Tag Archive for visually impaired

When my disability felt disabling

This weekend I had a real wobble; anxiety, panic, fear and upset all rolled into one.  This weekend didn’t start off very well.

There are times when people say how inspirational or how positive I am, well this weekend I wasn’t any of these things.  In fact I felt like I was being penalised because of my sight and hearing issues. And I just wanted to leave where I was, give up on my plans for the weekend and walk away from it all.

Thankfully I was surrounded by some great friends; who didn’t allow the negativity to get to me, who stepped up and even stepped in to support me and change things around….. And for this I have gratitude.  Because what started out pretty shitty ended up being pretty AMAZING.

This weekend I attended a MAHOOSIVE Herbalife training event called ‘Summer Spectacular’  This training consisted of two days of training, stories and information from not only some of the best in the UK part of Herbalife, but also some of the best from America, France and South Africa.  Men and woman within the business that were not within my immediate reach.

So my ticket for the event was bought, childcare sorted, transport and sleeping arrangements sorted.  I had the support of my amazing team so I knew that both me and Fizz would be ok.

The training was at a venue I hadn’t been to before, but that was ok because an hour or so on google and I had found enough images of the venue to feel that I had a good enough virtual awareness of it to get through.  There was even a Starbucks on site, what more could I ask for?

The venue; The International Conference Centre (ICC) in Birmingham was also only a short ten minute walk from the apartment we were staying in AND there were plenty of grass areas between the two for me to know that Fizz’s needs were catered for also.

Saturday morning came and while my team mates were taking part in a very large ‘Fitclub’  I was able to grab a coffee, get my bearings and feel prepared for the next few days.

We came to entering the training room and a member of staff quickly found me (having the only dog in the building will get you noticed!!)

My team mates explained (because it was too loud for me to hold a conversation) that I would need to be seated near the front with space for both me and Fizz, but not in a direct walk-way as this could put Fizz and others in danger (black dog in a dark venue is a real trip hazard)

So, the staff guided me down the steps of the auditorium and sat me at the front, but with space the side where Fizz would be able to lay out.  Brilliant, a seat was allocated for my team mate too and I thought all was ok.  That was until the music started.  It was not that it was LOUD.  It was the fact that it was coming from a large speaker right beside where Fizz was to be able to rest…. let’s just say, she would have probably been more likely to burst an ear drum than relax.

No trouble I thought my friend and companion  Jenny got the attention of the staff, asked for us to be moved and off we went.

The next seating we were offered would see Fizz sat directly beside the auditorium steps (a major trip hazard)  but as the seating within the venue was fixed in place the staff were a little perplexed.

Another member of staff was called upon and it was decided that a couple of chairs could be brought in from outside and placed by the door……

“Um sorry I am not sitting right beside the door, where people will be coming and going throughout the day, that’s hardly relaxing for Fizz or suitable for me.”

So the chairs were moved and we were seated beside the camera mans tripod.  But that was ok; at this time the meeting was starting and I just wanted to sit down.

So me and Jenny moved the chairs across slightly giving Fizz the space to lay down.  But by this point not only was I feeling anxious and upset, I was also feeling that because our seating was so different to everyone else that I was on show, a bit of a ‘look at our token blind guest’  and this was what ALMOST saw me walk out.

I messaged my teammate and cousin Charlie with a very frank, honest, choice set of words and we simply replied

”Stay put I will sort this”

Charlie is a rock.  Jenny got me a drink and Fizz nudged at me as if to say ‘it’s ok mum’

Charlie sent me a message a few moments later that simply said “it’s sorted” so I sat, listened to the speakers and awaited the break.

At the break we stepped outside and were greeted by the events coordinator who moved me away from the crowds (these events have upwards of 2000 people attend) and explained that there was a larger room just opposite that had the lights up, had tables, plenty of space and a large screen that was streaming the main event directly into the room.

Well considering at similar events I can only just watch the stage via the screens and never actually see the people as they stand on the stage, this sounded like a good solution.

So into the room we went, table found, cool air con and really good lighting and I felt both me and Fizz relax.  Jenny came with me and she instantly agreed that this was a great alternative and would make it easier for her too to write notes and move about. (The room was a large conference hall, with about two dozen large circular tables.

Fizz was aware that I was more relaxed and as such, she was more relaxed.  And thankfully the rest of the day was much calmer.

The events staff came back to find us to discuss the evening dinner and party.  It would be held in the very room we were sitting in, but dressed to celebrate.  There were set to be food stations, where festival themed food would be available.  The event team asked me to just come also for and try to see if I could cope.

Again they made arrangements for me, Fizz and the a guest of my choice to enter the room before it was opened up to everyone.  To enable me to come in while the lights were up to navigate the room.

Fastforward to the evening ……

I entered the room early with Fizz and Jenny, we found a table to sit at and I was able to familiarise myself with the room layout.  The food stations would be far to tempting and distracting for Fizz, so Jenny agreed to support me by collecting food for me.

Entering the room early may not sound like much; but actually it made all the differenxe to enabling me to enjoy the evening.

I felt relaxed; I felt much more relaxed than I have at any other party event I have attended with Herbalife.

I even got up and danced for a bit and found myself mingling through (with a Jenny’s help) to catch up with other friends and colleagues.

Sundays Training was so much simpler.

We went straight into the ‘break out room’ and we actually found a good few more people sat here.  News of the air conditioning had spread through to the auditorium and even some of our own team joined us.

I don’t feel that I missed out by sitting in the other room.  I did however gain so much.  I would highly recommend that such ‘accessible’ seating was available ….. And as such and email has gone off to the company to ensure more support is available.

After all, o can’t be the only person within Herbalife that has a disability or anxieties about large numbers of people?

 

The day I brought my cane

“Stepping through the door like a troubadour
Whiling just an hour away
Looking at the trees on the roadside
Feeling it’s a holiday
You and I should ride the coast
And wind up in our favourite coats just miles away
Roll a number, write another song
Like Jimmy heard the day he caught the train.”
On this beautiful sunny summers day I couldn’t resist the play on words!
But with this beautiful weather and scorching temperatures come one very sad moment.  And that is that for me to go out during the peak part of the day, my faithful hound Fizz must stay behind.
It isn’t because she is a black dog, it is simply just because she is a dog. And as such can only reduce her body temperature through panting.  She would also be walking bare foot on pavements that have been heated by the sun, which could cause blisters on her paws.
So for me, it is back to my (not so faithful) long cane.  With its red and white strips it was recently likened to a barbershop candy striped cane!!
As a guide dog owner it is important to keep up my cane skills for very such occasions……. But it doesn’t mean that I enjoy this time at all; not one little bit.
Bright sunshine, blue skies and long canes (for me) do not mix well.  I find myself scanning with my residual sight, apologising to shadows and generally find myself more exhausted by the whole experience.
I can’t however cancel all plans and stay home.  I am however limited to how far I can go as Fizz is home I need to ensure I don’t leave her alone too long either.
It is a balancing act and in one way I am grateful that I can still keep my essential independence because of my long cane skills, but in another way I will be much happier when the weather cools a little.

My 10 ‘MUST HAVES’

Everyone has their own ‘must haves’ or ‘can’t live without’ items.  And maybe mine aren’t that dissimilar, I have very little specialised kit to cope day-to-day.

In no particular order, here are my 10 MUST HAVES:

  1. One Touch Kettle
  2. iPhone
  3. Apple Watch
  4. Compact Dome magnifier
  5. Wrap-Around Polarised Sun Glasses
  6. Power pack
  7. Amplicomms Amplified Bluetooth Neck-loop
  8. Notepad/Pen
  9. Book
  10. Dog Bowl

ONE:  One Touch Kettle:  I like most can’t start my day without a cuppa.  My cuppa of choice is Herbalife Thermogenic Peach Tea; and although there are fantastic gadgets like liquid level indicators and tipping support for enabling VIs to pour a normal kettle, my kettle isn’t a specialist bit of kit.  It is simply a water saving, energy efficient way of pouring just one cup of water at a time.  I don’t even need to lift it.  I simply set the cup size (all my mugs are large-so this is easy) press the button and when the water has heated, the water is dispensed automatically.  With no risk to me….. This also means it is safe for my children to make them or me a cuppa (although this novelty has really caught on yet!)

TWO:  iPhone:  Apart from the ‘usual’ needs for a smart phone to call, text and access maps; my iPhone is an AMAZING piece of accessible tech.  With the standard, ‘Notes’ ‘camera’ ‘Magnifier’ ‘Siri’ in addition to the ‘added at source accessibility features my phone is fully accessible’.  It is more than ‘just a phone’ it is a Canera, A CCTV Reader, a pocket sized PA, with the addition of recent apps such as ‘See Al’ ‘Big Spender’ ‘Station Master’ I have all the information I could possibly need at my finger tips means that nothing is ever far away.

THREE:  Apple Watch:  Just as my phone my Apple watch is an extension of the support I gain from Mac based products.  And actually my increased feeling of safety that my watch offers me, helps me to feel more confident in my surroundings.  With the use of haptics I can set a route on my phone that then gives instructions through vibrations on my wrist.  I have my watch set to enable me to zoom in on the screen, to read and send messages and even answer calls.  In addition to making contactless payments enabling me to keep my phone and purse both safely kept in my bag.

FOUR:  Compact Dome Magnifier:  This is my bewest piece of ‘kit’ that I actually received from the LVC (low vision clinic) at Moorfields Hospital recently.  It is a small Perspex domed magnifier that gives 2.5 magnification, which in the scheme of things isn’t much, but with a flat base and a domed top it enables the light to be increased and this has just as much importance to me as the magnification.

FIVE:  Wrap-Around Polarised Sun Glasses:  To protect my eyes from bright sunshine and glare. (Non-prescription)

SIX:  Power pack:  So that I always have a back up should I be using a lot of the apps on my phone and therefore depleting battery life.  As my phone running out is so much more than just ‘not being able to make a call’

SEVEN:  Amplicomms Amplified Bluetooth Neck-loop:  THIS IS a specialist piece of kit, this works with my hearing aids to support me.  I can stream calls direct to my ears (which works brilliantly for guiding from the ground when I climb)  I can listen to music or audiobooks (as I previously had done before hearing aids)  I can also use the amplification button on the front to enable me to hear a person stood in front of me in a loud, busy environment.  Or tune into a local ‘loop’ connection what is being said clearer and directly into my ears.

EIGHT: Notepad/Pen:  Because sometimes I like to jot down ideas for blogs or make notes and sometimes I like to not use tech.

NINE:  Book:  Just like the notepad, I like to just do the simple things, to enjoy escaping from the world for a few moments (after all with my magnifier and the right lighting, I can still read)

TEN:  Dog Bowl:  clearly this one isn’t for me, but with my faithful guiding girl I need to ensure that I can meet her needs and ensure that just like me, she is hydrated.

So, these are my lists.  And at times I will add other items to them and other times I may not include them all.  But I do start each day with a cuppa and I never leave home without my phone or watch (which probably isn’t any different to any other person in today’s society)  I am sure if you asked another VI they may have different items they consider important.

I just wanted to share with you mine.

i hope you have enjoyed.

Faith

While with a group of friends today we were talking about faith.  Discussing it and questioning what our understanding of it is.

One comment made about one way to look at faith was

If you’re sat on a chair, you hold faith that THAT chair is fit for purpose and will keep you sat safely and not break.

This made me think, as someone who has far too many questions about ‘religious faiths’ to have one of my own I thought of it a different way.

What (or who) do I have faith in and trust?

And when put like this I have just one answer

My Guide Dog Fizz.

I have total faith in her (and Vicky before her)

Each day i put on her harness and trust her to guide me to my destination; be that getting the kids to school or wherever we may be going to.

I give her the directions and instruct her on where we are going, but I have faith in her that she will get me there safely, not walking into traffic or causing me to trip or fall on steps, curbs or other surfaces.

And with the exception of the odd over-hanging branch I know she has me.

My faith in her is I guess some would say, similar to that faith of a religion.  I have trust that she will protect me, keep me safe.

I know HOW she is trained and WHY she is trained, but no-one can say for certain WHY she takes that training and guides me each day.

That to me is faith.

I have the faith that she will do as I ask of her each and every time I put her harness on.

I trust her.

I can’t see what she does each time we go out together; I simply feel how she moves through her harness and I can react accordingly following her lead.

That to me is faith.

I trust her.

I may have totally missed the point of the discussion; I have never sat on a chair and though ‘this isn’t fit for purpose’.

Just as I have faith that a chair will be safe to sit on; after all this is what it is designed for.  I have faith in my guide dog, because she has been trained to guide me.

To me that is faith.

 

 

Days like today…….

I have a ‘Have Guide Dog, will travel’ attitude to life, today I decided in the sun to visit Winchester (alone) something I don’t think I will be in a hurry to repeat.

The rudeness, the sly comments & general ‘opinions’ that were continually thrust upon me resulted in a very short visit.

I am more than happy to accept and I do understand that not everyone likes dogs, be that an assistance dog or  a pet.

I do understand that in some cultures dogs are not warmly accepted. But today the comments or actions of rudeness did not come from the here.

Today it came from,

A business woman looking down on her phone;

The art student with a VERY LARGE portfolio;

The man in the queue in Starbucks;

The woman behind me in boots who tutted at me when I asked the sales assistant to repeat herself for the 3rd time because I couldn’t hear her;

The van driver who got shirty when I waved him on because I wouldn’t cross in-front of him.

Were it not for the kindness of strangers I would have found myself fighting tears & heading for the nearest taxi.

it was thanks to ….

The window cleaner who moved his ladder so I would walk past;

Theassistant in Starbucks who offered me water for Fizz while pointing out to the rude man that assistance dog or not I had every right to enjoy coffee;

To the sales assistant in boots who guided me to a quieter area so I could hear what she was saying!

I know that I may stand in the wrong queue at times, I know that my guide dog likes to walk by the building line, which means we often walk right in front of the shop doors, I do understand that I take up more width on the pavement as I walk beside my guide, and she can’t tell me to “step in” the way a sighted person would if the path was narrow.

But at what point does vocalising your opinions change this? All it does is demoralises someone who just wants to get on.  And could even stop a (less stubborn) person from going out and visiting other areas.

Today has been one of those days where I have felt isolated and hurt by the actions of others.  But writing this now I am able to say that I won’t let it stop me, I share this with you now to raise awareness.

Because it can often be the ‘off-handed’ comment that you quickly forget making that can cause irreparable damage to someone.  We never know what demons people are fighting; so just be kind.

It really is THAT simple.

When riding a bike is not like riding a bike

Photograph shows a ‘selfie’ of Simon smiling at the camera, with me, Tee sat behind him on the left. The photo is of us both sat on the Tandem, but the bike is not in the shot.

About a month ago I bought myself something rather quite special.

I bought a tandem.

I bought it from a fellow blindie who had had a change of health and although the bike had been serviced and well looked after; it had remained sat un-ridden.

It is only through the ‘on this day’ feature of Facebook that I can tell you that it has been just under two years since I have ridden a bike.

It was when we were away on holiday with the children, it was when we were riding on site of a Haven Holiday Park.  After this I am sure that there was one further bike ride back at home before my bike was left to gather cobwebs and become home to spiders in the garage.

I did not stop riding because of an injury.

I stopped because with my hearing going in addition to my sight I did not feel I was safe either for myself or for other road users.

Many would be surprised that it is only in the last two years that I haven’t ridden my bike.  Thinking about it now, it was pure stubbornness that had stopped me from hanging up my riding helmet before then; in the same way I can only imagine that a car driver who is in denial about their sight feels about surrendering their driving license.

A tandem was a way of gaining back some of me.

Yes, by the very definition of it I would only be able to ride with someone else.  But riding a tandem with someone else feels less of a lack of independence than riding a bicycle with another adult beside me.  I think that this is because a tandem is for ANYONE.  A normally sighted person can ride a tandem, it isn’t a ‘mobility aid’ in the conventional sense of the word.  Even though when I think about it, in my case it kind of is just that; a mobility aid.

Anyway……

I had the bike serviced and checked over.  I spoke with a few friends about coming out for a ride with me and then, earlier this week.  One of them took me up on my offer.

Having spent time looking over the bike and following the workings of it I was instantly struck by the fact that as the rear peddler (the stoker in technical, bicycle jargon) I had no gears or brakes.  I was to simply just peddle. (Which when you think about it sensibly it makes perfect sense, but to me as a former solo cyclist-I had always had gears and brakes)

So, if all I was to do was to peddle. When and how would I know to peddle?

How would it feel sitting behind someone else (The Pilot-more jargon) who was in control of where we went?

How fast we got there?

And in what intensity of gears we were to achieve it?

I guessed I would just have to ‘go with them’ … LITERALLY.

My faithful Climbing Partner in Crime (CPiC) Simon was my first volunteer; we have ridden together before (on individual bikes) and he more than most understands my sight loss, and more to the point my anxieties of something new.

First he took the bike for a ride to the end of the car park without me.  This gave him a feel for the length of the bike and the kind of turning circle it would have.  Then it was my turn to get on with him.

My first ‘odd’ feeling was that I had both my feet off the floor, on the peddles and yet the bike was still upright and stationary.  This being because Simon is taller and still had his feet on the ground!

We set off; it was wobbly, but it soon became smoother as we got into a rhythmic pattern.  And surprisingly; not being able to see infront of me wasn’t concerning (because all I could see was the red of his jumper) felt O.K.

It felt ‘odd’ in the sense that I didn’t feel I was peddling enough, not as much as I thought I remembered from when I had ridden my bike before.  However, what I was forgetting was one simple rule;

”Double the bodies means half the power”

Easier said than done.  When the pilot slowed down I felt that as the stoker it was for me to peddle more.  This wasn’t the case.  In fact at one point I was told very bluntly to “JUST STOP”

I began to relax into the journey, I began to feel when it was time to coast and when it was time to peddle.

I also felt the exact point where my shoulder relaxed and my anxieties of ‘letting the other rider down’ were disappearing.

I only got off the bike and walked at a point where we crossed a road on the footpath (rather than add the complication of the road junction into the mix)

And before I knew it we were heading back towards home.

I could lie and say my arse wasn’t hurting from being sat on a not so padded saddle.  I could lie and say I didn’t get cramp in my thigh….. But then were would the fun be in that?

It was interesting to discover that I can suffer with ‘Elvis Leg’ when riding a bike, just as I do at points when I am climbing….. This usually comes at a point where I am concentrating so hard that (as silly as this will sound) I forget to breathe!

We managed to clock up just over 9km on our first ride.  After all I live in The Highlands area, which as the name suggests is an area with many a hill; which for the most part I want to be avoiding until my bike fitness has improved somewhat.

The route was recorded on my Apple Watch and all the specifics as to times, heart rate and distances are stored within my fitness app.  So next time we can follow the same route and see the improvements in it.

I wasn’t really able to talk to Simon much while we were cycling (but then there really was no need to) so when we arrived back I asked him how he felt, his answer wasn’t what I think I expected to hear;

”It felt creepy having someone riding RIGHT behind me, so close; I felt I wanted to ride to get away from them.”

…. But as he never managed it, he said it was just something he would have to get used to.  And he has agreed to go out and ride with me again.

So watch this space for more tandem cycling antics.

 

 

New Year; New Challenges

And no, this isn’t about setting a (be it a belated) Resolution.  This is about the realisation that after just over a month into 2018 I have faced and fought, fought and (sometimes) lost and lost and re-found my own sense of strength.

If you are a regular reader you will know that this year started with the sad loss of my first guide dog Vicky.

But with the sadness of loosing her; along with the adjustment of ‘just having Fizz’ I found a passion.

A passion that has always been in me, but for one reason….. Or rather one EXCUSE or another I had forgotten it.

It is so easy to forget those simple passions that can bring such pleasure when ‘life’ keeps getting in the way.

Anyway, I digress……

When we said goodbye to Vicky I suddenly realised how much I loathed being at home.  How I couldn’t bare the ‘silence’, the little things about her like hearing her dream.

It also took me several weeks to ‘forget’ to say hello to her when we came in.

One of the strangest things was coming home to a silent house! Because for the past 3 years I have always left on the tv or the radio to keep her company, so she didn’t feel alone.

So, as painful and upsetting as returning to a quiet house was, sitting in one was even worse!

And this is where my passion reignited.

When the children weren’t home (because of school or being with their dads) I disappeared off for a walk.

The beauty of a walk is that Fizz could always come too.  The beauty of a walk is that I could just ‘stomp’ out my upset.

The other beauty of walking is that I could track it all on my Apple Watch, to judge the distance, to track my pace and after several weeks to gauge how my fitness had improved, because the very same walk from my house to town isn’t taking as long!

The other bonus of my walking is that I could feel free.  I don’t need to rely on another person to walk, I don’t need to rely on any equipment or memberships.

I just ‘harness up’ Fizz and head out.

Sometimes we get the bus to the beach, sometimes we take a different route into town.  And other times we enjoy a stomp through the muddy bridal ways en route to the pub with friends!

Your probably wondering why I am telling you all this in this post?  Well, you see I have decided to make this walking count.

I haven’t finalised the details yet, but with a group of friends I am looking to complete The Three Peak Challenge in late Summer.  Its just over 26 miles and with a tour guide is a walk that is set to take between 9 and 12 hours to complete.  And for obvious reasons (such as exhaustion, concentration and distractions) it is one walk that Fizz won’t be completing with me!

But that doesn’t mean that she can’t help with my training !!

And why I hear you ask……..

Well, you see ReSound have just made a massive development with their hearing aids, having raised just over £1,000 for them, I want to ‘earn’ the remaining £2,500 towards enabling me to purchase the new and improved LinX 3D (an improvement on the LinX 2 that I had previously tried.

So, one the challenge is set up you can show your support with words of encouragement, pennies to help reach the target OR by joining in on the walk yourself.

Domation can be made via the Just Giving Page Help TINK Hear

First Scarlet; Then Pink; A study of Sherlock

This is an interesting one.  Something a little different for me.  Something that is far too good an opportunity to pass up.

Through my volunteer role with Open Sight I was made aware of The Conan Doyle exhibition that is currently taking pride of place at Portsmouth Central Library, an exhibition that was bequeathed to the City of Portsmouth by  richard-lancelyn-green with funding from The National Lottery (among others) it had been made fully accessible to those with a visual impairment.

Sadly I had yet to find the time to visit when I received another correspondence from Open Sight giving very vague details of a residential writing course being run and funded on behalf of The Conan Doyle Trust.  For whole Open Sight were simply collecting details of those who were interested to be passed over for more information.

The residential course running 5 full days would be fully funded including accommodation and travel, so I fully expected the ‘application process email’ when it arrived.

(I won’t detail EVERYTHING here)

But hence to say, an interest in Sir Conan Doyle and his infamous charactor Sherlock Holmes were part of the process.

The first criteria was to submit TWO examples of our own work (published or not) to give an idea of writing style.

The second criteria was to write (in no more than 500 words) what you could gain from such a residential course, while explaining your interest in The Conan Doyle Collection.

So, I set to work, this is what I wrote:

Oh how I dream to study Sherlock!

The opportunity to attend a creative writing course will enable me to learn properly how to put my own ‘interesting’ writings of my journey with sight loss. To discover that the whole thing is not only being supported by The Arthur Conan Doyle Collection that was bequeathed to the City of Portsmouth; but it is to work on the ongoing projects funded to take part in 2018, possibly enabling me to write about my love and enjoyment of more recent adaptations of one of Doyle’s infamous characters Sherlock Holmes and I find my fingers tingling over the keyboard to find the right words.

Just 500 words to explain myself, that in itself is a challenge!

Honestly, until the 2010 BBC TV series of Sherlock written by Steven Moffat and Mark Gattis I hadn’t really had an interest in the works of A.C Doyle. I initially took each episode as it was, set in today’s time yet with the iconic ‘nod’ to the originals by seeing Holmes and Watson share rooms at 221b Baker Street. I never realised just how many other ‘nods’ each story held.

And it was the special in January 2016 of The Abominable Bride that I gained so much insight into the original works of Doyle. Being visually impaired it is difficult to ‘read’ yet with audio description turn on I was able to enjoy every detailed part of the theatre that played out on the screen. The detailed explanation that had led the writers to take a trip into the past, the additional details within the current stories that all held historically to the original works. I was transported to a world of intrigue, mystery and found myself wanting to join The now consulting detective.

The whit and sarcasm were bought to life by a great cast, which I relate to as I often find myself writing with these; to turn some of the sadder stories that I relay into a more positive light.

My mind often runs away when I am writing and the words flow easily for the most part. I write in the hope that just one person will find comfort or happiness in reading my words. I write on my own blog www.seemyway.co.uk – about my own life, my journey, about the little ‘tweeks’ or ‘blind fails’ I encounter regularly. I also use it to talk about my passion for rock climbing, volunteering and not letting my sight beat me. It isn’t always pretty happy stories, but then it is real and sometimes there is no way of adding a positive spin to something.

I want to expand my knowledge of writing, my understanding and use of the English language as my hope for the future would be to become a published author, supporting others with sight loss, their families and friends to gain a better understanding of how people can see the world when they are visually impaired.

(the supporting work I included)Screenshot photograph of my blog post “Familiarity is a blind gals best friend”Screen shot photograph of my blog post “Blindly following google”

And now I wait….. A concept that requires Patience; something that doesn’t come naturally to me !

Despite my work being ‘found to be very interesting’ I was put onto the ‘shortlist’ which meant that if (for whatever reason) anyone was t able to attend I would get to go.

So, I kept quiet, made arrangements as if I were to be going.  Only to hear at the beginning of this week that I would not be attending.

So, for now I am looking at the positives and have taken some learning away from this experience and I am also looking at other adventures that my blogging could open for me.

So….. Watch this space !!!

“Stop rubbing your nose against everyone”

For any dog owners reading this, be it a guide dog, assistance dog or family pet I only have to say one word for you to understand what I am talking about …. HALTI !!

Fizz is a Labrador first and guide dog second.  She is incredibly well trained and it goes without saying that she is fantastic at her job.

But…

She is often led to distraction by the smell of something more interesting, someone greeting a friend, a rough pidgeon or even a leaf!

And this is where her ‘naughty nose’ works so very well.  It enables me to hold more control over her and as a dog is not as strong in their noses as they are in their necks, it allows me to keep her focused on the direction I want her to go.

However……

As a dog, she will take any possible opportunity to get it off her nose!

This means, if I stand still she will rub against my leg, or more embarrassingly; she will use the leg of a stranger.

I have commented before about my love of coffee, a love that Fizz now associates with standing in a queue.

It would just so happen, a queue is the ideal opportunity to rub her nose against strangers.

And she won’t do this at a point on their legs where they can see her.  No, she will sneak behind them and nudge at a point of their legs that will cause the oddest of sensations and some times even fear to them.

Although, this fear is probably greater in the summer months, when a wet nose touches bare flesh!

Yesterday while in such a queue, Fizz introduces herself to a man infront of us.  He was very chatty and would not allow me to apologise for her behaviour.  He joked about how he was wondering about what explanation he would have to offer his wife; thinking he was being propositioned by me, not the daft dog!

We spoke for a few moments while I waited my turn, and when it came to it I ordered my coffee as usual only for the gentleman to offer to pay for it.  I tried to stop him from doing this, but he was rather insistent, he said to think of it as a thank you.  I asked him why he should be saying thank you to me, to which he replied

I am thankful to Fizz, for her enabling me to meet an inspirational young woman who has made me smile at a time of sadness in my family.

I didn’t know what else to say, other than

Your welcome.

The end of a (half) Era

 

Today is one filled with mixed emotions, concerns and thoughts.  Today, 18th January 2015 is the last working day for my guide dog Vicky.  We have been working together as a qualified team since 18th November 2009, and it has been an amazing 5 years and 2 month.

I maybe should have warned you that this post will probably get soppy and definitely be emotion (for me at the very least).  Anyone who has had a pet dog will tell you, a dog is more than ‘just a dog’ they are a companion, a confident and a loyal friend:  Then add to that a dog that works for you, a guide dog (or other working dog) and the level of support, trust and love you feel for them increased even further.

Add to the mix, that Vicky is my FIRST guide dog and all of the changes she has allowed me to bring about, along with all of the changes I have had no control over that she has helped me to overcome, even when it felt like I was fading.  And it has been an amazing time together.

Before she arrived I was highly dependant on family and friends, I found myself disappearing into myself after my eye condition was finally diagnosed in 2008, the thought of my sight going completely and leaving me blind, unable to watch my daughter grow up, marry, have children of her own, along with no longer being able to earn money to pay for the things she needed and wanted.  The question of if my partner would be happy to stay with me, ultimately becoming my carer… All fears of my future.

Which were all quashed with the increasing bond between me and Vicky, with the feeling of independence that she gave me, the feeling of being safe, even on a tube in the middle of London.  And as well as guiding me and making me feel safe, she listened, she loved and she showed no judgement.

She gave me so much more than what was on her job specification.  She gave me back me, but not the me that was there before.  She gave me a stronger, altered version of me.  She can’t change how my eyes deteriorate but she has changed the way I think of the future.

She enabled me to feel safe while I carried my son in my belly, she enabled me to take my daughter to pre-school on my own.  She allowed me to feel I could be more, do more and even helped me quash my fear of being in a relationship where the role of carer overtook the role of lover.  She even gave me the strength (indirectly) to walk away when my relationship failed.

Now that both my children are now at school and my previous career has come to an end, my priorities have changed.  My sight is such that I tire from using my eyes, using a computer, reading and concentrating cause pain and exhaustion.  With eye strain a daily accurance, I know that I can reduce my stresses by making the changes I have, I no longer have to ‘waste’ my sight while walking in the street or taking the children to school, Vicky gets me there safely, regardless of a rough wheelie bin, dumped child’s bike or even a car parking on the pavement.  I can prioritise my sight to sit reading with both my children after school, helping with homework and even cooking dinner (with the help of a few cheats, like pre-cut veg or meat)

If someone had said that having a guide dog would enable me to be a single parent and help my children with their homework I would have thought they were crazy, but that is what she has done.

She has enabled me to live, rather than just exist.

Vicky came into my life to guide me, she came to me as a mobility aid, just like a long cane.  But a mobility aid with a brain.  I can never ever repay her for everything else.

Vicky will have a forever home with me and the children, she will get to put her paws up and enjoy the peace and quiet, the lead walks where she can finally stop to smell who has wee’d on the gate post!  Free-run more with the other dogs in the park… And generally get to be more dog.

My new guide dog, Fizz will replace Vicky as a guide dog, she will take on the role of being my leading lady, but she will never replace Vicky.

In fact, she has some rather big paws to fill.  I still have plenty of room to grow, my eye sight will continue to deteriate and only time will tell how Fizz will help with all of these things.

Fizz is different to Vicky, not just in breed (although also black) she is a faster girl than Vicky now is, she has a bit of a cheeky personality and we both have a lot to learn about each other.  We will do this, it will take time, but I am sure she will be a great addition to our home and my independance.

So watch this space for updates on our training journey and Tales from Vicky’s time as a retired pup.

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