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The end of a (half) Era

  Today is one filled with mixed emotions, concerns and thoughts.  Today, 18th January 2015 is the last working day for my guide dog Vicky.  We have been working together as a qualified team since 18th November 2009, and it has been an amazing 5

So….. Today, this happened !!

Me & Fizz outside EICA

It’s almost 11.00 o’clock, 12 hours after this crazy day started. The climbing arena was nothing like I had ever seen before and no matter how much I had researched and looked at photo after photo I was not prepared for the quarry that I

Maybe I Should have said something before…..

Well, this is something new……. I am sat in the passenger seat of my friends car doing 70+ MPH on the M6 Motorway travelling on my way to Edinburgh; while typing this blog.  My iPad is tethered to my phone for 4G and my voiceover

Faith

While with a group of friends today we were talking about faith.  Discussing it and questioning what our understanding of it is. One comment made about one way to look at faith was If you’re sat on a chair, you hold faith that THAT chair

St George’s Day sewing marathon

So, tomorrow is St George’s Day and at 2.40 this afternoon my daughters school sent out a text message to say that any Beavers, Rainbows, Brownies etc are free to wear their uniforms instead of school uniform… With full badges! This created 2 panics…. 1)

Taking my volunteering to the next level

Having supported my childrens’ Scout Group for a few years on the Exec committee I recently stood up to change roles.  I stepped off of the Exec to take up a role as an Assistant Cub Scout Leader in the pack that I have I been helping out at regularly on their evening.

The whole group has made me feel so welcome and supported.  They have never seen my ‘disabily’ as an issue, all they have ever asked of me is to show them my ‘abilities’ ….. The children are so acception, they have the most wonderful questions.  And they all adore Fizz (which is always a bonus)

I have to attend and interview with The District Commisiioner, undertake a meeting to discuss my disabilities and the impact that may have on my role.  I have to undertake training, but all of that just fills me with excitement.

I as a child never attended anything like this, no Brownies or Girl Guides for me. And as my sight changed, I never saw camping as something I would do.  Having joined in a weekend camp last September, I realised just how managable camping would be.  Although not in the small 2 man pop up tent I borrowed.

I still need some luxuries if I am to do it all again…..  Simple things, like being able to stand up, and having shared a tent with Fizz, a separate bedroom area is a must.

Oooohhhhhh I can feel a shopping trip coming one!

Would you flip a coin on it?

This is a much more personal and private post.  One that I have thought of writing for some time, yet not found the courage to put it into words.  This is true, raw emotion.  Please comment if you wish.

Sight loss, hearing loss, illness, disability; all of these can affect your mental health and mood.

I have battled with depression for many many years.  It isn’t (for me) something that is fixed by medication.  In addition to being a trained counsellor myself, i have undertaken many various forms of therapy; from CBT to mindfulness and many in between.  Depression isn’t easily or quickly fixed.  It often takes many ‘trial and error’ theories, after all as a human, I am in my own way unique.

My sight is degenerative, and in recent months I discovered that my hearing is also digenerative. This by its nature means that I have not as yet come to terms with it.  With the world around me ever changing (because of how I can see and hear it). I find many of the new challenges upsetting and difficult to deal with.

In very recent months I have found this particularly hard.

I found myself thinking and analysing everything much more.  This found me in a very low, downward spiral.  A spiral that I could find no way out of.

This was compounded from my current therapy sessions I have been undertaking with iTalk.  By looking at many of my demons up close and personally, I found it all too much.

I found myself alone, not able to approach my friends.  Not able to ask for help.  I found myself bursting into tears at ANYTHING. I couldn’t eat without being ill, I couldn’t drink coffee without being sick.  I couldn’t see a way to carry on.

A question Doctors and counsellors ask,

Do you feel like hurting yourself or that you would be better off dead?

I could answer this, my answer was always “No.” not because I was lying to them, but because it wasn’t the right question.  Had they asked:

Do you think everyone would be better without you?

They would have got a completely different answer.

I felt that I was just someone who was in everyone’s way, someone they pitied, someone they ‘put up with’ but not as someone who would be missed if I was no longer here.

I never sat down and thought of it as dying, committing suicide or harming myself.  I thought of it instead as improving others lives.  By not being here they could all get on with living, my children wouldn’t have to worry about me, they wouldn’t have to ‘miss out’ on doing fun things, because I am not able to drive, or run around with a ball.  They would also no longer have to cope with going between me and their dads.  Especially Lawrence, who seems to be particularly sensitive and worried about saying something that may upset me.

That they would be much happier not having to help a disabled mum.

I thought my best friend would be happier too.  Instead of having me bother him with texts and emails, he could live his life, enjoy his children and make a future for himself without me being like a noose around his neck.  Someone he felt obligated to ‘put up with’, someone who had made the mistake of being nice too at a difficult time and getting stuck with.

Without me, he could be happy.  Me not being here would be one less stress for him in his already stressful life.  And I felt similarly about other friendships.  I don’t have any family, they have already told me how they don’t want me.   So I thought I would be making the best decision, I thought I had decided that it was best for everyone if I just  wasn’t here anymore.

I shut myself off, I lied to friends who asked “how are you?’

I kept putting things off, I didn’t walk the dogs, I didn’t do the housework, I didn’t write in my bullet journal.

I did however call Samaritans.

I apologised for wasting their time, I spend just under 3 hours on the phone to a woman who said her name was Beth, she asked me about my family, my home, my children.  We talked for a long time and I can’t remember most of it.  I remember there were lots of tears, lots of apologies from me (anyone who knows me well will tell you how good I am at saying sorry-when actually I don’t need to)

Speaking with Beth, I found myself feeling I ‘needed’ to go to my counselling appointment in the morning.

For each counselling appointment I am asked to complete an online questionnaire.  And for the first time in about 10 days.  When I arrived at my appointment, my counsellor asked me about my questionnaire answers and scores.

She asked me WHY?

And then she did something I never thought I would ever hear, it is most definitely not something I came across in my counselling training  (although, I haven’t yet completed my degree level)

She asked me to score on a level of 1 to 10 how much I wanted to ‘not be around anymore..

My answer was 6.

She asked me how I thought about doing it?

I didn’t know that bit, although rationally I told her I didn’t want someone who knew me to find me, I told her I wanted it to be a doctor or nurse, or someone else who has been trained to see dead people.

She asked me if my children would understand?

No, they wouldn’t understand.  But after the initial upset, they would grow up with their families and be happy without me.

And then, she said this:

You say that you are over half certain that people would be better off without you here? So lets flip for it.  Heads you end your life and Tails you carry on.  Shall we do that? Leave it to the flip of a coin?

In my head I was thinking ” Are you wanting me to do this?’ But what I said, was even a shock to me,

NO! You don’t decide this on the flip of a coin.  That is just stupid, deciding on something so final and leaving it to chance.

She then abruptly changed the subject and asked me what I found relaxing.  And we spoke no more of it.  We didn’t need to, because even though the conversation had been upsetting, the reality of my thought hit me as if i had walked into a lamppost.

Focussing on relaxation and choosing a list to pick at least one thing off each day, made for a much more enjoyable week.  I also had my charity climb to do.  I still couldn’t keep much of my food in, but I had made sure I drank plenty.  And although scared and feeling I was a failure, the climb was not just an event I HAD TO DO, it was the ultimate metaphor….. THE ONLY WAY I COULD GO AND UP I WENT.

It was exhausting, I struggled and feel that even though I did complete it, that I let my friends down, that I failed and that even though I did my best and gave my all, that actually it wasn’t enough (but that’s for another time)

I returned to my counsellor again after the climb, again completing an online questionnaire before going.  And this time my counsellor commented on the reduction of my scores and improvements.

My counsellor asked me to recap on what had happened in our previous session, she asked me what had changed?

So, I told her, I told her how I initially thought the previous week that she had actually been trying convince me that I should end my life, but that when I had calmed down, when I had thought about it and when I had relayed some of it (I couldn’t face telling her all) to my friend, that I had actually realised what the purpose of the direct questioning had been.

My counsellor confirmed that she too had reflected with her supervisor on our session, and how she had been able to tell that although I was upset that this form of directness was actually making me think.  She was never mocking me, or thinking me stupid.  She was simply facilitating me to think.

She also explained that had I answered differently to the question of flipping a coin, that she would have instantly notified her supervisor.  Putting in place several safe guarding options. This is something she had told me about in our very first session, as she had explained that both her safety and my safety were key.

In addition to seeing my counsellor, I have been on half weekly visits to my GP.  I explained my session to her, to which she was impressed and felt that she would take that back to her fellow doctors.

Suicide and the thought of harming yourself or wanting to ‘stop getting in other peoples way’ is not an easy conversation to have, it was not easy for me to admit these thoughts, this feeling, it is not ‘crying wolf’ It is a serious emotional and mental health issue.  One that you should not ever apologise for having, it is not ‘stupid’ it is not ‘weak’ it is simply that you cant see a way forward.

You don’t need to apologise for hounding your Doctor, for calling the Samaritans, turning up at your local A and E Department if you can’t think of anywhere else to turn or even calling for an ambulance.

There are plenty of people who want to help.

And help you they will.

 

 

 

 

 

Taking my time to come down !

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Would you be my eyes?

Watching a film earlier today with an additional audio descript soundtrack; my son asked me

What does blue look like if you can’t see?

A question that made me think, I asked him what he thinks of when he thinks of the colour blue, to me it is the sky, the sea and swimming pools.

But mum, what if you had never seen before? What would blue look like?

And so I decided to write this post, I couldn’t answer my sons questions; but I have told him I will, I just need to do a little research first !!

For as long as the written word has existed there have been ways of evoking images from it.

Abjectives, Verbs, Nouns, connotation, yet these all rely on you knowing what such objects look like. In my research of this subject I have found something, something that was buried at the back of my brain with all of my other Secondary Educational learnings;  Pathetic fallacy – where the weather in the story or written word mirrors the emotion of the scene or the people in it. For example, when it is very hot the characters are agitated or when it is foggy, mystery is evoked. This is used to adds atmosphere to the writing and gives clues to the reader as to what is to come, especially if the weather is described before the event.  Just as many horror movies occur on dark stormy nights.

Do you need to know what weather looks like to understand it?

No, as someone who enjoys every type of weather and the changing seasons this is one element of life that I can use my other senses to understand.  Weather can be truly ‘FELT’ the hot sun on my skin, the drizzly rain, the north-easterly breeze.  Fog comes with the additional sounds of fog horns (living on this coast these can be heard miles in land) Mist gives a dampness to the air that isn’t present when it rains, morning dew has a smell to it, a storm too can have its very own smell and it’s not just thunder that makes a noise.

Weather can’t explain colour or shape though, although it works very well for emotion.

So, I am back at the beginning.

How would you describe the colour blue?  Without using the word, what does blue look like?

I have had sight and I have been fortunate to be able to see and remember colours, images, items.

Even though now my perception of colour is greatly altered, I can only really see the difference between orange and red when they are together and everything I see has a kind of haze or veil over it, so isn’t as vivid or true as it once were.

My hunt for answering my sons questions will continue, but for now; humour me?

Please reply to this blog post with your description of the colour blue.

No judgement will be passed, no humiliation with be sort.  Just an intriguing mind looking for help.

Thank You x

What does sound sound like?

Tomorrow I have my NHS hearing aid fitting appointment.  My hearing aid assessment was very quick and limited; unlike the hearing assessment I had done privately.  My NHS assessment didn’t test how I hear (or rather struggle to hear) certain voice tones or in areas where the background noise was high.

I guess this has led me to feel that I may not gain the full potential from my hearing aids, and also because I am only having one for my right ear. And nothing for my left!

I am fortunate that as I am registered blind, I do receive a second right ear hearing aid.  This is so that should I drop one, or (as suggested by the audiologist) my guide dog EATS one.  I am not left isolated while a replacement is sort.

The NHS Choices website states;

Hearing aids are designed to help you hear everyday sounds such as the doorbell and telephone, and improve your ability to hear speech. They should make you feel more confident when talking to people and make it much easier for you to follow conversations in different environments. They might also help you to enjoy listening to music and the TV again, at a volume that’s comfortable for those around you.

I guess I find it hard to feel confident.  For as long as I remember I have worn glasses and it was actually a feeling of loss that I felt when I was told I didn’t actually need to wear them on a day to day basis, when I changed my prescription for reading glasses.  I tend to just wear them out of habit and the ability to hide behind them.

How will I feel wearing a hearing aid?

 

Envious of the mundane

Sat waiting for a friend to arrive and watching (as best I can) the people coming and going with their shopping.

And a very mundane task struck me.  People were walking with shopping bags in both hands.  Sounds rediculous, but in that small insignificant moment I became upset.

And the reason for it?  The realisation that from now and forever I will always walk with one hand full; as I will either be holding a long cane,  a guide dog harness or onto another person’s arm.

It sounds silly, but having to consider what you are buying when you go out, to either contain it in a back pack or worst case over my shoulder.  It is very difficult with Fizz to have a bag in my right hand, she works off of tap que’s and a gentle reminder from having her lead in my right hand at times.

I guess for now I shall just add it to the list of ‘no longer possible’ and carry on by focussing on the ‘can do’ list.

“Stop rubbing your nose against everyone”

For any dog owners reading this, be it a guide dog, assistance dog or family pet I only have to say one word for you to understand what I am talking about …. HALTI !!

Fizz is a Labrador first and guide dog second.  She is incredibly well trained and it goes without saying that she is fantastic at her job.

But…

She is often led to distraction by the smell of something more interesting, someone greeting a friend, a rough pidgeon or even a leaf!

And this is where her ‘naughty nose’ works so very well.  It enables me to hold more control over her and as a dog is not as strong in their noses as they are in their necks, it allows me to keep her focused on the direction I want her to go.

However……

As a dog, she will take any possible opportunity to get it off her nose!

This means, if I stand still she will rub against my leg, or more embarrassingly; she will use the leg of a stranger.

I have commented before about my love of coffee, a love that Fizz now associates with standing in a queue.

It would just so happen, a queue is the ideal opportunity to rub her nose against strangers.

And she won’t do this at a point on their legs where they can see her.  No, she will sneak behind them and nudge at a point of their legs that will cause the oddest of sensations and some times even fear to them.

Although, this fear is probably greater in the summer months, when a wet nose touches bare flesh!

Yesterday while in such a queue, Fizz introduces herself to a man infront of us.  He was very chatty and would not allow me to apologise for her behaviour.  He joked about how he was wondering about what explanation he would have to offer his wife; thinking he was being propositioned by me, not the daft dog!

We spoke for a few moments while I waited my turn, and when it came to it I ordered my coffee as usual only for the gentleman to offer to pay for it.  I tried to stop him from doing this, but he was rather insistent, he said to think of it as a thank you.  I asked him why he should be saying thank you to me, to which he replied

I am thankful to Fizz, for her enabling me to meet an inspirational young woman who has made me smile at a time of sadness in my family.

I didn’t know what else to say, other than

Your welcome.

A little over SIXTEEN climbs isn’t THAT much!

… In one day, with each of those climbs topping out at 14m, doesn’t make a 225m climb sound TOO difficult, does it?

Or is it wishful thinking on my part?

Either way, there is no backing out now.  The posters have been printed, the wall booked and my climbing partner (in crime) has agreed.

So, on May 3rd I shall be climbing the equivalent height of The Cheesegrater; otherwise known as The Leadenhall Building, the 225m office building that towers over its closest neighbour (and another building who’s height I have climbed) The Gherkin, 30 St Mary’s Axe.

Time to ‘earn’ my hearing aids.

Poster reading "Climbing a cheesgrater, having conquered a Gherkin."

If you would like to show your support, you can donate HERE

Blinded by the light

…. isn’t that a song title?

Whether it be the Manfred Mann Earth Band in 1975 or The Streets 2004 hit that springs to mind, it felt like the perfect title for this piece.

Today at a Multi Level Marketing Meeting in a lovely Portsmouth hotel, I found myself being blinded by the light.  Only in this instance it was from the bar.  A bar that, having visited several times before I had never noticed before, and from the picture you will hopeful quickly see why.


The entire bar looks like it is sat on a light box, here in this google photo it looks beautiful, but in the cold light of day in a bar where the main lighting was coming from this.  It meant that I was literally ^blinded^ by it.

Thankfully I have a guide dog who I can target with “find the bar” she managed to navigate me to a gap between the bar stools and I waited for someone to serve me.

And after what felt like Fifteen minutes, but was probably more like two the staff member who was stood behind the bar spoke!

It turned out that she had been stood their The entire time and was waiting for me to order, she hadn’t seen me approach the bar, so was not aware of Fizz, we spoke and she was very apologetic.  Asking me to take a seat and she would bring my coffee over.

So, back to my seat me and Fizz went, when just a short moment later she arrived with my coffee and apologised AGAIN (and I quote her here)

….for not introducing myself as your server and asking how I could assist you.

And explained that my coffee would be free of charge, as way of her apology.  I insisted I would pay for my coffee and she had more than made up for the mistake, but she insisted her manager had agreed that I was not to pay for my drink.

I took a photo of the view I had from my seat, I had ensured we moved away from the bright glaring light of the bar, while taking the photo I managed to get the image in a way that I ACTUALLY saw the view, along with a clear photograph of it too.

Clear photograph of bar interior looking out towards the hotel entrance

Blurred interior view from the seat I had at the bar interior looking out towards the entrance to the hptel

Next time I find myself at The Marriott Hotel, I shall ask one of my friends to go to the bar for me.  Because as mush as I like my coffee; I feel guilty for accepting one free of charge.

And on the subject of the soundtrack to this post, despite being in my 30’s, I am most definitely more a Manfred Mann fan than A Streets fan, so will leave you with this little bit of fun……

 

Planning, plotting, working and wondering …….

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