankfully have been able to do this from a very young age (I think I was about 8) so I don’t have to look at the keyboard or technically the screen either, but I do like to proof read what I have written, especially when it comes to emails, letters and more recently college assignments.
It is a college assignment that has in fact lead me to write about this. You see, it is currently 4.15am on a Monday morning, having been working on my latest assignment that is due in at 9am THIS MORNING. I am now not able to sleep, even though it would be a really good idea if I could as I have a 4 hour lecture and a gym class later today too!
The question you are probably asking right now as you read that last paragraph, is what the….? Yes, I did leave this assignment a little later than others, but actually that isn’t the reason why I am up so late with it.
The REAL reason I was working on it so late, was because of my wish to see what I am doing and the light levels. You see even with the daylight lamp on, if it is too dark in the rest of the room, I struggle greatly to focus on all of my work, as the light level varies from that under the lamp to the rest of the room.
With the darker evenings (which in fact cause the darker days) I am able to sit down with a suitable light that illuminates the whole room at about 6pm.
This is slap bang in the middle of feeding time at my zoo, then comes baths, books and cuddles before bed for my 2 little monsters. So that 6pm soon becomes 8pm and I’m sure you can see where I am going from here?
I have tried and tested myself with this, so that I can understand what I can do without suffering and what I can’t achieve without the suffering.
The short answer is not much.
Once I hit 2.5 – 3 hours thats it, I can look at spending at least that again letting my eyes settle down. The good news is that if I extend that to 5 hours, that doesn’t increase the ‘down time’ that I need.
So, to save my sanity, especially in the winter months I need to start to stop looking.
But its hard, emotionally more than anything….. The reason is because, one day I wont ACTUALLY be able to see it, so while I can why shouldn’t I?
If your sight were or if your sight is deteriating would you want to stop seeing all the things you can see now knowing that in the future you will have no choice but not to see them?
This is a tricky argument that I have had with a few people, you see the one point I struggle with is that apart from the lack of sleep, I am not causing myself any harm, I am certainly not causing my eye’s damage.
This I have checked, double checked and yes, you got it TRIPLE CHECKED!!